Caregivers' experience of the decision-making process for placing a person with dementia into a nursing home: comparing caregivers from Chinese ethnic minority with those from English-speaking backgrounds

Caldwell, Lauren; Low, Lee‐Fay; Brodaty, Henry

doi:10.1017/s1041610213002020

Cited by 44 publications

(126 citation statements)

References 18 publications

(23 reference statements)

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“…Castle [ 12 ] found, using a sample size of 306 older adult residents, that 78% of nursing home placements occurred following hospitalization. Cheek et al [ 24 ], Magilvy and Congdon [ 25 ], and Caldwell et al [ 18 ] reported similar findings indicating that very few proactive nursing home choices are being made prior to crisis situations.…”

Section: Resultsmentioning

confidence: 90%

“…The decision to transition older adults into ALH is most often initiated by a crisis situation, such as an acute admission to hospital or the sudden deterioration of an older adult's and/or caregiver's health [ 4 , 7 , 10 , 16 , 18 – 24 ]. Castle [ 12 ] found, using a sample size of 306 older adult residents, that 78% of nursing home placements occurred following hospitalization.…”

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

Perspective of Family Members of Transitions to Alternative Levels of Care in Anglo-Saxon Countries

Merla

Wickson-Griffiths

Kaasalainen

et al. 2018

Current Gerontology and Geriatrics Research

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This scoping review explores circumstances surrounding the decision about, and eventual experience of, transitioning older adults into alternative levels of housing (ALH), such as long-term care. This topic is examined from a family member perspective, given their exposure and involvement in the care of older adult relatives during this transitional period. The scoping review methodology is based on the framework of Arksey and O'Malley and subsequent recommendations from Levac, Colquhoun, and O'Brien. Approximately 470 articles were reviewed covering the period between 2000 and November 2014; 37 articles met inclusion criteria. A temporal organization of themes was used to describe the experiences of family members in the pretransition, active transition, and posttransition periods of moving older adult relatives into ALH. This paper highlights the transitional period as a time of crisis, with a lack of planning, support, and transparent discussion. This study identifies a need for future research on the potential benefits of family support groups, interim transitional housing options, different models of ALH, changing roles in the posttransition period, and the need for a comprehensive list of housing options for older adults. Results have the potential to inform policy/practice and improve the lives of older adults and their family.

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Section: Resultsmentioning

confidence: 90%

Section: Resultsmentioning

confidence: 99%

Perspective of Family Members of Transitions to Alternative Levels of Care in Anglo-Saxon Countries

Merla

Wickson-Griffiths

Kaasalainen

et al. 2018

Current Gerontology and Geriatrics Research

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“…We interviewed only those able to speak fluent English so we cannot comment on the needs of those who do not. Ethnicity has been found to affect the decision to look after an individual with dementia at home resulting in presenting later to services, with carers reporting issues with filial piety and obligation (Chang et al, [ 16 , 17 ]) and that there is often a lack of culturally appropriate facilities (in terms of language and food) [ 18 ].…”

Section: Discussionmentioning

confidence: 99%

How people with dementia and their families decide about moving to a care home and support their needs: development of a decision aid, a qualitative study

et al. 2016

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BackgroundPeople with dementia and their relatives find decisions about the person with dementia living in a care home difficult.MethodsWe interviewed 20 people with dementia or family carers around the time of this decision in order to design a decision-aid.ResultsDecision-makers balanced the competing priorities of remaining somewhere familiar, family’s wish they remain at home, reduction of risk and effects on carer’s and person with dementia’s physical health. The person with dementia frequently resented their lack of autonomy as decisions about care home moves were made after insight and judgment were impaired. Family consultation usually helped carers but sometimes exacerbated tensions. Direct professional support was appreciated where it was available. There is a need for healthcare professionals to facilitate these conversations around decision-making and to include more than signposting to other organisations.ConclusionsThere is a need for a healthcare professional facilitated decision-aid. This should detail what might change for the person with dementia and their carer, possible resources and alternatives and assist in facilitating discussion with the wider family; further research will develop and test a tool to facilitate decision making about place of care needs.

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“…This study also found strong support for building a senior nursing home to house elderly Chinese. This is noteworthy since nursing home placement has often been reported as a stressful experience for the elderly and their family caregivers (Caldwell, Low, & Brodaty, 2014;Chang, Schneider, & Sessanna, 2011;Wang, 2011).…”

Section: Discussionmentioning

confidence: 98%

Perceptions of Eldercare Service Needs: A Chinese-Canadian Community Survey

Chow

2017

JPSS

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Ethnic minority immigrants, especially those who resettle in a foreign country in the later stages of life, face many challenges as they age. A community survey using a representative sample of Chinese-Canadians aged 18 or above was undertaken to explore perceptions towards eldercare service needs among Chinese seniors. Telephone interviews were conducted with 336 Chinese-Canadians residing in a western Canadian city (Calgary, Alberta) by trained, bilingual interviewers using a structured questionnaire on topics such as perceived eldercare needs of Chinese seniors, household composition, and socio-demographic information. Multiple ordinary least-squares regression analysis demonstrated that age, country of origin, perceived service needs, health of seniors in household, length of residence in Canada, and sense of filial responsibility are significantly related to respondents' support for ethnic eldercare services. The findings underscore the importance of culturally and linguistically sensitive eldercare services and programs in the Chinese community.

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Caregivers' experience of the decision-making process for placing a person with dementia into a nursing home: comparing caregivers from Chinese ethnic minority with those from English-speaking backgrounds

Abstract: Understanding cultural issues, including stereotypes and concerns about nursing homes, and providing better information about admission processes may help caregivers by allaying their anxiety about nursing home placement.

Cited by 44 publications

References 18 publications

Perspective of Family Members of Transitions to Alternative Levels of Care in Anglo-Saxon Countries

Perspective of Family Members of Transitions to Alternative Levels of Care in Anglo-Saxon Countries

How people with dementia and their families decide about moving to a care home and support their needs: development of a decision aid, a qualitative study

Perceptions of Eldercare Service Needs: A Chinese-Canadian Community Survey

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