Caregivers as Therapeutic Agents in Dementia Care

Gitlin, Laura N.; Hodgson, Nancy

doi:10.1016/b978-0-12-417046-9.00017-9

Cited by 67 publications

(56 citation statements)

References 108 publications

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“…stress, depression) and person with ADRD (e.g. behavior problems, time to institutionalization) outcomes (Gitlin and Hodgson, 2015). A potential concern, however, when synthesizing or comparing the efficacy of dementia caregiver interventions is inconsistency in how they are classified (Czaja et al , 2003; Schulz et al , 2010).…”

Section: Introductionmentioning

confidence: 99%

“…A potential concern, however, when synthesizing or comparing the efficacy of dementia caregiver interventions is inconsistency in how they are classified (Czaja et al , 2003; Schulz et al , 2010). This can result in confusion when ascertaining whether certain types of interventions are more efficacious than others for given caregiver and care-recipient outcomes, and may also inhibit the ability to implement these programs into routine clinical care settings (Gitlin and Hodgson, 2015; Gaugler and Burgio, 2016). The actual extent of this problem, however, is unknown.…”

Section: Introductionmentioning

confidence: 99%

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Consistency of dementia caregiver intervention classification: an evidence-based synthesis

Gaugler

Jutkowitz

Shippee

et al. 2016

Int. Psychogeriatr.

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The substantial inconsistency in how dementia caregiver interventions are classified across SRs has hindered the science and practice of dementia caregiver interventions. Specifically, accurate reporting of intervention components and SRs would allow for more precise assessments of efficacy as well as a fuller determination of how caregiver interventions can best yield benefits for caregivers and persons with dementia.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Consistency of dementia caregiver intervention classification: an evidence-based synthesis

Gaugler

Jutkowitz

Shippee

et al. 2016

Int. Psychogeriatr.

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“…• Social support groups. 24, 25 The term evidence-based programs in this paper refers to caregiver supportive services that have been developed, tested, evaluated, and proved effective in one or more randomized controlled trial (RCT) in the United States. (See also "Key Terms and Definitions.…”

Section: Translation Of Research Into Community Practicementioning

confidence: 99%

“…These reviews, known as meta-analyses, highlight the positive effects of nonpharmacological programs that include a combination of education, counseling, cognitive behavioral therapy, 26 environmental modification in the home, skills training, and other supportive services to improve caregiver well-being, reduce caregiver strain, and ease the psychological distress common for family members caring for someone with dementia. 27,28,29,30 Some evidence-based programs also enable the family member to remain in the caregiving role longer, thus avoiding or delaying costly nursing home placement for individuals living with dementia. 31 Over the past 15 years, a number of evidencebased dementia caregiver programs originally evaluated in RCTs have been further tested in the United States in what are known as translation studies.…”

Section: Translation Of Research Into Community Practicementioning

confidence: 99%

“…New care models should also be tested to address practical issues of family care, including financial and physical strain, the need for appropriate respite and a break from ongoing care tasks, the challenges of balancing caregiving with employment responsibilities, and improving communications and interactions with health care and LTSS providers. 47,48 There is also a growing need to provide skills training to family caregivers in performing complex medical/nursing tasks (e.g., wound care, operating medical equipment, and giving injections) in addition to help with daily activities. 49 Such skills training and better overall care preparation for family caregivers could lead to fewer hospital readmissions and fewer trips to the emergency room with the person with dementia.…”

Section: What Are the Common Features Of Successful Caregiver Supportmentioning

confidence: 99%

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Job Demands and the Effects on Quality of Life of Employed Family Caregivers of Older Adults With Dementia: A Cross-Sectional Study

Wang

Hsu

Shyu³

2020

Journal of Nursing Research

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The strain on family members and friends caring for people living with dementia can lead to adverse consequences for the individual and family, as well as the health care system itself. Caregiver support services can make a real difference in the daily lives of people with dementia and their family caregivers. Evidence-based programs hold promise to help caregiving families, but they are not widely available in communities. Without access to effective and practical care strategies, family caregivers do not benefit optimally from programs that help them manage and cope with the challenges they face. Advancing proven programs in community-based organizations, health care systems, and other real-world settings should be a priority to help families in need.

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2020 Alzheimer's disease facts and figures

2020

Alzheimer's & Dementia

1,962

653

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This article describes the public health impact of Alzheimer's disease (AD), including incidence and prevalence, mortality and morbidity, use and costs of care, and the overall impact on caregivers and society. The Special Report discusses the future challenges of meeting care demands for the growing number of people living with Alzheimer's dementia in the United States with a particular emphasis on primary care. By mid‐century, the number of Americans age 65 and older with Alzheimer's dementia may grow to 13.8 million. This represents a steep increase from the estimated 5.8 million Americans age 65 and older who have Alzheimer's dementia today. Official death certificates recorded 122,019 deaths from AD in 2018, the latest year for which data are available, making Alzheimer's the sixth leading cause of death in the United States and the fifth leading cause of death among Americans age 65 and older. Between 2000 and 2018, deaths resulting from stroke, HIV and heart disease decreased, whereas reported deaths from Alzheimer's increased 146.2%. In 2019, more than 16 million family members and other unpaid caregivers provided an estimated 18.6 billion hours of care to people with Alzheimer's or other dementias. This care is valued at nearly $244 billion, but its costs extend to family caregivers’ increased risk for emotional distress and negative mental and physical health outcomes. Average per‐person Medicare payments for services to beneficiaries age 65 and older with AD or other dementias are more than three times as great as payments for beneficiaries without these conditions, and Medicaid payments are more than 23 times as great. Total payments in 2020 for health care, long‐term care and hospice services for people age 65 and older with dementia are estimated to be $305 billion. As the population of Americans living with Alzheimer's dementia increases, the burden of caring for that population also increases. These challenges are exacerbated by a shortage of dementia care specialists, which places an increasing burden on primary care physicians (PCPs) to provide care for people living with dementia. Many PCPs feel underprepared and inadequately trained to handle dementia care responsibilities effectively. This report includes recommendations for maximizing quality care in the face of the shortage of specialists and training challenges in primary care.

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Caregivers as Therapeutic Agents in Dementia Care

Cited by 67 publications

References 108 publications

Consistency of dementia caregiver intervention classification: an evidence-based synthesis

Consistency of dementia caregiver intervention classification: an evidence-based synthesis

Job Demands and the Effects on Quality of Life of Employed Family Caregivers of Older Adults With Dementia: A Cross-Sectional Study

2020 Alzheimer's disease facts and figures

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