Caregiver Treatment Choices

Carlon, Sarah; Stephenson, Jennifer; Carter, Mark

doi:10.1007/978-3-030-20843-1_29

Cited by 1 publication

(1 citation statement)

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“…Including and discussing these domains may thus improve the quality of shared decision making in choosing and evaluating treatments, especially when there is need for psychotropic drug prescription. Also, since in current clinical practice defining treatment goals and monitoring are often limited to specific symptoms and not evaluated more broadly (Carlon et al, 2019), use of all selected domains as treatment outcomes may help to broaden the perspective on treatment goals of professionals, clients, their representatives, and other stakeholders. Perspectives of clients on treatment goals may otherwise remain unknown and/or differences from those of clinicians may become clearer (Chester et al, 2019).…”

Section: Discussionmentioning

confidence: 99%

Preferred outcome measures in treatments for challenging behaviour in individuals with intellectual disabilities: Results of an inclusive Delphi method

Kuijper

Ravenswaaij

Hoekstra

et al. 2022

Research Intellect Disabil

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Background: Interventions for challenging behaviours in individuals with intellectual disabilities benefit from outcome monitoring that takes clients' preferences into account. We determined clients' and representatives' preferred outcome domains and measures to secure their involvement in treatment decisions for challenging behaviours. Method:We used an inclusive Delphi method. A focus group of individuals with mild intellectual disabilities and representatives of those with moderate and severe intellectual disabilities prepared the first round by assisting us in collecting possible outcomes. Panels of individuals with intellectual disabilities and representatives were composed to achieve consensus on instruments for preferred outcome domains.Results: Preferred outcome domains were behaviour, side-effects of psychotropic drugs, quality of life, daily functioning, caregiver burden and family quality of life.Corresponding outcome measures included self-report, interview and proxy-scales, including spoken versions. Conclusion:Including the preferred domains on outcomes of interventions for challenging behaviours is recommended. Research on corresponding outcome measures is necessary.

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Section: Discussionmentioning

confidence: 99%