Caregiver's Anticipatory Grief in Dementia: A Pilot Study

Theut, Susan K.; Jordan, Linda; Ross, Louis A.; Deutsch, Stephen I.

doi:10.2190/4kyg-j2e1-5kem-leba

Cited by 83 publications

(66 citation statements)

References 7 publications

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“…These were intended to represent the full range of grief responses of participants in the 16 focus groups. These items were then administered to a second sample of 83 spouse caregivers and 83 adult-child caregivers along with the Beck Depression Inventory (Beck et al, 1961), the Anticipatory Grief Scale (Theut et al, 1991), the Caregiver Strain Index (Robinson, 1983), the Caregiver Well-Being Scale-Basic Needs (Berg-Weger, Rubio, & Tebb, 2000;Tebb, 1995), and the Perceived Social Support-Family Questionnaire (Procidano & Heller, 1983). A principal components factor analysis was performed on the 184 caregiver grief items.…”

mentioning

confidence: 99%

Development of a Short Form Inventory to Assess Grief in Caregivers of Dementia Patients

2005

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This article describes the derivation of a short-form of the Marwit-Meuser Caregiver Grief Inventory (MM-CGI), an inventory designed to measure grief in caregivers of persons with progressive dementia. It presents initial reliability and validity data and describes ways to use the inventory both clinically and scientifically. The resulting MM-CGI Short Form, presented here in its entirety, is comprised of 18 items and, like its full-form relative, is self-scoring and yields a Total Grief score and sub-scale scores measuring factors representing Personal Sacrifice Burden, Heartfelt Sadness and Longing, and Worry and Felt Isolation.

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mentioning

confidence: 99%

Development of a Short Form Inventory to Assess Grief in Caregivers of Dementia Patients

2005

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“…In this study anticipatory grief was evaluated by the Anticipatory Grief Scale (AGS) (20). This is a 27-item selfadministered questionnaire assessing reactions to and coping with expected death and can be completed in 10 to 15 minutes.…”

Section: The Anticipatory Grief Scalementioning

confidence: 99%

“…The AGS scale represents the major domains cited in the literature on grief. It was intended for relatives of persons diagnosed with dementia, but the wording could be changed to other disease diagnosis, for example cancer (20). The internal consistency of AGS using Cronbach alpha, the alpha level for the scale has been shown to be good at .84.…”

Section: The Anticipatory Grief Scalementioning

confidence: 99%

Anticipatory Grief among Close Relatives of Patients with Parkinson’s Disease

Johansson¹,

Grimby

2014

PBS

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Several illnesses cause suffering and pre-death grief among close relatives, as in cancer and dementia. This might be the case also at Parkinson's Disease (PD). We aimed at getting grief self-reports of relatives of PD patients using the same instrument (AGS) as in former grief studies to see similarities and differences. Anticipatory Grief Scale (AGS) and questions about background variables were sent to PD caregiver support groups in Sweden to be handed out to the members at their meetings. Close relatives of persons with Parkinson's disease (PD) reported feelings and reactions on the AGS, and the results were compared with those from relatives of dementia patients in a former study also using the AGS. Self-estimations about the duration of illness, the condition at the time for questioning, and the perceived quality of care of the relative with PD were also made. The study showed an overall stressful situation including feelings of missing and longing, inability to accept the terminal fact, preoccupation with the ill, tearfulness, sleeping problems, anger, loneliness, and a need to talk. The PD and dementia groups appeared to show much more anticipatory grief similarities than dissimilarities. The duration of the disease did not influence the grief reactions, which, however, was shown for perceived quality of care as regards irritability and preoccupation thinking of the ill relative. Also the respondents' perception of a bad condition of their relatives showed increased reports on loneliness, a need to talk about the illness, personal dysfunction, and not planning ahead.

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“…Anticipatory Grief Scale (AGS; Theut, Jordan, Ross, & Deutsch, 1991). The AGS is the first self-report questionnaire to measure the construct of anticipatory grief in caregivers of patients with dementia.…”

Section: Participantsmentioning

confidence: 99%