Caregiver burden after receiving a diagnosis of an autism spectrum disorder

Pre-diagnostic and Diagnostic Stages of Autism Spectrum Disorder: A Parent Perspective

“…Logically, professionals and people who know ASD may be better able to direct parents to the right places for evaluation and refer parents to professionals that have a good connection with the autism community. Interestingly, increased contextual support also has been associated with decreased caregiver burden (McGrew & Keyes, 2014;Stuart & McGrew, 2009). …”

Family Climate and Recovery in Adolescent Onset Eating Disorders: A Prospective Study

“…As an example, Dellve, Samuelsson, Tallborn, Fasth, and Hallberg (2006) found that levels of parental stress were high among parents of children with a rare disease but decreased after intensive interventions. Stuart and McGrew (2009), who studied factors impacting caregiver burden following diagnosis of an autism spectrum disorder, found that symptom severity, additional pile-up demands, social support and the use of passive avoidant coping strategies were strong and consistent predictors of increased burden.…”

Positive and Negative Experiences of Parenting a Pre-school Child with 22q11.2 Deletion Syndrome

“…Stuart and McGrew 2009). Initial diagnostic uncertainty and subsequent prognosis is often exacerbated by the demands on family life from chronic or acute medical issues that may arise associated with the particular disability (Stewart and Mishel 2000).…”

“…The most important predictor of parental stress in parents who have a child with an intellectual disability is parental negative attribution of their child's behavioural problems or social acceptance (Saloviita et al 2003). Negative appraisal is associated with higher individual, marital and family burden in parents with a child with autism spectrum disorder (Stuart and McGrew 2009). Conversely, psychological w e l l -b e i n g i s p r o m o t e d t h r o u g h p o s i t i v e a n d problem-focused coping (Pozo et al 2014).…”