Caregivers' experiences of having a child with cerebral palsy. A meta-synthesis

Dlamini, Maggie Dumsile; Chang, Ying-Ju; Nguyen, Tram Thi Bich

doi:10.1016/j.pedn.2023.08.026

Cited by 9 publications

(2 citation statements)

References 52 publications

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“…This is a noteworthy result, as it underscores the commitment of caregivers to support a child's development. The satisfaction levels in parenting aspects also resonate with the findings of Dlamini et al, which highlighted the positive impact of familial support on the child's well-being [8].…”

Section: Discussionsupporting

confidence: 76%

Quality of Life of Primary Caregivers of Children With Cerebral Palsy From a Family Perspective

Alhumaidi,

Alshwameen,

Alsayed

et al. 2023

Cureus

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Background: Cerebral palsy is a heterogeneous group of permanent non-progressive disorders affecting the development of movement and posture, varying in severity, interfering with daily activity, and associated with multiple comorbidities . Previous studies in different regions of Saudi Arabia have shown links between caregivers’ mental health and children’s well-being. However, the lack of such research in the Tabuk region necessitates the development of a new survey to assess caregivers’ quality of life in this specific area. Methodology: This was a cross-sectional study, conducted during 2022-2023. It included the caregivers of Saudi children with cerebral palsy in the Tabuk region. Data was collected using an online questionnaire and was analyzed using the SPSS program (IBM Corp., Armonk, NY). Results: The study included 63 participants. Mothers (50.8%) and fathers (46.0%) were the primary caregivers. The comorbidities of cerebral palsy children like seizures (28.6%) and learning difficulties (19.0%) were prevalent for cerebral palsy children. Around 20.6% of participants received home health care. In terms of family quality of life, the majority expressed satisfaction with family interaction, parenting, and emotional well-being, although mixed feelings were observed. Conclusion: The majority of caregivers reported satisfaction in various domains of family quality of life, particularly in family interaction and parenting. However, a notable percentage expressed dissatisfaction in some areas, highlighting the complex emotional and practical challenges faced by these caregivers.

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Section: Discussionsupporting

confidence: 76%

Quality of Life of Primary Caregivers of Children With Cerebral Palsy From a Family Perspective

Alhumaidi,

Alshwameen,

Alsayed

et al. 2023

Cureus

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“…Ideally, a competent caregiver can not only conduct daily functional activities, but also have good behavioral management, proper stress management, and appropriate selfefficacy techniques [5]. However, taking holistic care of children with CP is both physically challenging and mentally straining for caregivers, as they require more attention while caring for their children [6,7]. Caregiving of children with CP for long periods of time can encounter negative psychological experiences during their lifetime, increasing the risk of burnout and vulnerability to physical condition and mental health status [8].…”

Section: Introductionmentioning

confidence: 99%

Effects of Hippotherapy on Health-Related Quality of Life in Caregivers of Children with Cerebral Palsy: A Pilot Quasi-Experimental Study in Japan

Mutoh,

Kurosaki

et al. 2023

Healthcare

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Background: Despite accumulating data regarding the beneficial effects of hippotherapy on gait and balance skills in children with cerebral palsy (CP), its effects on caregivers’ quality of life (QOL) are limited, presumably due to a lack of reliable and valid measurement tools. This study aims to evaluate the impact of hippotherapy on the health-related QOL of primary caregivers using the Japanese version of the Cerebral Palsy Quality of Life for Children (CP QOL) questionnaire. Methods: A quasi-experimental design embedded within our existing cohort was utilized. A total of 29 children with CP (range 4–12 years) and their caregivers participated in either a weekly hippotherapy or recreation (usual care) program for 1 year. In addition to gait-related measurements (Gross Motor Function Measure [GMFM]-E) of children, CP QOL-evidenced determinants of the caregivers’ health-related QOL and well-being were compared before and after the intervention. Results: In addition to improvements in children’s GMFM-E scores, hippotherapy improved CP QOL domains related to participation and physical health, children’s emotional well-being, and parents’ overall health (p < 0.05). Linear regression analysis showed a positive relationship between the children’s GMFM-E scores and their caregivers’ health domains in participants who received hippotherapy (r2 = 0.404; p = 0.011). Conclusions: Hippotherapy has a beneficial effect on the physical and mental well-being and satisfaction of Japanese parents caring for children with CP.

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Translational research – Reducing the challenges of caregiving and managing children's chronic conditions

Christian

2023

Journal of Pediatric Nursing

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Caregivers' experiences of having a child with cerebral palsy. A meta-synthesis

Cited by 9 publications

References 52 publications

Quality of Life of Primary Caregivers of Children With Cerebral Palsy From a Family Perspective

Quality of Life of Primary Caregivers of Children With Cerebral Palsy From a Family Perspective

Effects of Hippotherapy on Health-Related Quality of Life in Caregivers of Children with Cerebral Palsy: A Pilot Quasi-Experimental Study in Japan

Translational research – Reducing the challenges of caregiving and managing children's chronic conditions

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