Caregiving and Women's Well-being: A Life Course Approach

Moen, Phyllis; Robison, Julie; Dempster‐McClain, Donna

doi:10.2307/2137342

Cited by 234 publications

(158 citation statements)

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“…The stress of these caregiving scenarios is unlike that associated with assisting individuals with permanently and severely disabling conditions, in which the care recipient is impaired but has a considerable life expectancy. To date, little research has addressed the impact of caregiving for people with severe physical disabilities who now have considerable life expectancies, and the research that has been conducted has been confined to predominately male samples, with no attention to the unique issues that face caregivers of women with physical disability who are typically underserved by traditional health care programs.Women are more likely to assume caregiver roles for individuals who live with severely disabling conditions (Moen, Robison, & Dempster-McClain, 1995) and constitute as much as two-thirds of primary family caregivers, generally (Donelan et al, 2001). The preponderance of women in caregiving roles poses an intriguing, unstudied concern: Women with disabilities are likely to be single, divorced or living with parents (Fine & Asch, 1988;Hanna & Rogovsky, 1991).…”

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confidence: 99%

“…Women are more likely to assume caregiver roles for individuals who live with severely disabling conditions (Moen, Robison, & Dempster-McClain, 1995) and constitute as much as two-thirds of primary family caregivers, generally (Donelan et al, 2001). The preponderance of women in caregiving roles poses an intriguing, unstudied concern: Women with disabilities are likely to be single, divorced or living with parents (Fine & Asch, 1988;Hanna & Rogovsky, 1991).…”

mentioning

confidence: 99%

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Family Caregivers of Women with Physical Disabilities

Rivera

Elliott

Berry

et al. 2006

J Clin Psychol Med Settings

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Cross-sectional, correlational analyses of data from two separate studies were conducted to examine the correlates of adjustment among family caregivers of women with disabilities. Participants included 40 caregivers of women with spinal cord injuries in the first study and 53 caregivers of women with cerebral palsy, traumatic brain injury, and other neuromuscular disabilities in the second study. It was hypothesized that a negative problem-solving style would be associated with greater caregiver distress in both studies, and that caregiver adjustment would be associated with care recipient depression in the second study. As expected, results indicated that a higher negative orientation toward solving problems was associated with caregiver depression and lower well-being. However, in the second study, caregiver characteristics were not associated with care recipient depression. These data indicate that considerable variability exists in caregiver adjustment. Methodological limitations and the implications for research, service, and policy formation are! discussed. KeywordsCaregiver; Women; Disability Family caregivers of women with physical disabilitiesAs health care programs continue to circumscribe their service to persons with chronic, debilitating health conditions, many family members are compelled to assume caregiving roles (Hoffman, Rice, & Sung, 1996). In fact, available data indicate that family caregivers " … constitute the largest group of care providers" in the United States (Parish, Pomeranz-Essley, & Braddock, 2003, p. 174), and as they provide the majority of long-term care in this country, the market value of their activity far exceeds that spent on formal health care and nursing home care (Vitaliano, Young, & Zhang, 2004, p. 13). Yet family caregivers function as de facto healthcare providers without adequate training or appropriate remuneration (Shewchuk & Elliott, 2000): They are expected to operate competently as extensions of health care systems, often performing complex medical and therapeutic tasks, helping a loved one perform and adhere to therapeutic regimens .Caregiving is often associated with many deleterious effects on the caregiver (Donelan, Falik, & DesRoaches, 2001;Vitaliano, Zhang, & Scanlan, 2003). However, this work has been largely Correspondence to: Patricia A. Rivera. NIH Public Access NIH-PA Author ManuscriptNIH-PA Author Manuscript NIH-PA Author Manuscript restricted to studies of care recipients who have degenerative diseases (e.g., Alzheimer's disease, dementias). These experiences are ultimately time-limited, contingent upon the eventual progression of the disease. The stress of these caregiving scenarios is unlike that associated with assisting individuals with permanently and severely disabling conditions, in which the care recipient is impaired but has a considerable life expectancy. To date, little research has addressed the impact of caregiving for people with severe physical disabilities who now have considerable life expectancies, and the research that...

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mentioning

confidence: 99%

mentioning

confidence: 99%

Family Caregivers of Women with Physical Disabilities

Rivera

Elliott

Berry

et al. 2006

J Clin Psychol Med Settings

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“…En ce sens, la participation des femmes aidantes au sein de la population active implique l'ajout d'un nouveau rôle plutôt que sa substitution aux responsabilités familiales (Martin, 1994;Pérodeau et Coté, 2002 (Scharlach et Boyd, 1999). Avec cette surcharge de tâches, plusieurs d'entre elles se voient contraintes de réorganiser leur travail salarié, d'abandonner leur emploi ou de se retirer temporairement du marché du travail (Moen et Dempster-Mc-Clain, 1995), ou encore consacrer une partie de leurs congés aux soins de leur parent. De plus, le fait de participer moins activement au marché du travail ou de le quitter accroît les risques de la pauvreté à la vieillesse, car cela veut dire aussi réduire ou abandonner ses contributions à un régime de retraite (Moen et Dempster-Mc-Clain, 1995;Scharlach et Boyd, 1999).…”

Section: Les Tâches Des Proches Aidantesunclassified

“…Avec cette surcharge de tâches, plusieurs d'entre elles se voient contraintes de réorganiser leur travail salarié, d'abandonner leur emploi ou de se retirer temporairement du marché du travail (Moen et Dempster-Mc-Clain, 1995), ou encore consacrer une partie de leurs congés aux soins de leur parent. De plus, le fait de participer moins activement au marché du travail ou de le quitter accroît les risques de la pauvreté à la vieillesse, car cela veut dire aussi réduire ou abandonner ses contributions à un régime de retraite (Moen et Dempster-Mc-Clain, 1995;Scharlach et Boyd, 1999). Bref, ces difficultés, particulièrement présentes chez les aidantes, renforcent une fois de plus la dépendance financière envers le conjoint tout en sacrifiant son autonomie personnelle et sociale (Vézina et Pelletier, 1998 (Guberman et Maheu, 1994).…”

Section: Les Tâches Des Proches Aidantesunclassified

Vécu des proches aidantes qui soutiennent un parent en perte d'autonomie en fonction de deux milieux de vie /

Ouellet¹

2008

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“…38 According to this perspective roles are stable across time and situations 39 and individuals will seek to reinforce their role perceptions, motivated by factors such as self-esteem and efficacy. 40,41 A key dimension of role identity is role enhancement, 42 benefits of accumulation of social roles. Roles have a buffering effect contributing to the need to be productive and maintain meaning throughout life.…”

mentioning

confidence: 99%

Development and Testing a Volunteer Screening Tool for Assessing Community Health Volunteersʼ Motives at Recruitment and Placement in Western Kenya

Ochieng¹,

Duma²,

Ochieng³

2017

Psychol Cogn Sci Open J

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CitationOchieng BM, Duma S, Ochieng JN, Kaseje DCO. Development and testing a volunteer screening tool for assessing community health volunteers' motives at recruitment and placement in Western Kenya. Psychol Cogn Sci Open J. 2016; 3(1): 6-16. doi: 10.17140/PCSOJ-3-119 Copyright ©2016 Ochieng BM. This is an open access article distributed under the Creative Commons Attribution 4.0 International License (CC BY 4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. In times of inadequate resources and rising public demand, social service organizations rely on volunteers to meet needs. In the current human resource for health crisis in Africa there is urgent need for community health volunteers (CHVs). Studies have highlighted problems of high attrition rates leading to high replacement training costs among CHVs. There is need for careful selection of volunteers that can serve long-term, once trained. This study was done to develop a volunteer assessment framework for recruitment of CHVs. The framework is based on identification intrinsic motives for volunteering that have been shown to be associated with long volunteer service. Methods: The assessment tool was developed by searching literature for theory based constructs and assessment items associated with volunteering. These constructs and items were synthesized into a proposed assessment framework. The framework was subjected to face content and construct validation in West Kenyan context in phase 1 of the study. The validated framework was tested for ability to differentiate between long serving volunteers and nonvolunteers matched by gender, age and residence. The 2 groups were presented with test items and asked to record their agreement on a scale of 1 to 5 on the reasons why people volunteer. Results: From literature we identified functional, role identity, and social exchange as theories underpinning volunteering. From these theories we identified 8 constructs to include in a proposed volunteer assessment framework. We tested the framework and although all the eight constructs satisfied internal consistency test only 5: altruism, materialism, social adjustment, esteem enhancement and career development were statistically significantly more associated with either volunteers or non-volunteers. Therefore, only these were included on the final volunteer assessment framework, for identification of long serving volunteers in the local context. Conclusion: We propose a volunteer assessment tool with the 5 constructs and 25 assessment items for identification and recruitment of CHVs, with motives consistent with long-term volunteer service. The final framework consists of altruistic (altruism, social adjustment, esteem enhancement) or egoistic (material gain and career development) constructs with 25 assessment statements. The frame work would able to identify individuals with altruistic motives to include and those with egoistic tendencies to exclude during a volunteer recruitment exe...

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Caregiving and Women's Well-being: A Life Course Approach

Cited by 234 publications

References 32 publications

Family Caregivers of Women with Physical Disabilities

Family Caregivers of Women with Physical Disabilities

Vécu des proches aidantes qui soutiennent un parent en perte d'autonomie en fonction de deux milieux de vie /

Development and Testing a Volunteer Screening Tool for Assessing Community Health Volunteersʼ Motives at Recruitment and Placement in Western Kenya

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