Caregivers of Long-term Ventilator Patients

Douglas, Sara L.; Daly, Barbara J.

doi:10.1378/chest.123.4.1073

Cited by 106 publications

(49 citation statements)

References 28 publications

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“…They were mainly female, younger than patients and related to the patient as spouse or child [2, 11, 12], which is the most common type of informal caregiver [8]. One of the problems this study faced was that the caregiver or family burden was estimated by English language questionnaires [3, 4,13,14,15], but we used the only one that is translated and validated in Greek.…”

Section: Discussionmentioning

confidence: 99%

“…The recognized and perceptible caregivers’ burden on household management and social activities was linked to patients’ mobilization capacity. Immobility is recognized as a significant cause of burden for caregivers of ventilator-dependent patients [4], although home is the preferable site for implementation of chronic mechanical ventilation for both patients and caregivers [4, 11]. In this study, most of the tracheostomized patients suffering from progressive neuromuscular diseases were ventilator assisted, using the ventilator mainly during sleep time.…”

Section: Discussionmentioning

confidence: 99%

“…The appraisal and the identification of the family’s emotional situation are depending on the instruments. It is difficult to compare the feelings expressed by our caregivers with others [11,12,13]. In general, negative and positive feelings are reported from caregivers of ventilator-dependent patients, whether they were at home or institutionalized, and they continue to provide social and emotional care despite their impaired emotional status.…”

Section: Discussionmentioning

confidence: 99%

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Burden and Coping Strategies in Families of Patients under Noninvasive Home Mechanical Ventilation

Tsara

Serasli²,

Voutsas³

et al. 2006

Respiration

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Background: It is well documented that caregivers of patients with chronic respiratory failure under noninvasive mechanical ventilation (NIMV) are at high risk to develop depression, burden, overload and declining health over time. Objectives: The purpose of the study was to investigate the subjective and objective burden imposed on families of patients under NIMV at home and explore the coping strategies they adopt. Methods: The study population consisted of 50 informal caregivers of patients with chronic respiratory failure under NIMV at home for at least 6 months. The burden of the families, as well as the adaptation strategies, were estimated by a modified version of the Family Burden Questionnaire validated in Greek. Results: Profound objective burden was reported in the field of social relations in 49%, in household management in 43.2%, in financial issues in 31.3% and in employment issues in 29.4% of the families. The subjective burden which the families experienced was usually lower and it was reported in household management in 33.4%, in employment issues in 29.4%, in social relations in 21.6% and in financial issues in 21.5% of the families. The strategies adopted by the families in order to cope with the imposed burden included reorientation of goals in 92.2%, resignation in 88.2%, passivity in 62.7%, hopefulness in 45.3%, ambivalence in 19.6% and guilt in 13.7% of the families. Conclusions: The families of patients under NIMV seem to face major problems (severe burden) in household management and their social relations. Families do not seem to subjectively experience the burden that is objectively recorded and, in the vast majority, they adopt healthy coping strategies.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Burden and Coping Strategies in Families of Patients under Noninvasive Home Mechanical Ventilation

Tsara

Serasli²,

Voutsas³

et al. 2006

Respiration

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“…In a study con- Negative psychological outcomes are not limited to caregivers who experience a patient's death in the ICU. In fact, negative psychological responses often continue following discharge [19,22,24]. Becoming an ICU survivor opens the door to a new phase of prolonged and unpredictable experiences [14].…”

Section: Psychological Outcomesmentioning

confidence: 99%

“…Becoming an ICU survivor opens the door to a new phase of prolonged and unpredictable experiences [14]. Psychological distress may continue or be further amplified following ICU discharge [19,[24][25][26][27][28][29]. In studies in which depressive symp- [18,19,22,28].…”

Section: Psychological Outcomesmentioning

confidence: 99%

Psychological and Physical Health in Family Caregivers of Intensive Care Unit Survivors: Current Knowledge and Future Research Strategies

2016

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Purpose: This article provides an overview of current knowledge on the impact of caregiving on the psychological and physical health of family caregivers of intensive care unit (ICU) survivors and suggestions for future research. Methods: Review of selected papers published in English between January 2000 and October 2015 reporting psychological and physical health outcomes in family caregivers of ICU survivors. Results: In family caregivers of ICU survivors followed up to five years after patients' discharge from an ICU, psychological symptoms, manifested as depression, anxiety and post-traumatic stress disorder, were highly prevalent. Poor self-care, sleep disturbances and fatigue were identified as common physical health problems in family caregivers. Studies to date are mainly descriptive; few interventions have targeted family caregivers. Further, studies that elicit unique needs of families from diverse cultures are lacking. Conclusion: Studies to date have described the impact of caregiving on the psychological and physical health in family caregivers of ICU survivors. Few studies have tested interventions to support unique needs in this population. Therefore, evidence for best strategies is lacking. Future research is needed to identify ICU caregivers at greatest risk for distress, time points to target interventions with maximal efficacy, needs of those from diverse cultures and test interventions to mitigate family caregivers' burden.

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Postintensive care syndrome family: A comprehensive review

Shirasaki,

Hifumi,

Nakanishi

et al. 2024

Acute Medicine & Surgery

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Families of critically ill patients are predisposed to tremendous burdens when their relatives are admitted to the intensive care unit (ICU). Postintensive care syndrome family (PICS‐F) can be described as a devastated life, encompassing psychological, physical, and socioeconomical burdens that begin with the emotional impact experienced by the family when the patient is admitted to the ICU. PICS‐F was primarily proposed as a clinically significant psychological impairment, but it needs to be extended beyond the psychological impairment of the family to include physical and socioeconomical impairments in the future. The prevalence of physiological problems including depression, anxiety and post‐traumatic syndrome is 20–40%, and that of non‐physiological problems including fatigue is 15% at 6 months after the ICU stay. Assessment of PICS‐F was frequently conducted at 3‐ or 6‐month points, although the beginning of the evaluation was based on different assessment points among each of the studies. Families of ICU patients need to be given and understand accurate information, such as the patient's diagnosis, planned care, and prognosis. Prevention of PICS‐F requires a continuous bundle of multifaceted and/or multidisciplinary interventions including providing a family information leaflet, ICU diary, communication facilitators, supportive grief care, and follow‐up, for the patient and families from during the ICU stay to after discharge from the ICU. This is the first comprehensive review of PICS‐F to address the concept, risk factors, assessment tools, prevalence, and management to prevent PICS‐F to facilitate acute care physicians' understanding of PICS‐F.

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Caregivers of Long-term Ventilator Patients

Cited by 106 publications

References 28 publications

Burden and Coping Strategies in Families of Patients under Noninvasive Home Mechanical Ventilation

Burden and Coping Strategies in Families of Patients under Noninvasive Home Mechanical Ventilation

Psychological and Physical Health in Family Caregivers of Intensive Care Unit Survivors: Current Knowledge and Future Research Strategies

Postintensive care syndrome family: A comprehensive review

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