Caregivers of cancer patients: what are their information-seeking behaviours and resource preferences?

Chua, Gek Phin; Ng, Quan Sing; Tan, Hiang Khoon; Ong, Whee Sze

doi:10.3332/ecancer.2020.1068

Cited by 24 publications

(26 citation statements)

References 47 publications

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“…Studies on information seeking behaviour of cancer patient are available in plenty, and various aspects have been explored. Recent examples include exploring the information need of cancer patients (Zimmermann et al, 2021), the decision for cancer patients to engage in information seeking (McDowell and Pachur, 2020), and the information seeking behaviours and resource preferences for caregivers of cancer patients (Chua et al, 2020b).…”

Section: Introductionmentioning

confidence: 99%

Information seeking for coping with cancer: a systematic review

Petersen

Jensen

Frandsen

2021

AJIM

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PurposeInformation seeking can be used to make sense of a situation or solve a problem. Information seeking can be considered a coping strategy when facing illness, crisis or other life-changing events. Cancer is a globally occurring, life-threatening disease, and this review aims to provide an overview of the existing literature on the active information seeking behaviour of cancer patients specifically focussing on how active information seeking serves as a coping strategy.Design/methodology/approachThis study adheres to current guidelines for conducting systematic reviews and consequently, thorough literature searches were conducted in four databases: Medline, Embase, CINAHL and Scopus which resulted in 7,179 publications. Following a careful screening process, this systematic review identifies 14 studies on the use of information seeking to cope with cancer.FindingsThe included studies consist of both qualitative and quantitative approaches to analysing the use of information seeking to cope with cancer. The included studies have focussed primarily on demographic factors, the impact of affect, information needs, sources and coping strategies.Research limitations/implicationsA number of research gaps within library and information science are identified. Bringing research in this field into information science could allow for a greater understanding of information literacy, the use of existing information and the process of information searching when using information seeking to cope with serious illness.Originality/valueThis systematic review focusses on how information seeking serves as a coping strategy for cancer patients and provides an overview of the recent literature.

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Section: Introductionmentioning

confidence: 99%

Information seeking for coping with cancer: a systematic review

Petersen

Jensen

Frandsen

2021

AJIM

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“…Several studies emphasised the need for appropriate steps to enhance the knowledge of the general population and healthcare professionals 26,27 . Many studies revealed that healthcare professionals are the most referred to, and the most preferred source of information for cancer patients 28‐30 . Continuous medical education of physicians and nurses is vital to improving early detection and timely referral of children with retinoblastoma.…”

Section: Discussionmentioning

confidence: 99%

“…26,27 Many studies revealed that healthcare professionals are the most referred to, and the most preferred source of information for cancer patients. [28][29][30] Continuous medical education of physicians and nurses is vital to improving early detection and timely referral of children with retinoblastoma.…”

Section: Ta B L E 3 (Continued)mentioning

confidence: 99%

Knowledge and awareness of the general population and healthcare providers about retinoblastoma: It is time to know the glow

et al. 2021

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Retinoblastoma is the most frequent primary intraocular tumour in childhood. Early detection of retinoblastoma is the key to successful management with a higher chance of survival. This study aims to assess the knowledge of the general population and healthcare providers about retinoblastoma in term of presentation, risk factors, timing for diagnosis, and complications.A cross-sectional study using an online survey was conducted in three Arab countries (Jordan, Saudi Arabia, and Iraq) between 28 August and 16 September 2020.The questionnaire tool was constructed based on an extensive literature review to explore the study's aim and objectives. Logistic regression was used to identify predictors of better knowledge about retinoblastoma.A total of 3676 participants were involved in the study (Jordan = 2654, Saudi Arabia = 604, and Iraq = 418). The average retinoblastoma knowledge score for the whole study population was 6.25 (SD = 4.12) out of 21, representing 29.8% (out of the maximum possible total score). Participants aged above 50 years old, married individuals, those with a secondary education level, those who work as professionals in industry, those who have more than four children, and those who reported that they were not in direct contact with a large number of children were less likely to be knowledgeable about retinoblastoma presentation, risk factors, the timing for diagnosis, and complications (P < .05).Early detection is the cornerstone for decreasing morbidity and mortality among children with retinoblastoma. However, the awareness and knowledge about retinoblastoma are very limited in our study population. Efforts should be directed at increasing awareness of both the general population and healthcare providers regarding retinoblastoma. Policymakers are responsible for improving knowledge and awareness about retinoblastoma to facilitate early detection of the disease by 2 of 11 | NASER Et Al. | INTRODUC TI ONRetinoblastoma is the most frequent primary intraocular tumour in childhood and accounts for about 3% of all malignancies in children younger than 15 years old. 1 It originates from primitive retinoblasts and initiated by biallelic mutation of the retinoblastoma tumour-suppressor gene (RB1 gene) with a tendency towards cone differentiation. 2 In children with retinoblastoma, the most common presenting and warning sign is leukocoria (60%), followed by strabismus (20%). The remaining 20% present atypical signs, including inflammation of the eye or uveitis, ocular neovascularisation, haemorrhage, glaucoma, hypopyon, and orbital cellulitis. 3 However, these signs are considered late signs with a poor prognosis for both globe salvage and survival. 4 In developing countries, the most frequent presenting sign is extraocular involvement with proptosis. 3 The annual incidence of retinoblastoma is one in 15 000 to 20 000 live births, representing about 9000 new cases each year in the world with no gender, ethnic, or geographical predilection. Of those new cases, more than 80% are from low-and middle-incom...

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“…Further, the definition of cancer survivors also includes caregivers since cancer has various effects on both patients and their caregivers. 3 As medical care has shifted from hospital-based to community-based treatments, caregivers have become the primary resources for patients' social and emotional support, playing a critical role by providing most of the patients’ cancer management. Thus, the importance of caregivers in the management of CRC patients has become increasingly recognized.…”

Section: Introductionmentioning

confidence: 99%