Caregiver-Focused, Web-Based Interventions: Systematic Review and Meta-Analysis (Part 2)

Ploeg, Jenny; Ali, Muhammad Usman; Markle‐Reid, Maureen; Valaitis, Ruta; Bartholomew, Amy; Fitzpatrick‐Lewis, Donna; McAiney, Carrie; Sherifali, Diana

doi:10.2196/11247

Cited by 77 publications

(74 citation statements)

References 50 publications

(109 reference statements)

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…The caregiving responsibilities and associated caregiving-related strain experienced by a sizeable proportion of our faculty population present ample opportunity for collaboration between human resource o ces, wellness programs, and faculty development o ces to address current and future employee caregiving-work con icts and responsibilities. Many of our institutions already offer a variety of resources and there are myriad programs in the community; for example: respite care; sitter/companion programs; home health/visiting nurses; meal preparation; shopping services; chore/task services; nancial planning; caregiver-focused web-based interventions [22]; and online/virtual support groups (e.g., Facebook, Instagram, Twitter). However, there is little evidence documenting the utilization and impact of these programs on faculty outcome measures, such as well-being and burnout or institutional outcomes, such as recruitment, retention, faculty satisfaction, promotion, or retirement.…”

Section: Discussionmentioning

confidence: 99%

A Survey of U.S. Medical School Full-Time Faculty Members Age 55+ One-fifth are caregivers and most report caregiving strain

Skarupski

Roth

Durso

2020

Preprint

View full text Add to dashboard Cite

Background Nearly one-third of medical school faculty members are age 55+. As the global population ages, the prevalence of family caregiving is increasing, yet we know very little about the caregiving experiences of aging faculty members in academic medicine. Faculty caregiving responsibilities coupled with projected physician shortages and burnout will likely impact the workforce. We examined the prevalence of caregiving and concomitant caregiving strain and well-being differences between aging, male and female medical school faculty members.Methods We analyzed data from a survey of 2,126 full-time medical school faculty 55 + years of age conducted in 2017. We used chi-square tests of independence and independent samples t-tests to calculate statistical differences between groups.Results Of the faculty members invited to participate, 40.8% completed the survey (N = 2,126). Most were male (1,425; 67.2%), white (1,841; 88.3%), and married/partnered (1,803; 85.5%). The mean age was 62.3 years. Of this sample, 19.0% reported providing care on an on-going basis to a family member, friend, or neighbor with a chronic illness or disability (17.3% [n = 242] of the 1,425 males and 22.4% [n = 154] of female respondents). Among the 396 caregiving faculty members, 90.2% reported experiencing some or a lot of mental or emotional strain from caregiving. Compared to their female faculty caregiver counterparts, males were older (mean age 62.3 years vs. 60.0) and more likely to be married and not living alone.Conclusion These data highlight caregiving responsibilities and significant concomitant mental or emotional strain of a significant proportion of U.S. medical schools’ rapidly aging workforce. Human resource leaders in academic medicine should increase attention to these expanding needs.

show abstract

Section: Discussionmentioning

confidence: 99%

A Survey of U.S. Medical School Full-Time Faculty Members Age 55+ One-fifth are caregivers and most report caregiving strain

Skarupski

Roth

Durso

2020

Preprint

View full text Add to dashboard Cite

show abstract

“…The reviews all conclude that content, structure and duration differ markedly between the reported interventions, which included various designs; online support groups, informational websites, websites combined with telephone support or email support, and websites combined with exchange with other caregivers online. Altogether, the reviews report a range of improved family caregiver outcomes, such as increased knowledge, self-efficacy, self-esteem, coping skills, wellbeing and reduced anxiety, depression, stress, strain, and burden [26]. Overall, the reviews conclude that web-based family caregiver interventions can be beneficial in offering information and support, but more research is needed.…”

Section: Introductionmentioning

confidence: 95%

“…The use of web-based interventions to support family caregivers has increased lately. A total of 12 systematic literature reviews [26][27][28][29][30][31][32][33][34][35][36][37] report on various web-based interventions, half of them focusing on family caregivers of patients diagnosed with dementia, and the others focusing on caregivers of patients affected by cancer or chronic conditions. The reviews all conclude that content, structure and duration differ markedly between the reported interventions, which included various designs; online support groups, informational websites, websites combined with telephone support or email support, and websites combined with exchange with other caregivers online.…”

Section: Introductionmentioning

confidence: 99%

“…The strained situation for family caregivers of patients affected by severe illness and in need of a palliative care approach is by now known, and the positive influence of feeling prepared has now been proven [26]. Several webbased interventions to support family caregivers have been developed and are reported to have positive outcomes and improvements for family caregivers.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Increasing preparedness for caregiving and death in family caregivers of patients with severe illness who are cared for at home – study protocol for a web-based intervention

et al. 2020

View full text Add to dashboard Cite

Background: Family caregivers of patients with severe illness and in need for a palliative care approach, face numerous challenges and report having insufficient preparedness for the caregiver role as well as a need for information and psychosocial support. Preparing to care for a severely ill family members also means becoming aware of death. Feelings of being prepared are associated with positive aspects and regarded protective against negative health consequences. Methods: The study adheres to the SPIRIT-guidelines (Supplementary 1), uses a pre-post design and include a webbased intervention. Inclusion criteria are; being a family caregiver of a patient with severe illness and in need of a palliative care approach. The intervention which aims to increase preparedness for caregiving and death is grounded in theory, research and clinical experience. The topics cover: medical issues, symptoms and symptom relief; communication within the couple, how to spend the time before death, being a caregiver, planning for the moment of death and; considerations of the future. The intervention is presented through videos and informative texts. The website also holds an online peer-support discussion forum. Study aims are to: evaluate feasibility in terms of framework, content, usage and partners' experiences; explore how the use of the website, influences family caregivers' preparedness for caregiving and death; explore how the use of the website influences family caregivers' knowledge about medical issues, their communication with the patient and their considerations of the future; and to investigate how the family caregivers' preparedness for caregiving and death influences their physical and psychological health and quality of life 1 year after the patient's death. Data will be collected through qualitative interviews and a study-specific questionnaire at four time-points.

show abstract

“…7Various systematic reviews suggest that web-based interventions may result in a range of improved health outcomes for caregivers, including reductions in depression, stress, distress and anxiety. (8)(9)(10)(11) Other studies have identi ed that greater public education is needed for caregivers, and improved mechanisms are needed for busy clinicians to provide caregiver education. (12) We developed iGeriCare (www.igericare.ca), a multimodal e-learning intervention to help educate family caregivers of people with dementia.…”

Section: Introductionmentioning

confidence: 99%

Barriers and Facilitators to Implementing Web-Based Dementia Caregiver Education from the Clinician's Perspective: A Qualitative Study

Levinson¹,

Ayers

Butler

et al. 2020

Preprint

View full text Add to dashboard Cite

Background Internet-based dementia caregiver interventions have been shown to be effective for a range of caregiver outcomes, yet little is known about how best to implement them. We developed iGeriCare, an evidence-based, multimedia, online educational resource for family caregivers of people living with dementia. The objectives of this study were to get feedback and opinions from experts and clinicians involved in dementia care and caregiver education about 1) iGeriCare, and 2) barriers and facilitators to implementing an online caregiver program.Methods We performed semi-structured interviews with individuals who had a role in dementia care/caregiver education in several key stakeholder settings in Southern Ontario, Canada. We queried participants’ perceptions of iGeriCare, caregiver education, the implementation process and their experience with facilitators and barriers. Transcripts were coded and analyzed using a grounded theory approach. The themes that emerged were organized using the Consolidated Framework for Implementation Research (CFIR).Results Twelve participants from a range of disciplines described their perceptions of iGeriCare, and identified barriers and facilitators to implementation of the intervention. The intervention was generally perceived as a high-quality resource for caregiver education and support, with many stakeholders highlighting the relative advantage of a web-based format. The intervention was seen to meet dementia caregiver needs, partially due to its flexibility, accessibility and compatibility within existing clinical workflows. Additionally, the intervention helps to overcome time constraints for both caregivers and clinicians.Conclusions Study findings indicate a generally positive response for the use of internet-based interventions for dementia caregiver education. Results suggest that iGeriCare may be a useful clinical resource to complement traditional face-to-face and print material caregiver education. More comprehensive studies are required to identify the effectiveness and longevity of online caregiver education interventions, and continue to better understand barriers and facilitators with respect to the implementation of technology-enhanced caregiver educational interventions in various healthcare settings.Contributions to the literature· The need for dementia caregiver education has been identified as a priority in numerous provincial, national, and global Dementia Strategies. Research has shown that web-based caregiver education interventions may result in a range of improved health outcomes for caregivers, including reductions in depression, stress, distress and anxiety.· Opinion leaders in dementia care were generally enthusiastic about implementing high quality web-based dementia caregiver education. · Our findings contribute to the gaps in the literature, including barriers and facilitators into implementation of web-based caregiver educational resources in traditional clinical workflows.

show abstract

Caregiver-Focused, Web-Based Interventions: Systematic Review and Meta-Analysis (Part 2)

Cited by 77 publications

References 50 publications

A Survey of U.S. Medical School Full-Time Faculty Members Age 55+ One-fifth are caregivers and most report caregiving strain

A Survey of U.S. Medical School Full-Time Faculty Members Age 55+ One-fifth are caregivers and most report caregiving strain

Increasing preparedness for caregiving and death in family caregivers of patients with severe illness who are cared for at home – study protocol for a web-based intervention

Barriers and Facilitators to Implementing Web-Based Dementia Caregiver Education from the Clinician's Perspective: A Qualitative Study

Contact Info

Product

Resources

About