Caregivers’ perceptions of lying to people with dementia in Denmark: a qualitative study

Schou-Juul, Frederik; Lauridsen, Sigurd

doi:10.1080/13607863.2024.2345778

Cited by 2 publications

(1 citation statement)

References 26 publications

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“…Impaired capacity means that people with dementia increasingly require assistance to make medical decisions and eventually, the majority of people with dementia require strong support in terms of long-term care (sm-Rahman et al, 2022). The increased need for support in long-term care involves several specific ethical issues, such as the conflict between respecting the self-determination of people with dementia and ensuring that their well-being is protected, as well as considering whether to tell the truth to people with dementia even if this harms them (Arjama et al, 2023; Preshaw et al, 2016; Schou-Juul & Lauridsen, 2024; Strech et al, 2013). Such ethical issues are extremely prevalent in dementia care and caregivers are tasked with making ethical judgments on a day-to-day basis (Lewenson & Truglio-Londrigan, 2007; Ulrich et al, 2010; Varcoe et al, 2012).…”

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confidence: 99%

Development and prima facie validation of the Dementia-Specific Ethical Self-Efficacy scale for professional caregivers

Schou-Juul,

Ferm,

Boje

et al. 2024

Dementia

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Aim To develop and validate a scale for measuring professional caregivers’ ethical self-efficacy in dementia care. Background Professional caregivers of people with dementia make ethical decisions on a day-to-day basis, and it is important that they feel confident when doing so. Moreover, confidence, or self-efficacy, influences caregivers’ behaviour and well-being and may be a predictor of competence. However, there is no scale for measuring ethical self-efficacy. This study aims to fill this gap. Methods This study concerns the development and prima facie validation of the Dementia-Specific Ethical Self-Efficacy (DemESE) scale. During development, we identified dementia-specific ethical principles and generated items representing ethical conflicts of principles. In the subsequent validation, we administered the scale to experts and professional caregivers in dementia care. We assessed the relevance of the scale using a content validity index and tested validity and reliability using Cronbach’s alpha. To further enhance validity, we compared the scale with analogous self-efficacy scales using Pearson’s correlation coefficient. Results The quantitative testing of DemESE revealed that the scale exhibited acceptable levels of internal consistency and reliability. This finding was supported by Cronbach’s alpha. In addition, the content validity index and Pearson correlation coefficient provided evidence of the scale’s relevance and validity. Conclusion The results suggest that DemESE is a promising tool for assessing professional caregivers’ ethical self-efficacy in dementia care and may be used to measure ethical self-efficacy – that is, confidence in ethical decision-making in dementia care.

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