Caregivers of Patients with Heart Failure: Burden and the Determinants of Health-Related Quality of Life

Lahoz, Raquel; Proudfoot, Clare; Fonseca, Ana Filipa; Loefroth, Emil; Corda, Stefano; Jackson, James; Cotton, S; Studer, Rachel

doi:10.2147/ppa.s297816

Cited by 27 publications

(21 citation statements)

References 40 publications

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“…20 For example, those caring for patients with more severe HF and symptoms experience higher levels of burden, as compared with those with less severe HF and symptoms in their physical, emotional, and social well-being. 5 This study did have limitations. First, approximately 70% of caregivers provided care for patients with New York Heart Association class I/II HF; thus, the results should be interpreted with this in mind.…”

Section: Discussionmentioning

confidence: 92%

“…Often, family caregivers assist patients with HF in carrying out health-related responsibilities concerning HF-related symptoms, taking multiple medications, adhering to a low-sodium diet and fluid restrictions, exercising, and traveling to frequent medical visits 3,4 . For example, caregivers spend about 20 hours per week providing both visible and invisible assistance and HF emotional support, helping patients with HF take their medications, and assisting with shopping and medical visits 5 . Caregivers experience an overwhelming workload and inadequate time to complete these caregiving responsibilities.…”

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confidence: 99%

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The Subjective Component of the Dutch Objective Burden Inventory

et al. 2022

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Background: The reliability and validity of the subjective component of the Dutch Objective Burden Inventory (DOBI) are unknown. Objective: The validity and reliability of the subjective component of the DOBI were examined in caregivers of individuals with heart failure, using the original 38-and a 24-item version. Methods: In an online crosssectional investigation, confirmatory factor analysis was used to examine factorial validity. In examining convergent validity, corrected item-dimension correlations assessed item performance and associations between subjective subscale scores and the Bakas Caregiving Outcomes Scale. Cronbach's α examined internal consistency. Results: The original 4-factor solution was retained and both the original and shorter versions of the subjective component of the DOBI supported adequate construct validity and internal consistency. Conclusions: Both the 38-and 24-item forms of the subjective DOBI supported construct validity and reliability. Further studies examining the usefulness of both versions are needed in carers of individuals with more severe HF.

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Section: Discussionmentioning

confidence: 92%

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confidence: 99%

The Subjective Component of the Dutch Objective Burden Inventory

et al. 2022

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“…Cardiovascular diseases are yet another debilitating chronic disease that requires monitoring and care during illness [ 35 ]. Caregiving to a cardiovascular patient leads to the burden, stress, and poor QoL across the physical, emotional and social domains [ 36 ]. That said, certain factors can contribute to the improvement and/or maintenance in the QoL of caregivers of cardiovascular patients.…”

Section: Discussionmentioning

confidence: 99%

Quality of Life among Caregivers of Patients Diagnosed with Major Chronic Disease during COVID-19 in Saudi Arabia

et al. 2022

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Quality of life (QoL) is considered one of the measures of health outcomes. Limited research studies have assessed family caregivers’ QoL, especially among patients diagnosed with chronic disease. This study measures the QoL of caregivers who guardian patients diagnosed with cardiovascular disease, diabetes, cancer, and/or other diseases during the COVID-19 pandemic. Participants were primary caregivers who were supporting, in the last six months, individuals diagnosed with one of the previously mentioned chronic diseases. This included caregivers of patients admitted to a tertiary hospital from January 2021 to July of the same year (n = 1081); all participants completed the World Health Organization Quality of Life Assessment tool (WHOQOL-BREF) questionnaire. Caregivers of patients with cancer reported the highest mean level of QoL, followed by diabetes, cardiovascular diseases, then other different diseases (M = 3.80; M = 3.38; M = 3.37; and M = 2.51, respectively). A chi-square test of independence was performed to examine the relationship between the QoL of the four groups and their behaviors (i.e., caregivers’ psychological onuses and physical actions/reactions). The relation between these variables was significant, X2 (3, n = 1081) = 8.9, p = 0.001. The Kruskal–Wallis test indicated significant differences among the four groups (p ≤ 0.001). While the overall results of the QoL level of participants were low, a major recommendation of this study was to incorporate a QoL assessment to caregivers of chronically ill patients. Regular psychological and physical health check-ups of caregivers should be mandated in the healthcare system. Research studies should consider investigating and identifying the factors affecting health outcomes and positive developments which have a great impact on the wellbeing of both caregivers and patients on personal, organizational, and national levels.

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“…In addition, there are studies in which the EQ-5D quality of life scale is used to evaluate the quality of life of caregivers. Khanna et al and Lahoz et al evaluated the QOL of caregivers of patients with autism (11) and those diagnosed with heart failure with the EQ-5D, respectively (12).…”

Section: Assessment Of Quality Of Lifementioning

confidence: 99%

Being a caregiver in the palliative care unit in the pandemic: Who can do it better?

Çakmak

Öztürk

2021

ircmj

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Background: During the Coronavirus Disease-2019 (COVID-19) pandemic, palliative care units and nursing homes became risky in terms of infection transmission. The measures that are taken in the general population have also been strictly applied for caregivers. However, to achieve success, the personal compliance of the caregivers is as important as setting the rules. Objectives: This study aimed to evaluate the demographic characteristics, knowledge levels, and attitudes towards the measures taken for pandemics of the caregivers who were caring for their patients in the palliative care unit. It was also attempted to evaluate the relationship between these parameters and their quality of life (QOL). Methods: The level of knowledge and the level of agreement with the measures with questions prepared by three physicians working in the palliative care unit were assessed in this study. The QOL was also evaluated using the 3-level version of EQ-5D (EQ-5D-3L). Results: Education, employment, smoking, as well as parental and marital status, were found to be related to a high level of knowledge. It has been shown that the level of knowledge is higher in female caregivers and those who were caregiving for less than three years. The caregivers of Alzheimer's disease patients were also revealed to know more about the COVID-19 pandemic. Single, male, employed, smoking, and experienced less than three years caregivers were seemed to have a higher level of agreement with the measures. In addition, it was concluded that the QOL was positively correlated with the level of knowledge and negatively correlated with the compliance of the measures. Conclusion: It is essential to know the characteristics and beliefs of the caregivers in pandemic management in palliative care; accordingly, more studies should be conducted on this issue.

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Caregivers of Patients with Heart Failure: Burden and the Determinants of Health-Related Quality of Life

Cited by 27 publications

References 40 publications

The Subjective Component of the Dutch Objective Burden Inventory

The Subjective Component of the Dutch Objective Burden Inventory

Quality of Life among Caregivers of Patients Diagnosed with Major Chronic Disease during COVID-19 in Saudi Arabia

Being a caregiver in the palliative care unit in the pandemic: Who can do it better?

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