Caregiving Appraisal by Family Caregivers of Stroke Survivors in Nigeria

Vincent-Onabajo, Grace; Gayus, Pwadi Puto; Masta, Mamman Ali; Ali, Muhammad Usman; Gujba, Fatima Kachalla; Modu, Ali Alhaji; Hassan, Saleh Usman

doi:10.15171/jcs.2018.028

Cited by 9 publications

(9 citation statements)

References 40 publications

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“…Stroke is a chronic disabling neurological condition that renders survivors dependent on caregivers (1). The family caregivers of persons with stroke shoulder a great deal of responsibility, such as providing instrumental, social, and emotional support (2).…”

Section: Introductionmentioning

confidence: 99%

The Experiences and Evaluation of a Complex Intervention for Couples Coping With Stroke

Ramazanu

Chiang

Välimäki

2020

Journal of Neuroscience Nursing

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Background: Globally, stroke is a leading cause of death and disability. With a strong sense of filial responsibility, Asian caregivers are committed to caring for their ill family members. In response, the 3H (Head, Heart, Hands) intervention was developed and implemented in Singapore to support couples in their coping after a stroke. The purpose of this study is to explore the experiences of the participants taking part in 3H intervention, and evaluate the intervention after they had participated in it.Methods: An interpretive descriptive design was used. Semi-structured qualitative interviews were conducted with 7 patients and 7 spousal caregivers. Data were analyzed using conventional content analysis. Results:The participants' experience was described as one of becoming more prepared to face the storm. The 'storm' resulted from a stroke, where the participants were worried and uncertain about their future. After participating in the intervention, the couples' coping processes had improved. They coped by: breaking the silence and engaging in conversations, cultivating a sense of support, and conveniently fulfilling their educational needs. It was evaluated that extending the 3H intervention for community nursing is necessary to strengthen the care transition of couples from the hospital to home. Conclusion:New knowledge has been gained that the 3H intervention is useful and may be implemented in a clinical context prior to a patient's discharge from hospital. As a result of participating in the 3H intervention, effective coping was evident where participants engaged in conversations, cultivated a sense of support, and fulfilled their educational needs. Primary healthcare professionals should pay more attention to the difficulties and needs of this group of people, provide more resources to support them, and to improve their quality of life.

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Section: Introductionmentioning

confidence: 99%

The Experiences and Evaluation of a Complex Intervention for Couples Coping With Stroke

Ramazanu

Chiang

Välimäki

2020

Journal of Neuroscience Nursing

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“…[6][7][8][9] Moreover, studies on dementia-related caregiving burden in LMICs report that caring for people with ADRD is correlated with increased caregivers' stress, depression, and anxiety. 10,11 While caregiving burden has been studied extensively in high-income countries, there is paucity of information about caregivers' experiences in LMICs, [12][13][14][15] particularly in rural areas of Africa where health systems for management of people with ADRD are under-resourced. 8,9,[15][16][17] Behavioural symptoms (e.g., agitation, wandering, and calling out repeatedly) are commonly exhibited by people with ADRD.…”

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confidence: 99%

Caring for people with dementia in rural Uganda: qualitative study of caregiving burden experienced by informal and formal caregivers

Ainamani

Alele

Rukundo

et al. 2020

Journal of Global Health Reports

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Background Background The rising incidence of Alzheimer's disease among older-age adults worldwide has been accompanied by an increase in caregiving burden. Limited work has examined the lived experiences of both formal and informal caregivers of people living with dementia in low-income countries. Methods Methods We conducted one-on-one, in-depth qualitative interviews with a purposive sample of 10 informal caregivers and 5 formal caregivers of people living with dementia in Mbarara, Uganda. They were interviewed about their experiences caring for people with dementia until thematic saturation was reached. All interviews were audio recorded, transcribed into English, and thematically analysed. Results Results Two primary themes emerged from the data: patient factors influencing caregiving burden (problematic behaviours, such as wandering and aggression) and patient physical health and cognitive deterioration (namely, loss of memory and incontinence). Psychosocial and economic aspects of caregiving burden included financial costs, family conflicts, anxiety, stigma, and substance misuse. Conclusions Conclusions Both formal and informal caregivers of people living with dementia experience physical, financial, and psychological stressors. Interventions aimed at reducing these stressors would benefit caregivers as well as improve quality of care for people living with dementia. Ainamani HE, Alele PE, Rukundo GZ, et al. Caring for people with dementia in rural Uganda: qualitative study of caregiving burden experienced by informal and formal caregivers.

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“…Overall, in the literature, employment status seems to be associated with caregivers' burden. The coexistence of positive and negative assessments is common in various studies of caregivers' burden [30] .…”

Section: Discussionmentioning

confidence: 99%

Factors associated with social support for family members who care for stroke survivors

Kavga¹,

Kalemikerakis²,

Konstantinidis³

et al. 2021

AIMSPH

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<abstract><sec> <title>Introduction</title> Vascular strokes are a primary cause of long-term disability for adults, with many social consequences for the patient, the family and healthcare systems worldwide. </sec><sec> <title>Aim</title> To investigate the relation between patients' and caregivers' characteristics, as well as burden and depression, and the social support received by carers for stroke victims in Greece. </sec><sec> <title>Method</title> Patients and caregivers were recruited from community settings in the Attica region of Greece, using purposive sampling. They completed a set of questionnaires during face-to-face interviews. Correlational and multiple regression analyses were performed to identify factors associated with caregivers' perceptions of social support. </sec><sec> <title>Results</title> In total, 109 dyads of patients and their respective caregivers were recruited. The patients' mean age was 69.3 years, while caregivers' mean age was 58.0 years; 51.4% of patients were males, whereas 67.9% of the caregivers were females. The majority of both patients and caregivers were married, with an annual family income less than €10,000. The level of perceived social support was significantly associated with patients' or caregivers' annual family income, caregivers' working status and the daily caring hours (p < 0.01). Greater perceived support was significantly associated with a lower care burden BCOS (r = 0.29, p < 0.01) and female gender (p = 0.023), but not with the patient's functional level nor with depression (p > 0.05). </sec></abstract>

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Caregiving Appraisal by Family Caregivers of Stroke Survivors in Nigeria

Cited by 9 publications

References 40 publications

The Experiences and Evaluation of a Complex Intervention for Couples Coping With Stroke

The Experiences and Evaluation of a Complex Intervention for Couples Coping With Stroke

Caring for people with dementia in rural Uganda: qualitative study of caregiving burden experienced by informal and formal caregivers

Factors associated with social support for family members who care for stroke survivors

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