Caregivers of people at the end of life

Harding, Richard

doi:10.1097/spc.0000000000000100

Cited by 6 publications

(3 citation statements)

References 26 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…It could be used internationally, although with some societal adaptions. Intervention studies with randomized designs based in theory have previously been found lacking in palliative care . Although the intervention is complex, incorporating several different components, its delivery is simple and demands few resources.…”

Section: Discussionmentioning

confidence: 99%

Short‐term and long‐term effects of a psycho‐educational group intervention for family caregivers in palliative home care – results from a randomized control trial

et al. 2015

View full text Add to dashboard Cite

show abstract

Section: Discussionmentioning

confidence: 99%

Short‐term and long‐term effects of a psycho‐educational group intervention for family caregivers in palliative home care – results from a randomized control trial

et al. 2015

View full text Add to dashboard Cite

show abstract

“…Harding's study from 2014 defines informal caregivers as ''unpaid, informal providers of one or more physical, social, practical, or emotional tasks.'' 9 To be able to fulfill this demanding role, the caregivers need qualified support.…”

Section: Introductionmentioning

confidence: 99%

“…Swedish palliative home care teams are in charge of health-care issues, whereas the home help services provide assistance with the activities of daily living (washing, clothing, meals, etc). Harding’s study from 2014 defines informal caregivers as “unpaid, informal providers of one or more physical, social, practical, or emotional tasks.” 9 To be able to fulfill this demanding role, the caregivers need qualified support.…”

Section: Introductionmentioning

confidence: 99%

High Degree of Satisfaction With the Support Given by Multidisciplinary Palliative Home Care Teams in the County of Stockholm

Nordström

Strang

2018

J Palliat Care

View full text Add to dashboard Cite

The response rate was 78% among both patients and their families or other caregivers. The proportion of positive and very positive responses among those who needed the specific help of the team was as follows: information about the service 86%, availability around the clock 96%, influence and feeling of shared responsibility 88%, and possibility of family members to have supportive discussions 95%. Eighty-three percent of patients experienced total pain relief and 99% total or partial relief. The corresponding figures for anxiety were 77% and 97% and for other symptom reliefs 79% and 98%, respectively. These figures were comparable to a smaller survey in 2014 and were high compared to the results from other medical services using similar questionnaires. Significance of the Results: A high quality of care is possible to achieve within palliative home care services.

show abstract

A randomized controlled pilot study of inflammatory gene expression in response to a stress management intervention for stem cell transplant caregivers

et al. 2016

View full text Add to dashboard Cite

Few studies have addressed whether stress-associated physiological changes in caregivers are reversible by psychological interventions mitigating distress. We report on pro-inflammatory, sympathetic, and oxidative stress gene expression in response to stress management for caregivers of allogeneic hematopoietic stem cell transplant (Allo-HSCT) patients. Following randomization by permuted block to either treatment as usual (TAU, n = 11) or a stress management intervention (PsychoEducation, Paced Respiration, and Relaxation, PEPRR, n = 13), twenty-four caregivers were selected at the conclusion of a larger trial of 149 caregivers. PEPRR was provided one-on-one beginning around transplant. Genome-wide transcriptional profiling was conducted on peripheral blood mononuclear cells collected prior to randomization and on completion of PEPRR 3 months post-transplant. Bioinformatics analysis of differentially expressed genes indicated reduced activity of transcription control pathways associated with inflammation (NF-κB), sympathetic nervous system (CREB), and oxidative stress (NRF2) in caregivers receiving PEPRR compared to TAU aligning with reductions in stress, depression, and anxiety. This suggests that PEPRR may alter transcriptomic effects reported for distressed individuals.

show abstract

Caregivers of people at the end of life

Abstract: Although the evidence of outcome studies is small, the research agenda is broadening to include nontraditional families and caregivers in low-and middle-income countries.The recent trial of psychoeducational interventions suggests that longer-term benefits are present.

Cited by 6 publications

References 26 publications

Short‐term and long‐term effects of a psycho‐educational group intervention for family caregivers in palliative home care – results from a randomized control trial

Short‐term and long‐term effects of a psycho‐educational group intervention for family caregivers in palliative home care – results from a randomized control trial

High Degree of Satisfaction With the Support Given by Multidisciplinary Palliative Home Care Teams in the County of Stockholm

A randomized controlled pilot study of inflammatory gene expression in response to a stress management intervention for stem cell transplant caregivers

Contact Info

Product

Resources

About