Caregiving Across the Life Course: A Health Policy Priority for North Carolina

Kent, Erin E.; deJong, Neal A.; Barnette, Harold; Deaton, Sue; Appert, Karen; Ming, David

doi:10.18043/001c.73015

Cited by 3 publications

(2 citation statements)

References 20 publications

(22 reference statements)

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“…Turning to unpaid family caregivers-often called the backbone of long-term care-we see that North Carolina has an estimated 1.3 million family or informal caregivers (accounting for 1.1 billion care hours, or $13.1 billion annually) [26]. Many sacrifice their own physical and mental health, their relationships and jobs, and experience financial strain.…”

Section: Long-term-care Services To Support Aging-in-placementioning

confidence: 99%

“…In their article on caregiving, Erin Kent of the UNC Gillings School of Global Public Health and coauthors critique existing North Carolina policies and programs and offer recommendations. They advocate for an integrated approach to caregiving that takes a whole-person, wholefamily perspective and offers financial assistance and supports to keep caregivers participating in society [26].…”

Section: Long-term-care Services To Support Aging-in-placementioning

confidence: 99%

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Opportunities and Barriers to Healthy Aging in North Carolina

Riegel

Baker

Streets³

2023

North Carolina Medical Journal

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Section: Long-term-care Services To Support Aging-in-placementioning

confidence: 99%

Section: Long-term-care Services To Support Aging-in-placementioning

confidence: 99%

Opportunities and Barriers to Healthy Aging in North Carolina

Riegel

Baker

Streets³

2023

North Carolina Medical Journal

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Re-imagining metastatic breast cancer care delivery: a patient-partnered qualitative study

Roberson,

Henricks,

Woods

et al. 2023

Support Care Cancer

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Purpose While significant progress in metastatic breast cancer (MBC) treatment has prolonged survival and improved prognosis, there remain substantial gaps in providing patient-centered supportive care. The specific care delivery needs for metastatic cancer differ from that of early-stage cancer due to the incurable nature and lifelong duration of the condition. The objective of this study was to assess how patients living with MBC would re-imagine cancer care delivery. Methods This qualitative study was conducted in partnership with patient-led organizations Guiding Researchers and Advocates to Scientific Partnerships (GRASP) and Project Life, a nonprofit, online wellness community founded by patients with MBC for patients living with MBC. Virtual semi-structured interviews (n = 36) were conducted with Project Life members purposively sampled from the groups’ overall membership. The interview guide contained items surrounding patients’ lived experiences of MBC, greatest unmet needs related to care, and perspectives on virtual wellness community involvement. Interviews were coded using two-stage deductive and inductive analysis. Results Three major themes for re-imagining cancer care delivery were identified, including holistic care, information needs, and conceptual shifts. Within these several subthemes emerged with patients re-imagining referrals to non-oncological services, caregiver support, acceptance of integrative medicine, streamlined clinical trial enrollment, curated quality patient resources, MBC-specific terminology and approaches, long-term life and goal-of-care planning, and patient-centered voice throughout. Conclusion People living with metastatic cancers have specific supportive care needs. These findings highlight patient-driven areas for re-imagination that are most salient for individuals with MBC.

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