Caregiver burden in older adults with bipolar disorder: relationship to functionality and neuropsychiatric symptoms

Santos, Glenda Dias dos; Forlenza, Orestes Vicente; Ladeira, Rodolfo Braga; Aprahamian, Ivan; Almeida, Jurandy; Lafer, Beny; Nunes, Paula

doi:10.1111/psyg.12241

Cited by 16 publications

(11 citation statements)

References 55 publications

(70 reference statements)

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“…The sociodemographic and professional profile of the caregivers is similar to that identified in other studies in the literature (15)(16)(17) . The mean age of 47.82 years old was similar to Brazilian studies (15)(16)(17) . However, in international studies, the mean age diverges to around 60 years old (18)(19) .…”

Section: Discussionsupporting

confidence: 76%

Effectiveness of an educational intervention on knowledge-attitude-practice of older adults’ caregivers

et al. 2018

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Section: Discussionsupporting

confidence: 76%

Effectiveness of an educational intervention on knowledge-attitude-practice of older adults’ caregivers

et al. 2018

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“…The studied caregivers suffered a high burden; the mean score of Zarit burden scale was 55.20 ± 9.82. This rate is higher than that detected among caregivers of bipolar disorder patients in Brazil (32.0 ± 19) and in caregivers of patients with schizophrenia in Iran (51.73 ± 18.23) [ 28 , 29 ]. In contrast, the mean burden score was higher (64.51 ± 12.97) among caregivers of patients with schizophrenia in South America [ 30 ].…”

Section: Discussionmentioning

confidence: 66%

Stigma and burden of mental illness and their correlates among family caregivers of mentally ill patients

Ebrahim

Al-Attar

Gabra

et al. 2020

J. Egypt. Public. Health. Assoc.

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Background and objectives Family caregivers play a curial role in supporting and caring for their mentally ill relatives. Their struggle for facing stigma and shouldering caregiving burden is marginalized, undervalued, and invisible to medical services. This study assessed the stigma and burden of mental illnesses, and their correlates among family caregivers of mentally ill patients. Methods A cross-sectional study design was used to collect data from 425 main family caregivers of mentally ill patients at Assiut University Hospital. A structured interview questionnaire was designed to collect socio-demographic data of both patients and their caregivers. Stigma scale for caregivers of people with mental illness (CPMI) was used to assess the affiliate stigma, while the associative stigma was assessed by the explanatory model interview catalogue stigma scale (EMIC-Stigma scale). The caregivers’ burden was assessed using Zarit burden Interview, and Modified Attitude toward Mental Illness Questionnaire was used to assess caregivers’ knowledge and attitude towards mental illness. Results Bipolar disorder (48%) and schizophrenia/other related psychotic disorders (42.8%) were the most common mental illnesses among the study patients. The mean scores of CPMI total scale, EMIC-Stigma scale, and Zarit Burden scale were 56.80 ± 7.99, 13.81 ± 5.42, and 55.20 ± 9.82, respectively. The significant correlates for affiliate stigma were being parents of patients (ß = 4.529, p < 0.001), having higher associate stigma (ß = 0.793, p < 0.001), and aggressive behavior of mentally ill patients (ß = 1.343, p = 0.038). The significant correlates for associate stigma of the study caregivers were being caregivers’ relatives other than parents (ß = 1.815, p = 0.006), having high affiliate stigma (ß = 0.431, p < 0.001), having poor knowledge and negative attitude towards mental illness (ß = − 0.158, p = 0.002), and aggressive behavior of mentally ill relatives (ß = 1.332, p = 0.005). The correlates for the high burden were being male (ß = 3.638, p = 0.006), non-educated caregiver (ß = 1.864, p = 0.045), having high affiliate stigma (ß = 0.467, p < 0.001), having high associative stigma (ß = 0.409, p < 0.001), having poor knowledge and negative attitude toward mental illness (ß = − 0.221, p = 0.021), seeking traditional healers and non-psychiatrist’s care from the start (ß = 2.378, p = 0.018), and caring after young mentally ill relatives (ß = − 0.136, p = 0.003). Conclusion The studied caregivers suffered from stigma and a high level of burden. Psycho-educational programs directed toward family caregivers are highly recommended.

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“…We hypothesized that the distress of the married family caregivers during the patient’s crisis may lead to a decrease of the quality of life and/or the marital satisfaction of these caregivers. Nevertheless, investigations carried out in Brazil have focused on the burden of married family caregivers of patients with mental disorders, leaving a gap in the field of marital satisfaction and QoL [18,19,20]. It is also unclear which factors could improve QoL and marital satisfaction for them.…”

Section: Introductionmentioning

confidence: 99%

Factors Associated with Marital Satisfaction and Quality of Life in Family Caregivers of Patients with Mental Disorders

Nogueira

Minamisava

Teles

et al. 2019

IJERPH

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(1) Background: The aim of this research was to analyze factors associated with quality of life (QoL) and marital satisfaction in married family caregivers of patients with mental disorders. (2) Methods: A cross-sectional study was conducted in all community mental health services in Goiania municipality, Brazil, in 2016–2017. Married family caregivers of patients with severe and persistent mental disorders were recruited and their QoL and marital satisfaction was assessed by using the World Health Organization Quality of Life Instrument Abbreviated version (WHOQOL-BREF) and Marital Satisfaction Scale. Multiple linear regressions were performed to identify factors associated with QoL and marital satisfaction. (3) Results: For 163 family caregivers, the psychological and environmental QoL domains presented the best and the worst scores, respectively. Factors independently associated with better QoL for caregivers were male caregiver, the younger age of a caregiver, >8 years of schooling, ≥5 years as a caregiver who performed physical activities, caregiver without chronic disease, and no patient’s crisis in the last 30 days. Factors independently associated with marital satisfaction of the caregiver were male caregiver, caregiver with >8 years of schooling, caregiver who received support by relatives to care for the patient, caregiver who performed physical activities, no patient’s crisis in the last 30 days, and patient hospitalization in the last six months; (4) Conclusions: The main predictor for marital satisfaction was support by relatives, and for QoL it was no patient’s crisis in the last 30 days.

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Caregiver burden in older adults with bipolar disorder: relationship to functionality and neuropsychiatric symptoms

Cited by 16 publications

References 55 publications

Effectiveness of an educational intervention on knowledge-attitude-practice of older adults’ caregivers

Effectiveness of an educational intervention on knowledge-attitude-practice of older adults’ caregivers

Stigma and burden of mental illness and their correlates among family caregivers of mentally ill patients

Factors Associated with Marital Satisfaction and Quality of Life in Family Caregivers of Patients with Mental Disorders

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