Caregiving Experience for Children with Intellectual Disabilities among Parents in a Developing Area in China

Abstract

A recursive relationship existed among these categories. Chinese culture and traditional beliefs dominated throughout these issues. The implications and limitations of this study were discussed.

The Impact of Affiliate Stigma on the Psychological Well‐Being of Mothers of Children with Specific Learning Disabilities in India: The Mediating Role of Subjective Burden

“…The pattern of high burden among caregivers of children with disability has been noted both in the West (Mastrian et al 1996;Kurnat & Moore 1999;Dyson 2003;Kenny & McGilloway 2007) and in India (Edwardraj et al 2010;Divan et al 2012;Shyam et al 2014;Suresh et al 2014). Prior research also shows that caregivers of children with disabilities experience higher stress, anxiety and emotional strain (Dyson 1996;Majumdar et al 2005;Antshel & Joseph 2006;Kenny & McGilloway 2007;Karande et al 2009;Phetrasuwan & Miles 2009;Yang et al 2016), compared with parents of children without disabilities (Baker & McCal 1995). It is of significance to investigate caregiver psychological well-being, as poor well-being could lead to delayed diagnosis and discontinuation of treatment of a child with a disability (Weiss et al 2006).…”

“…; Phetrasuwan & Miles ; Yang et al . ), compared with parents of children without disabilities (Baker & McCal ). It is of significance to investigate caregiver psychological well‐being, as poor well‐being could lead to delayed diagnosis and discontinuation of treatment of a child with a disability (Weiss et al .…”

Experiences of Family Burden in Caring for the Severely Mentally Ill in a Foreign Land: A Qualitative Study of Chinese Immigrant Families in Toronto, Canada

“…For example, researchers in Taiwan (Hou, Ke, Su, Lung, & Huang, 2008) have reported similar worries regarding patients' illness, dependency, and concerns about their safety and illness relapses. As well, researchers in Hong Kong (Chien, Chan, & Morrissey, 2007) and China (Li, Lambert, & Lambert, 2007;Yang, Bryne, & Chiu, 2016) have found older parents prominently worried about the future, compounded by perceived lack of social support, low income, poorer quality of life, and low number of family members living with patients. There are also research findings that show older caregivers tend to have higher burden levels than younger ones (Vella & Pai, 2012), possibly related to their health conditions and looming financial precarity (Grover, Avasthi, Chakrabarti, Bhansali, & Kulhara, 2005).…”

Caregiver perceptions of inclusive playgrounds targeting toddlers and preschoolers with disabilities: has recent international and national policy improved overall satisfaction?

“…Results of the present study concur with previous findings that children with disabilities face segregation on a playground (e.g., Stanton-Chapman and Schmidt, 2016;Stephens, Scott, Aslam, et al, 2015;Ytterhus, 2012), encounter a lack of accessible playground equipment (e.g., Kodjebacheva, Sabo, Brennan, et al, 2015;Stanton-Chapman and Schmidt, 2016;Stephens, Scott, Aslam, et al, 2015); and have caregivers who experience frustration and embarrassment when taking their child to an inclusive playground (e.g., Bjorgvinsdottir and Halldorsdottir, 2014;Faw and Leustek, 2015;Yang, Bryne and Chiu, 2016). The findings are important for early childhood policy-makers because current accessible playgrounds have not had a major impact on the health and the social-emotional well-being of young children with disabilities (ages 2-5 years) and caregiver stress levels despite international and national policies on social participation for individuals with disabilities.…”