Caregivers for Alzheimer's Patients: What We Are Learning from Research

Dillehay, Ronald C.; Sandys, Marla

doi:10.2190/2p3j-a9ah-hhf4-00rg

Cited by 93 publications

(55 citation statements)

References 24 publications

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“…Inconsistent with some previous studies, we found that female caregivers who performed more personal care tasks, such as toileting and bathing, as well as more household chores, did not show a relationship between perceived burden and caregiver's gender [13,30] . In addition, our results indicate that caregiver level of education appeared to have some relationship with perceived burden [13,30] and HRQL [13] , with a worsening of both, level of burden and HRQL, with lower levels of caregiver education.…”

Section: Discussioncontrasting

confidence: 52%

“…In addition, our results indicate that caregiver level of education appeared to have some relationship with perceived burden [13,30] and HRQL [13] , with a worsening of both, level of burden and HRQL, with lower levels of caregiver education. This might be due to the fact that more highly educated caregivers have more realistic expectations about the course of the disease as well as better social and financial support and, therefore, can adapt better to the stress and changing care needs of the person with AD.…”

Section: Discussionmentioning

confidence: 57%

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Impact on Health-Related Quality of Life and Perceived Burden of Informal Caregivers of Individuals with Alzheimer’s Disease

Serrano‐Aguilar¹,

López-Bastida²,

Yanes-Lopez³

2006

Neuroepidemiology

151

138

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This study assessed the impact on health-related quality of life (HRQL) and the perceived burden of informal caregivers of individuals with Alzheimer’s disease (AD) on the Canary Islands (Spain). We utilized a multicenter, cross-sectional design, based on questionnaire responses of 237 informal caregivers of AD patients. Patients were classified according to the degree of severity utilizing the Clinical Dementia Rating Scale. Sociodemographic, HRQL (EQ-5D) and functional dependency data were gathered together with the degree of caregiver burden. Caregivers had a higher frequency of problems than did the general population for every EQ-5D dimension. Caregivers’ HRQL was inversely associated with the subject dependency level and caregiver age. HRQL was higher for more educated caregivers. Variables with a negative and/or significant effect on caregivers’ HRQL were high feelings of burden, more committed time to care, and older age. The caregiver burden quantified by the Zarit scale showed 83.3% of caregivers with a high level of burden.

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Section: Discussioncontrasting

confidence: 52%

Section: Discussionmentioning

confidence: 57%

Impact on Health-Related Quality of Life and Perceived Burden of Informal Caregivers of Individuals with Alzheimer’s Disease

Serrano‐Aguilar¹,

López-Bastida²,

Yanes-Lopez³

2006

Neuroepidemiology

151

138

View full text Add to dashboard Cite

show abstract

“…There is substantial evidence in the literature that female caregivers, and daughters in particular, experience more stress than male caregivers [35,38], although not all studies report clear-cut gender differences [24]. In the present study the high-burden group included a majority of daughters.…”

Section: Discussionmentioning

confidence: 82%

“…The Zarit Burden Interview (BI) continues to be widely used in the study of caregiver burden [16,[23][24][25][26]. Various forms exist.…”

Section: Caregiver Variablesmentioning

confidence: 99%

Individual Quality of Life Factors Distinguishing Low-Burden and High-Burden Caregivers of Dementia Patients

Coen

O’Boyle

Coakley

et al. 2002

Dement Geriatr Cogn Disord

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Dementia patient (n = 72) and caregiver characteristics and individual quality of life (IQoL) factors distinguishing low- and high-burden caregivers were evaluated. Measures included patient cognitive, functional and behavioural status, and caregiver burden, well-being, social support appraisal and IQoL. The caregivers were divided by median split into low- and high-burden groups. In the high-burden group daughters were over-represented, psychological morbidity was higher, QoL was lower, the patients were more behaviourally disturbed, and there was a trend towards more negative appraisal of informal social support. Of the many QoL factors elicited from caregivers, only ‘time for self’ and ‘finances’ differed significantly between the groups. A need for more time away from the patient is a major QoL concern for highly burdened caregivers, and a perceived lack of adequate informal support and/or financial constraints are contributory factors.

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“…Fuente: Trabajo de investigación 5 (2) 7 (2,8) 25 (9,9) 136 (54) 32 (12,7) 146 (57,9) Se logró evidenciar que el grado de sobrecarga en el cuidador es independiente de su nivel de escolaridad, sin embargo, se observó que a menor nivel de escolaridad mayor grado de sobrecarga (Tau C Kendall = -0.024). En el estudio de Ocampo, Herrera y Torres (22), se encontró asociación estadística significativa con respeto al grado de escolaridad siendo contradictorio con lo obtenido en el estudio donde no se encontró asociación de sobrecarga con esta variable demográfica.…”

Section: Tabla 3 a Asociación Del Nivel De Escolaridad Con El Nivel unclassified

Características sociodemográficas asociadas a la sobrecarga de los cuidadores de pacientes diabéticos en Cúcuta

Claro¹,

Clavijo²,

Sepúlveda³

et al. 2013

Rev Cuid

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RESUMENIntroducción: Determinar la asociación entre las características sociodemográficas con el grado de sobrecarga en los cuidadores de pacientes diabéticos del Hospital Universitario ERASMO MEOZ durante el año del 2010 y primer semestre del 2011. Materiales y Métodos: Trabajo de investigación de abordaje cuantitativo descriptivo correlacional. Previa autorización de las directivas de la institución, de la verificación del cumplimiento de criterios de inclusión y de la participación voluntaria con consentimiento bajo información, se aplica en 252 cuidadores dos instrumentos caracterización sociodemográfica de los cuidadores y escala de sobrecarga del cuidador de Zarit. Resultados: Respecto a las características demográficas y grado de sobrecarga, se reportó asociación estadísticamente significativa en las variables género, edad, estado civil, ocupación, y horas de cuidado; contrario al nivel de escolaridad, estrato de la vivienda y parentesco en las que no encontró relación directa con la percepción de sobrecarga. Discusión y Conclusiones: En el estudio algunas variables del perfil sociodemográfico del cuidador y de la provisión del cuidado aparecen fuertemente relacionadas con la percepción de sobrecarga de éste. Lo encontrado plantea la necesidad de la participación de enfermería en la definición de estrategias concretas y comprometidas en el diagnostico precoz y tratamiento oportuno de los efectos adversos por sobrecarga, y en la adopción de medidas necesarias para su control. (Rev Cuid 2013; 4(1): 459-66).Palabras clave: Cuidadores, Carga de Trabajo, Enfermedad Crónica. (Fuente: DeCS BIREME). In the study variables of socio -demographic profile of the caregiver and care provision are strongly related to this perception of overload. This finding raises the need for nursing involvement in the definition of specific strategies and committed in the early diagnosis and treatment of adverse effects due to overload, and measures for their control. CARACTERÍSTICAS SOCIODEMOGRÁFICAS ASOCIADAS

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Caregivers for Alzheimer's Patients: What We Are Learning from Research

Cited by 93 publications

References 24 publications

Impact on Health-Related Quality of Life and Perceived Burden of Informal Caregivers of Individuals with Alzheimer’s Disease

Impact on Health-Related Quality of Life and Perceived Burden of Informal Caregivers of Individuals with Alzheimer’s Disease

Individual Quality of Life Factors Distinguishing Low-Burden and High-Burden Caregivers of Dementia Patients

Características sociodemográficas asociadas a la sobrecarga de los cuidadores de pacientes diabéticos en Cúcuta

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