Caregivers of Persons with Diverse Health Conditions: Demographics and Burden of Care

Zauszniewski, Jaclene A.; Lekhak, Nirmala; Herbell, Kayla; Badr, Hanan

doi:10.1177/0193945920948469

Cited by 6 publications

(5 citation statements)

References 21 publications

(24 reference statements)

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“…Lastly, our results represent the experiences of family caregivers caring for individuals with diverse chronic and/or disabling conditions. Existing research has shown that caregiving intensity and burden depend on the health conditions of care recipients ( Zauszniewski et al, 2020 ). Future research is needed to examine whether caregiving experiences and changes to caregiving tasks are different based on care recipients’ health conditions.…”

Section: Discussionmentioning

confidence: 99%

Family Caregivers’ Experiences and Changes in Caregiving Tasks During the COVID-19 Pandemic

2021

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The purpose of this descriptive study was to describe family caregivers’ experiences and changes in caregiving tasks and approaches during the COVID-19 pandemic. Using web-based strategies, 69 family caregivers of adults with chronic or disabling conditions were recruited and completed an online survey about positive and negative caregiving experiences, and ways in which caregiving has changed. Data were analyzed using descriptive statistics (structured questions) and conventional content analysis (open-ended responses). Participants reported concerns about their loved one’s physical and mental health, the limited access to other caregiving sources, and the limited opportunities to maintain personal well-being. Caregiving tasks completed more than usual included providing emotional support, shopping for groceries and essentials, and contacting healthcare providers. Participants modified their caregiving approach by assuming added responsibilities, leveraging technology, and managing a new caregiving routine. Findings indicate that family caregivers experienced additional caregiving challenges and changed caregiving tasks considering the limited resources available.

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Section: Discussionmentioning

confidence: 99%

Family Caregivers’ Experiences and Changes in Caregiving Tasks During the COVID-19 Pandemic

2021

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“…A detailed description of the sample characteristics and measures is published elsewhere (Zauszniewski et al, 2021; Zauszniewski et al, 2021); relevant information is summarized briefly here. Data were collected using social media (i.e., Twitter and Facebook).…”

Section: Methodsmentioning

confidence: 99%

“…The study was advertised in Twitter and Facebook with the survey link. After providing online consent, caregiver participants were asked to complete demographic items, the 40 spiritual resourcefulness items and other scales used for other analyses published elsewhere (Zauszniewski et al, 2021; Zauszniewski et al, 2021). Four hundred family caregivers who met eligibility criteria enrolled as study participants.…”

Section: Methodsmentioning

confidence: 99%

Development and Testing of a Spiritual Resourcefulness Scale: Holistic Expansion in Operationalizing the Resourcefulness Construct

et al. 2021

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Purpose: Research supports holistic expansion of the construct of resourcefulness by adding spiritual practices to the existing personal and social dimensions. This study describes the development and testing of items to measure spiritual resourcefulness. Methods/Design: Study phases were: (1) focus group development of item stems and responses; (2) expert testing; (3) scale construction; (4) field testing in 234 family caregivers; and (5) psychometric analysis to identify items for inclusion in a final scale. Findings: A focus group developed 40 item stems with potential responses reflecting three conceptual components of spiritual practices (rational, ritualistic, and relational). Content experts selected the best response for each item. A six-point Likert scale consistent with the Resourcefulness Scale© was constructed. Data from field testing were factor analyzed. The best solution revealed two factors containing 12 items. Ritualistic and relational items loaded together (44.7% variance explained). Rational items loaded separately (19.5% variance explained). Higher-order factor analysis indicated the two subscales reflected a single construct (71.93% variance explained; r = .44, p < .001). Conclusion: Availability of a psychometrically sound measure of spiritual resourcefulness is critical to expand resourcefulness training interventions to be more holistic. Clinical interventions can be enriched by including strategies to enhance personal, social, and spiritual resourcefulness skills.

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“…The chance of having a low ability to complete ADL was two times higher among older adults with more than three chronic conditions ( 30 ). Conversely, aside from the number of chronic diseases, the caregiving burden may differ depending on the type of disease, diagnosis, treatment and disease progression ( 31 ). For example, previous studies have shown that of the common diseases in older people, dementia is frequently associated with a caregiving burden ( 8 , 32 ).…”

Section: Discussionmentioning

confidence: 99%

The Caregiving Burden of Older People with Functional Deficits and Associated Factors on Malaysian Family Caregivers

Abdul Wahab,

Abdul Talib,

Nik Mohd Hatta

et al. 2024

MJMS

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Background: Providing care to older people can be an extremely complex task, given their increased functional deficits, which may lead to family caregivers experiencing burnout and a deteriorated health status. This study investigated the caregiving burden of older people with functional deficits on family caregivers and associated factors. Methods: This cross-sectional study was conducted on family caregivers of older people with functional deficits living in FELDA schemes in Pahang, Malaysia. A self-administered questionnaire was used to collect data, which included the sociodemographical profile, health status and caregiving demands factors. The caregiving burden was assessed using the Malay version of the Zarit Burden Interview (ZBI). Multiple linear regression was used to assess the factors associated with burden. Results: A total of 271 family caregivers completed the questionnaire. Their mean age was 45.8 (SD 0.9) years old. The mean score for caregiving burden was 18.5 (SD 13.6). Caregivers’ gender (3.5 [95% CI: 0.2, 6.8]; P = 0.037), older people with chronic disease (9.6 [95% CI: 2.4, 16.9]; P = 0.010) and the functional independence of older people (–1.1 [95% CI: –1.6, –0.6]; P < 0.001) were predictors of family caregiving burden. Conclusion: The caregiving burden among family caregivers was mild and influenced mainly by care recipients’ health status. A proper assessment should be conducted and relevant health education provided to prepare family caregivers to care for their family members before discharge from the hospital.

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Caregivers of Persons with Diverse Health Conditions: Demographics and Burden of Care

Cited by 6 publications

References 21 publications

Family Caregivers’ Experiences and Changes in Caregiving Tasks During the COVID-19 Pandemic

Family Caregivers’ Experiences and Changes in Caregiving Tasks During the COVID-19 Pandemic

Development and Testing of a Spiritual Resourcefulness Scale: Holistic Expansion in Operationalizing the Resourcefulness Construct

The Caregiving Burden of Older People with Functional Deficits and Associated Factors on Malaysian Family Caregivers

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