Caregivers of Children with Fetal Alcohol Spectrum Disorder: Psychosocial Factors and Evidence for Self-compassion as a Potential Intervention Target

Biddle, Zoe; O’Callaghan, Frances Veronica; Finlay‐Jones, Amy; Reid, Natasha

doi:10.1007/s12671-020-01443-1

Cited by 9 publications

(26 citation statements)

References 53 publications

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“…A growing body of evidence shows self-compassion can play an important role in alleviating depressive symptoms, anxiety, and stress in various populations, including clinical (e.g., individuals with major depressive disorder and individuals with chronic pain) and nonclinical populations (e.g., undergraduate students, family caregivers of people with chronic conditions, and older adults) (Biddle et al, 2020 ; Bui et al, 2021 ; Carvalho et al, 2020 ; Kim & Ko, 2018 ; Krieger et al, 2013 ; Murfield et al, 2020 ). For example, studies found higher levels of self-compassion were related to lower levels of depressive symptoms, anxiety, and perceived stress (Bohadana et al, 2019 ; Bui et al, 2021 ; Kim & Ko, 2018 ; Krieger et al, 2013 ; Murfield et al, 2020 ) and predicted lower levels of depressive symptoms, anxiety, and stress (Bates et al, 2021 ; Biddle et al, 2020 ; Carvalho et al, 2020 ). Studies also showed the mediating role of self-compassion in the relationship of life challenges (e.g., perceived COVID-19 threat and caregiving stress) with depressive symptoms, anxiety, and stress, suggesting self-compassion buffered the impacts of life challenges on depressive symptoms, anxiety, and stress (Hsieh et al, 2019 ; Kavaklı et al, 2020 ; Lau et al, 2020 ).…”

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confidence: 99%

Effects of Self-Compassion Interventions on Reducing Depressive Symptoms, Anxiety, and Stress: A Meta-Analysis

Han

Kim

2023

Mindfulness

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Objectives A growing body of evidence shows self-compassion can play a key role in alleviating depressive symptoms, anxiety, and stress in various populations. Interventions fostering self-compassion have recently received increased attention. This meta-analysis aimed to identify studies that measured effects of self-compassion focused interventions on reducing depressive symptoms, anxiety, and stress. Methods A comprehensive search was conducted within four databases to identify relevant randomized controlled trials (RCTs). The quality of the included RCTs was assessed using the Cochrane Collaboration risk-of-bias tool. Either a random-effects model or fixed-effects model was used. Subgroup analyses were conducted according to types of control groups, intervention delivery modes, and the involvement of directly targeted populations with psychological distress symptoms. Results Fifty-six RCTs met the eligibility criteria. Meta-analyses showed self-compassion focused interventions had small to medium effects on reducing depressive symptoms, anxiety, and stress at the immediate posttest and small effects on reducing depressive symptoms and stress at follow-up compared to control conditions. The overall risk of bias across included RCTs was high. Conclusions Fewer studies were conducted to compare effects of self-compassion interventions to active control conditions. Also, fewer studies involved online self-compassion interventions than in-person interventions and directly targeted people with distress symptoms. Further high-quality studies are needed to verify effects of self-compassion interventions on depressive symptoms, anxiety, and stress. As more studies are implemented, future meta-analyses of self-compassion interventions may consider conducting subgroup analyses according to intervention doses, specific self-compassion intervention techniques involved, and specific comparison or control groups. Preregistration This study is not preregistered. Supplementary Information The online version contains supplementary material available at 10.1007/s12671-023-02148-x.

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confidence: 99%

Effects of Self-Compassion Interventions on Reducing Depressive Symptoms, Anxiety, and Stress: A Meta-Analysis

Han

Kim

2023

Mindfulness

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“…The included studies were conducted in Australia ( O’Reilly, 2017 ; Biddle et al, 2020 ), Canada ( Robinson et al, 2018 ) and the United States ( Conti, 2015 ; Moore et al, 2015 ; Singh et al, 2020 ; Ivins-Lukse and Lee, 2021 ; Iannuzzi et al, 2022 ) and published between 2015 and 2022. Five studies used quantitative methodology ( Conti, 2015 ; Robinson et al, 2018 ; Biddle et al, 2020 ; Singh et al, 2020 ; Ivins-Lukse and Lee, 2021 ); three used qualitative methodology ( Moore et al, 2015 ; O’Reilly, 2017 ; Iannuzzi et al, 2022 ) ( Table 1 ).…”

Section: Resultsmentioning

confidence: 99%

“…The majority of included studies were comprised of parents of youth with childhood-onset disabilities ( Conti, 2015 ; Moore et al, 2015 ; Robinson et al, 2018 ; Biddle et al, 2020 ; Ivins-Lukse and Lee, 2021 ; Iannuzzi et al, 2022 ). The remaining two studies included paid caregivers: one within a residential aged care facility ( O’Reilly, 2017 ; Singh et al, 2020 ) and another within a group home for adolescents and adults with intellectual disabilities and ASD ( Singh et al, 2020 ).…”

Section: Resultsmentioning

confidence: 99%

“…The remaining two studies included paid caregivers: one within a residential aged care facility ( O’Reilly, 2017 ; Singh et al, 2020 ) and another within a group home for adolescents and adults with intellectual disabilities and ASD ( Singh et al, 2020 ). Participant ethnicity was reported in four studies ( Conti, 2015 ; Moore et al, 2015 ; Ivins-Lukse and Lee, 2021 ; Iannuzzi et al, 2022 ), with most participants identifying as “Caucasian.” Included studies focused on youth with ASD ( Iannuzzi et al, 2022 ), ABI ( O’Reilly, 2017 ), TBI ( Moore et al, 2015 ), FASD ( Biddle et al, 2020 ), with the remaining four studies focused on youth with different childhood-onset disability diagnoses, including ASD ( Conti, 2015 ; Robinson et al, 2018 ; Singh et al, 2020 ; Ivins-Lukse and Lee, 2021 ), and intellectual and developmental disability ( Robinson et al, 2018 ; Singh et al, 2020 ; Ivins-Lukse and Lee, 2021 ). The age of youth reported in the included studies was between 12 to 25 years of age.…”

Section: Resultsmentioning

confidence: 99%

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Conceptualization, use, and outcomes associated with compassion in the care of youth with childhood-onset disabilities: a scoping review

Patsakos,

Patel,

Simpson

et al. 2024

Front. Psychol.

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IntroductionTo examine the scope of existing literature on the conceptualization, use, and outcomes associated with compassion in the care of youth with childhood-onset disabilities.MethodsA protocol was developed based on the Joanna Briggs Institute (JBI) scoping review method. MEDLINE, EMBASE, PsycINFO, Cochrane Central Register of Controlled Trials, and EBSCOhost CINAHL, were searched.ResultsEight studies were selected for inclusion; four used quantitative methodology, and four used qualitative methods. Compassion was not defined a priori or a posteriori in any of the included studies. The concept of self-compassion was explicitly defined only for parents of youth with childhood-onset disabilities in three studies a priori. The most reported outcome measure was self-compassion in parents of youth with childhood-onset disabilities. Self-compassion among parents was associated with greater quality of life and resiliency and lower stress, depression, shame and guilt.DiscussionThere is limited evidence on the conceptualization, use, and outcomes associated with compassion among youth with childhood-onset disabilities. Self-compassion may be an effective internal coping process among parents of youth with childhood-onset disabilities. Further research is required to understand the meaning of compassion to youth with childhood-onset disabilities, their parents and caregivers.Systematic review registrationhttps://doi.org/10.17605/OSF.IO/2GRB4.

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“…Researchers have also noted that grandparents comprise a small portion of their overall sample (e.g. Biddle et al, 2020; Bobbitt et al, 2016). Grandparents are often generalized to the ‘other’ primary caregiver group (e.g.…”

Section: Introductionmentioning

confidence: 99%

‘It's rewarding because I get the love’: Grandparents raising grandchildren with foetal alcohol spectrum disorder

Clement

Harding

Watson

2022

Child & Family Social Work

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The aim of this study was to explore the lived experiences of grandparents raising their grandchildren with foetal alcohol spectrum disorder (FASD). Specifically, we sought to identify how caregivers make meaning of their experience, what challenges are faced by grandparents while raising a second generation and what positive experiences are encountered. Ten grandparents raising a child with FASD in Ontario, Canada, participated in semi-structured interviews. Interpretative phenomenological analysis was used to analyse the interviews to determine reoccurring themes. Three main themes were identified: (i) challenges when raising a grandchild with FASD, including kinship adoption struggles and intergenerational issues; (ii) worries about the future, including financial planning and health concerns; and (iii) rewards, such as shifts in priorities and the opportunity to raise a second generation. Grandparents raising their grandchildren with FASD face challenges and thus require specific supports so that they may adequately provide a safe and nurturing home environment for children with often challenging learning and social needs.

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Caregivers of Children with Fetal Alcohol Spectrum Disorder: Psychosocial Factors and Evidence for Self-compassion as a Potential Intervention Target

Cited by 9 publications

References 53 publications

Effects of Self-Compassion Interventions on Reducing Depressive Symptoms, Anxiety, and Stress: A Meta-Analysis

Effects of Self-Compassion Interventions on Reducing Depressive Symptoms, Anxiety, and Stress: A Meta-Analysis

Conceptualization, use, and outcomes associated with compassion in the care of youth with childhood-onset disabilities: a scoping review

‘It's rewarding because I get the love’: Grandparents raising grandchildren with foetal alcohol spectrum disorder

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