Caregivers’ quality of life after blood and marrow transplantation: a qualitative study

Jim, Heather; Quinn, Gwendolyn P.; Barata, Anna; Cases, Mallory G.; Cessna, Julie M.; Gonzalez, Brian D.; González, L.; Koskan, Alexis; Ishino, Francisco Alejandro Montiel; Pidala, Joseph

doi:10.1038/bmt.2014.118

Cited by 23 publications

(28 citation statements)

References 8 publications

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“…One additional study examined role strain (29) which is very closely linked conceptually to burden. Instead, 75% of studies examined specific correlates of burden, including anxiety and depression (27, 28, 30–32), quality of life (29, 31), unmet needs (33), fatigue (27, 30, 32), and relationship quality (29, 30, 34). Additionally, one study examined the potential benefits (i.e., meaning, growth) derived from caregiving.…”

Section: Resultsmentioning

confidence: 99%

A scoping review of caregiver burden during allogeneic HSCT: lessons learned and future directions

Applebaum

Bevans

Son

et al. 2016

Bone Marrow Transplant

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The extant literature documents burden among caregivers of patients undergoing a hematopoietic stem cell transplant (HSCT), but little is known about the burden of caregivers of patients receiving outpatient and homebound HSCTs. This scoping study sought to evaluate what is known about the burden of the increasing number of adult caregivers of patients receiving outpatient HSCTs and to create practice guidelines for how to best support this vulnerable group. Online databases were searched for studies that evaluated caregiver burden in adult caregivers of HSCT patients since 2010 (the publication date of the most recent systematic review on HSCT caregiver burden). Of the 1,271 articles retrieved, 12 met inclusion criteria, though none specifically examined outpatient or homebound caregivers. Overall, studies corroborated existing literature on the experience of significant burden among HSCT caregivers across the HSCT trajectory, and highlighted the emotional costs of outpatient transplants on caregivers and the need to identify caregivers at high risk for burden early in the transplant process. Future studies of outpatient caregivers should include a comprehensive assessment of burden and seek to identify points along the transplant trajectory at which caregivers are at particular risk for negative outcomes and when intervention is most appropriate.

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Section: Resultsmentioning

confidence: 99%

A scoping review of caregiver burden during allogeneic HSCT: lessons learned and future directions

Applebaum

Bevans

Son

et al. 2016

Bone Marrow Transplant

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“…Schwere körperliche Erkrankungen wie Krebs sind nicht nur für den Patienten mit großen psychosozialen und seelischen Belastungen verbunden. Es gilt inzwischen als ein gesicherter Befund, dass eine Krebsdiagnose auch das familiäre Umfeld und insbesondere den Partner mit gravierenden psychischen und physischen Folgeproblemen belastet [1][2][3][4]. Die Krankheitsverarbeitung und die Regulation von Belastungen und Ressourcen erfolgen im Kontext paarbezogener, dyadischer Interaktionsmuster: Paare reagieren mit wechselseitigen und aufeinander bezogenen Copingstrategien.…”

Section: Introductionunclassified

Dyadisches Coping von hämatoonkologischen Patienten und ihren Partnern: Übereinstimmungsmaße und Zusammenhänge mit sozialer Unterstützung und psychischer Belastung

Osin

Pankrath

Niederwieser

et al. 2017

Psychother Psych Med

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“…both patients and their partners (Bishop et al, 2007;Jim et al, 2014). However, although a few studies accentuated the uniqueness of haematological malignancies regarding the impact of their treatment on quality of life, marital satisfaction, dyadic adjustment and distress (Allart, Soubeyran, & Cousson-Gelie, 2013;Fife, Weaver, Cook, & Stump, 2013;Langer, Yi, Storer, & Syrjala, 2010), no study has ever reported specifically the impact of dyadic coping (DC) among haematological patients.…”

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confidence: 99%

The relation between dyadic coping and relationship satisfaction in couples dealing with haematological cancer

et al. 2016

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Couples' ability to cope with cancer is significantly associated with how satisfied they are with their relationship. However, little evidence specific to haemato-oncological patients exists. The objective of this study was to examine how dyadic coping (DC) affects relationship satisfaction among couples facing haematological cancer. Furthermore, we tested complex interactions between distress, disease-related and socio-demographic factors. In a multicentre study, 327 patients (haemato-oncological cancer; mean age: 57 years, 63% male) and their partners responded to surveys examining their relationship satisfaction, DC and distress. The Actor-Partner-Interdependence-Model (APIM) and moderator analyses were used to assess interactions between these concepts. In the APIM, positive DC was significantly related to greater levels of relationship satisfaction, and negative DC was related to lower levels of relationship satisfaction (all p < .001). The partners' distress was significantly related to lower levels of relationship satisfaction of the partners (p < .05). Furthermore, distress, age and relationship duration had significant moderating effects on the association between DC and relationship satisfaction (p < .05). Our results enable describing patient and partner as an interactional unit in which positive DC supports a satisfying relationship. They imply that strengthening positive DC in a couple facing haematological cancer can contribute to them having a well-functioning and sustaining relationship.

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Caregivers’ quality of life after blood and marrow transplantation: a qualitative study

Cited by 23 publications

References 8 publications

A scoping review of caregiver burden during allogeneic HSCT: lessons learned and future directions

A scoping review of caregiver burden during allogeneic HSCT: lessons learned and future directions

Dyadisches Coping von hämatoonkologischen Patienten und ihren Partnern: Übereinstimmungsmaße und Zusammenhänge mit sozialer Unterstützung und psychischer Belastung

The relation between dyadic coping and relationship satisfaction in couples dealing with haematological cancer

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