2016
DOI: 10.1155/2016/9637587
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Caregivers Lack of Disclosure Skills Delays Disclosure to Children with Perinatal HIV in Resource-Limited Communities: Multicenter Qualitative Data from South Africa and Botswana

Abstract: To promote the appropriate implementation of procedures for health disclosure to children, it is important to understand the reasons why caregivers delay the disclosure of healthcare information to children. This paper explored the views of caregivers on what makes disclosure to children with perinatal acquired HIV (PAH) difficult and what could make disclosure in these cases easier. Data were collected using focus group interviews with caregivers who were purposely selected from a multicenter study conducted … Show more

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Cited by 24 publications
(34 citation statements)
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“…Primary caregivers’ lack of confidence in their ability to disclose appropriately is another major barrier to HIV disclosure that has been reported in previous studies [7072]. These findings highlight the crucial need for healthcare workers to support primary caregivers appropriately through the disclosure process.…”
Section: Discussionmentioning
confidence: 56%
See 1 more Smart Citation
“…Primary caregivers’ lack of confidence in their ability to disclose appropriately is another major barrier to HIV disclosure that has been reported in previous studies [7072]. These findings highlight the crucial need for healthcare workers to support primary caregivers appropriately through the disclosure process.…”
Section: Discussionmentioning
confidence: 56%
“…Older children are simply more likely to ask questions and engage adults in conversation. For example, Madiba (2016) found that caregivers in Botswana and South Africa interpreted children’s frequent questions about their condition as a sign of maturity, that they are ready to be told about their HIV status [51].…”
Section: Discussionmentioning
confidence: 99%
“…In our study, only children who were at least 7 years old were reported to be fully disclosed. HIV disclosure rates to children in Sub-Sahara Africa remain low, some studies attribute this to health worker and caregiver lack of skills to disclose to children [29, 30]. Training health workers and caregivers in disclosure skills has improved disclosure rates in most places [29, 30].…”
Section: Discussionmentioning
confidence: 99%
“…The fear of disclosure to other people because of stigma will continue to hinder the disclosure of HIV serostatus to children [ 26 ]. Feeling unprepared to answer the child’s questions and lacking disclosure skills or knowledge of how to disclose have been identified as major barriers to the early initiation of disclosing to children [ 11 , 22 , 23 , 24 , 27 , 28 , 29 ].…”
Section: Introductionmentioning
confidence: 99%