Caregiving and the Experience of Subjective and Objective Burden

Montgomery, Rhonda J. V.; Gonyea, Judith G.; Hooyman, Nancy R.

doi:10.2307/583753

Cited by 588 publications

(436 citation statements)

References 16 publications

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“…Au début des années 1980, la situation de l'aidant a été décrite en termes de charge, de fardeau [22,39,55] ou de tension [42], donnant lieu à des mesures unidimensionnelles. Puis progressivement, à l'instar des mesures de qualité de vie, le concept de fardeau a été scindé en deux composantes « objective » et « subjective » [31][32]. Le fardeau objectif correspond aux conséquences négatives objectivement observables, telles les perturbations de la vie familiale, de la vie sociale ou les conséquences financières, tandis que le fardeau subjectif renvoie aux sentiments de gêne ou de surcharge dont l'aidant fait l'expérience durant la période d'aide [31,43,50].…”

Section: Les éVolutions Des Mesures De Fardeauunclassified

Vivre avec un proche malade : évaluation des dimensions positive et négative de l’expérience des aidants naturels

Antoine

Quandalle

Christophe

2010

Annales Médico-psychologiques, revue psychiatrique

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Please cite this article as: Antoine P, Quandalle S, Christophe V, Vivre avec un proche malade :évaluation des dimensions positive et négative de l'expérience des aidants naturels, Annales medio-psychologiques (2008), doi:10.1016/j.amp.2007.06.012 This is a PDF file of an unedited manuscript that has been accepted for publication. As a service to our customers we are providing this early version of the manuscript. The manuscript will undergo copyediting, typesetting, and review of the resulting proof before it is published in its final form. Please note that during the production process errors may be discovered which could affect the content, and all legal disclaimers that apply to the journal pertain. AbstractThe growing prevalence of chronic diseases and the greater reliance on outpatient care have shifted the demands from professional caregivers towards natural caregivers. Patients and their family members are based in their homes with complicated therapies to administer. Since a natural caregiver is a key to home care, if the burden becomes too great, the home care support may be threatened. Subjective burden aims to refer to the embarrassment or role overload that may be experienced when giving care at home. Caregivers can experience an alteration in their psychological and physical health due to the new situation. Health care professionals need to be aware of these problems, and they need instruments to assess the impact on the natural caregivers.There has been a growing interest on the part of researchers over the past thirty years in exploring and in developing methodologically sound instruments to measure the caregiving experience.Researchers and clinicians involved in these projects have come from a wide spectrum of medical and psychological domains, including psychiatry, gerontology, psycho-oncology, and somatic medicine. A number of instruments may be appropriate, but while many of these instruments have individual strengths and weaknesses two instruments deserve to be recommended. More specifically, one of these is Given and Given's Caregiver Reaction Assessment (CRA) which was correctly developed and tested, and contains the most areas of interest. The authors are experts in the field, and their instrument has been used satisfactorily by other researchers. The CRA was developed and tested in a study conducted among caregivers of patients with various disorders and this study revealed excellent psychometric properties. The original English version of the CRA Page 3 of 26 A c c e p t e d M a n u s c r i p t 3 was translated into French by six researchers. Each made his own translation. These translations were compared and a consensus was reached for each of the 24 items. A professional translator retranslated the French version into English and a discussion on minor differences led to the final version of the French CRA. The translated CRA is expected to have the same structure as that found for the original instrument or other translated forms (Nijboer et al., 1999). This article addresses the ...

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Section: Les éVolutions Des Mesures De Fardeauunclassified

Vivre avec un proche malade : évaluation des dimensions positive et négative de l’expérience des aidants naturels

Antoine

Quandalle

Christophe

2010

Annales Médico-psychologiques, revue psychiatrique

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“…Caregivers with a relatively low socioeconomic status are assumed to report a higher burden, and subsequently a poorer health (Montgomery et al, 1985). A negative relationship between income and caregiver outcomes has been observed for only certain types of caregivers (i.e.…”

Section: Contextual Factors In the Caregiving Processmentioning

confidence: 99%

“…Both objective and subjective components of the care situation can be distinguished (Montgomery et al, 1985), with the former reflecting (changes in) care tasks and the latter reflecting the experience of (changes of) this situation (i.e. caregi6er burden).…”

Section: Impact Of Caregiving: Care Tasks and Caregiver Burdenmentioning

confidence: 99%

Cancer and caregiving: the impact on the caregiver's health

Sanderman²,

et al. 1998

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“…In Given's study on the Caregiver Reaction Assessment Scale, "caregiver burden" was defined as the physical, psychological, social, emotional, and financial problems experienced by family members (including both objective and subjective factors) (Given et al, 1992;Gwyther & George, 1986;Montgomery et al, 1985). *Self-report instruments with ≤20 items, and positive reliability and validity.…”

Section: Definition Of Burdenmentioning

confidence: 99%

A systematic review of instruments assessing dimensions of distress among caregivers of adult and pediatric cancer patients

et al. 2016

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Objective: Caregivers of cancer patients face intense demands throughout the course of the disease, survivorship, and bereavement. Caregiver burden, needs, satisfaction, quality of life, and other significant areas of caregiving are not monitored regularly in the clinic setting, resulting in a need to address the availability and clinical effectiveness of cancer caregiver distress tools. This review aimed to determine the availability of cancer caregiver instruments, the variation of instruments between different domains of distress, and that between adult and pediatric cancer patient populations.Method: A literature search was conducted using various databases from 1937 to 2013. Original articles on instruments were extracted separately if not included in the original literature search. The instruments were divided into different areas of caregiver distress and into adult versus pediatric populations. Psychometric data were also evaluated.Results: A total of 5,541 articles were reviewed, and 135 articles (2.4%) were accepted based on our inclusion criteria. Some 59 instruments were identified, which fell into the following categories: burden (n ¼ 26, 44%); satisfaction with healthcare delivery (n ¼ 5, 8.5%); needs (n ¼ 14, 23.7%); quality of life (n ¼ 9, 15.3%); and other issues (n ¼ 5, 8.5%). The median number of items was 29 (4 -125): 20/59 instruments (33.9%) had 20 items; 13 (22%) had 20 items and were psychometrically sound, with 12 of these 13 (92.3%) being self-report questionnaires. There were 44 instruments (74.6%) that measured caregiver distress for adult cancer patients and 15 (25.4%) for caregivers of pediatric patients.Significance of results: There is a significant number of cancer caregiver instruments that are self-reported, concise, and psychometrically sound, which makes them attractive for further research into their clinical use, outcomes, and effectiveness.

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Caregiving and the Experience of Subjective and Objective Burden

Cited by 588 publications

References 16 publications

Vivre avec un proche malade : évaluation des dimensions positive et négative de l’expérience des aidants naturels

Vivre avec un proche malade : évaluation des dimensions positive et négative de l’expérience des aidants naturels

Cancer and caregiving: the impact on the caregiver's health

A systematic review of instruments assessing dimensions of distress among caregivers of adult and pediatric cancer patients

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