Caregiver Burden for People with Schizophrenia in Medan, Indonesia

Nuraini, Tengku; Tumanggor, Roxsana Devi; Hungerford, Catherine; Lees, David; Cleary, Michelle

doi:10.1080/01612840.2020.1847223

Cited by 18 publications

(21 citation statements)

References 21 publications

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“…As before we are also interested in recruiting su cient healthcare workers to determine whether they can be adequately trained to provide such an intervention in its intended format. 4. Abbreviations NGO = non-governmental organisation…”

Section: Discussionmentioning

confidence: 99%

“…High treatment gaps contribute signi cantly to illness burden; less than a third of those who develop schizophrenia access treatment in lower resource settings (3). In Indonesia, as in other lower resource settings, people with schizophrenia are often wholly reliant on family caregivers for daily care and support (4,5). Fewer resources, poor infrastructure and a lack of trained professionals to deliver evidence-based care are prominent external factors that lead to increased caregiver burden (6).…”

Section: Introductionmentioning

confidence: 99%

“…Fewer resources, poor infrastructure and a lack of trained professionals to deliver evidence-based care are prominent external factors that lead to increased caregiver burden (6). Caregivers often attribute supernatural causes to mental illnesses in Indonesia and seek care from traditional healers or shamans (4).…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Culturally Adapted Family Intervention for People With Schizophrenia in Indonesia (FUSION): A Development and Feasibility Study Protocol

Renwick

Susanti

Brooks

et al. 2021

Preprint

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Background Mental illnesses comprise the single largest source of health-related economic burden globally and low-and middle-income countries are disproportionately affected. The majority of people with schizophrenia who need treatment do not receive it and are often wholly reliant on family caregivers for daily care and support. Family interventions have an exceptionally robust evidence base for their efficacy in high resource settings, but it is unknown whether they can produce equivalent effects in some low resource settings where cultural beliefs, explanatory models of illness and contextual socio-economic issues differ. Methods This protocol describes methods to culturally adapt and refine an evidence-based, family intervention for relatives and caregivers of people with schizophrenia in Indonesia. The feasibility and acceptability of implementing an adapted, co-produced intervention via task-shifting in primary care settings will be evaluated using the Medical Research Council framework for complex interventions. The development and preliminary testing of the adapted intervention will occur in three phases utilising mixed methods; stakeholder and key informant interviews will inform consensus workshops using nominal group techniques to develop a testable intervention. The feasibility of testing the intervention in a larger trial and the acceptability of the intervention will be explored in a feasibility trial of adapted family interventions compared to standard treatment. Participants in Phase 1 consultation groups will comprise service-users (n = 10-15), carers (n=10-15) and key stakeholders including lay and healthcare workers (n=10-15) and semi-structured interviews with key informants to identify implementation challenges and facilitators (n= 10). Phase 2 participants will include expert stakeholders including experts by experience to achieve consensus on the essential elements of the intervention (n = 20) and a separate group to develop training methods and materials for our task-shifted intervention. Phase 3 will comprise 60 carer-service-user dyads participating in a randomised feasibility trial. Discussion National healthcare policy in Indonesia supports the delivery of mental health services in a complex network of primary care centres. This study will provide important information on the feasibility of delivering family interventions for people with schizophrenia via task-shifting in primary care settings in Indonesia.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Culturally Adapted Family Intervention for People With Schizophrenia in Indonesia (FUSION): A Development and Feasibility Study Protocol

Renwick

Susanti

Brooks

et al. 2021

Preprint

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“…Caregiver dalam mengasuh penderita skizofrenia butuh rasa sabar dan waktu yang panjang karena termasuk penyakit yang kronis. Caregiver terbukti lebih banyak menghabiskan waktuhal ini menjadi beban tersendiri seperti beban berupa beban fisik, psikologis dan sosial (Nuraini et al, 2020). Penelitian yang dilakukan oleh (Von Kardorff et al, 2015) menyebutkan bahwasanya caregiver yang mengasuh klien skizofrenia mengalami beban fisik yang cukup menganggu.…”

Section: Pendahuluanunclassified

“…Data lebih lanjut terkait karakteristik responden bisa dilihat pada tabel dibawah ini. (Nuraini et al, 2020). Selain itu, stres yang dialami caregiver yang merawat pasien skizofrenia dalam kurun waktu 1-4 tahun mengalami stres ringan berjumlah 2 orang (50%) dan 2 responden tidak mengalami stres (50%).…”

Section: Hasilunclassified

Stres dan Kualitas Tidur Caregiver dalam Merawat Pasien Skizofrenia di Poliklinik RSJ Bina Karsa Kota Medan

Tumanggor

Marhamah

2021

JKM

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Family caregiver is the primary care provider for family members with spesific illness. It is often the caregiver experiences stress and sleep disturbances during the caregiving process. This research is a descriptive study which aims to analyze the stress and sleep quality of caregivers in caring for schizophrenia patients at the Polyclinic of the Bina Karsa Psychiatric Hospital / RSJ Bina Karsa Kota Medan. The study population was 442 caregiver patients with schizophrenia who accompanied the patient routine control from April to May 2019. 40 samples were involved with purposive sampling technique. The criteria of caregiver for schizophrenia patients were the family caregiver (father, mother, children, siblings, husband/wife etc.), provide care for 1-4 years, lived in Medan and patients is the recurrent patients. The instruments in this study were a demographic data questionnaire, a DASS 42 (Depression Anxiety Stress Scale) questionnaire and an SQQ (Sleep Quality Questionnary) questionnaire. The collected data were then analyzed by descriptive test, Annova test, and Kruskal Walis test. Based on the results of this study, the majority of respondents experienced mild stress 28 people (70%) with an average length of stay of 1 year and 3 months. For the quality of sleep experienced by the caregiver, data was obtained that 24 respondents (60%) experienced poor sleep quality and only 2 respondents (5%) experienced good sleep quality. In 2 respondents who had good sleep quality, the average length of stay was 3 years, 24 respondents had poor sleep quality, the average length of stay was 2 years 5 months, 14 respondents had adequate sleep quality, and the average length of stay was 1 year 10 months. The results of this study can be used as basic data for further assessment of caregivers who are often not a priority in health service policies.

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The effect of a physical activity intervention on burden and healthy lifestyle behavior in family caregivers of patients with schizophrenia: A randomized controlled trial

Lök

Bademli²,

Lök³

2023

Archives of Psychiatric Nursing

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Caregiver Burden for People with Schizophrenia in Medan, Indonesia

Cited by 18 publications

References 21 publications

Culturally Adapted Family Intervention for People With Schizophrenia in Indonesia (FUSION): A Development and Feasibility Study Protocol

Culturally Adapted Family Intervention for People With Schizophrenia in Indonesia (FUSION): A Development and Feasibility Study Protocol

Stres dan Kualitas Tidur Caregiver dalam Merawat Pasien Skizofrenia di Poliklinik RSJ Bina Karsa Kota Medan

The effect of a physical activity intervention on burden and healthy lifestyle behavior in family caregivers of patients with schizophrenia: A randomized controlled trial

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