Caregiver Comorbidities and Anxiety are Related to Caregiver Quality of Life: Findings from the Sustaining QualIty of Life of the Aged: HT or MCS Study

Petty, Michael; Yao, Xiaoling; Andrei, Adin Cristian; Warzecha, Anna; Kao, Andrew; Hsich, Eileen; Dew, Mary Amanda; Kormos, Robert L.; Pham, Duc Thinh; Yancy, Clyde W.; LaRue, Shane J.; Cotts, William; Pamboukian, Salpy V.; Pagani, Francis D.; Lamnpert, B.; Johnson, Maryl R.; Murray, Margaret; Tekeda, K.; Yusefpolskaya, M.; Silvestry, Scott C.; Spertus, John A.; Kirklin, James K.; Collum, S.C.; Grady, Kathleen

doi:10.1016/j.healun.2020.01.934

Cited by 1 publication

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“…Finally, although caregiver HRQoL was described using the EQ-5D in 3 studies, 24,51,55 none provided the related utility estimates that can be calculated from the completion of the EQ-5D. As utility data may be used in economic modeling exercises, this represents an important gap for understanding the entire range of potential effects of new treatments for HF.…”

Section: Discussionmentioning

confidence: 99%

“…32 Assessments of HRQoL using the EQ-5D visual analog scale were described in 3 studies (scores ranging from a mean [SD] of 52.9 [8.2] among caregivers of patients with ventricular assist devices 24 to 83.8 [14.0] among caregivers of patients with advanced HF). 55 Patient-Reported Outcomes Measurement Information System scores were described in 2 studies, where one used the Global Physical and Mental Health modules and the other used the Fatigue and Pain Interference measures. 28,49 Quality Assessment Among the 5 studies 29,31,35,42,56 that reported clinical trials and were assessed using the Cochrane Risk of Bias tool, 19 the overall risk of bias was moderate.…”

Section: Caregiver Burdenmentioning

confidence: 99%

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Impact of Caring for Individuals With Heart Failure in the United States

et al. 2023

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BACKGROUND: Given the functional impairments and complex care routines associated with heart failure (HF), patients often rely on the support of informal caregivers. Although the importance of caregivers' roles is widely recognized, the intensity and time required for care duties may negatively impact caregiver health and well-being, potentially precipitating their own need for care. OBJECTIVE: The aim of this study was to synthesize estimates of economic, clinical, burden, and health-related quality-of-life impact among caregivers of those with HF in the United States. METHODS: A systematic review was conducted to identify studies reporting estimates of caregiver impact. Abstract and full-text review as well as data extraction were performed according to established guidelines. Patient and caregiver characteristics were summarized, as well as estimates of impact of caring for those with HF. RESULTS: From 3680 abstracts, 44 studies reporting caregiver burden estimates were included. Mean caregiver age ranged from 41.4 to 71.4 years; caregivers were primarily female (range, 49%-100%) and the patient's spouse/partner (21%-100%). Time spent caregiving (6 studies) ranged from 2 to 52 h/wk, and depression was identified in up to 40% of caregivers (9 studies). Numerous instruments were used to measure burden, which consistently documented the high impact of caregiving. CONCLUSIONS: This review demonstrates the multifaceted impact of caregiving for patients with HF. Despite limited data, notable findings included the considerable burden to caregivers, variability in time spent caregiving, and frequent experience of depression among caregivers, possibly leading to increased healthcare resource use. Future research is needed to better characterize the caregiving impact in HF, including evaluating the drivers of burden.

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Section: Discussionmentioning

confidence: 99%