Caregiver burden experiences of caregivers of patients with schizophrenia: A qualitative inquiry

Abstract

Background: Parents of children with schizophrenia struggle with emotional, social, and economic burdens because they do not receive adequate support and experience difficulties. Aim: To determine the caregiver burden experiences of parents who care for schizophrenic patients and to provide in-depth data on their feelings, thoughts, and opinions on this issue. Methods: In this study, the phenomenological method was used. In-depth interviews were conducted with 13 parents. Maxqda 2020 was used for the analysis of the research data. Results: In our qualitative study, it was concluded that caregivers were stigmatized by their environment, exposed to social isolation, and stigmatized themselves. It has been determined that the social isolation experienced by the parents negatively affects them economically, socially, and emotionally. Conclusion: The results of this study were discussed within the framework of three themes: emotional burden, social burden, and economic burden experienced by caregivers.

Early Maladaptive Schemas and Depression in Caregivers of Individuals With Schizophrenia Spectrum and Bipolar Disorders

“…This is consistent with prior literature suggesting that depressive symptoms are associated with increased feelings of social isolation, a belief of feeling fundamentally flawed, and increased interpersonal difficulties (Hawke and Provencher 2011;Janovsky et al 2020;Renner et al 2013). For caregivers, this risk may be exacerbated by the feelings of isolation instigated by caring responsibilities (Kalayci, Uzunaslan, and Uzunaslan 2022;Speirs, Hanstock, and Kay-Lambkin 2023). The current findings may therefore demonstrate that elevation of schemas in the Disconnection-Rejection domain may contribute to depressive symptoms as a function of increasingly feeling isolated and subsequently flawed.…”

“…2013). For caregivers, this risk may be exacerbated by the feelings of isolation instigated by caring responsibilities (Kalayci, Uzunaslan, and Uzunaslan 2022; Speirs, Hanstock, and Kay‐Lambkin 2023). The current findings may therefore demonstrate that elevation of schemas in the Disconnection‐Rejection domain may contribute to depressive symptoms as a function of increasingly feeling isolated and subsequently flawed.…”

The Unseen: Burden in Caregivers of Patients With Schizophrenia in a Tertiary Care Institute

“…The majority (75%) of caregivers were employed, mirroring findings by Kalayci et al [23]. Among relationships, parents comprised the largest group (42%), followed by siblings (33%) and spouses (20%).…”

“…The study found that caregivers who were older and female reported higher levels of burden than younger or male caregivers. Similar to the studies of Di Sarno et al [19] and Kalayci et al [23], but in contrast to the survey done by Gupta et al [18]. Men are often less involved in hands-on caregiving, contributing to a lack of understanding and practical support for female caregivers.…”