Caregiver burden?A critical discussion

Bastawrous, Marina

doi:10.1016/j.ijnurstu.2012.10.005

Cited by 321 publications

(317 citation statements)

References 69 publications

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“…However, the majority of the literature focuses only on a subset of these categories of constructs, and the measurement of these constructs is often limited to only a few of these variables. It has been proven that combining the SPM with other provides a conceptual clarity [21] for modelling caregiving burden. In this study the combination of SPM and TMSC was ustilised to enable intuitive understanding of the stress process.…”

Section: Stress Process Modellingmentioning

confidence: 99%

Caregiver attributes and socio-demographic determinants of caregiving burden in selected low-income communities in cape town, South Africa

Yakubu

Schutte

2018

J of Compassionate Health Care

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Background: Informal caregivers play an important role in the well-being of dependent members in a household. Yet, literature on female caregiver burden in low-income and middle-income countries is scanty. This study examines the socio-demographic and socio-economic determinants of female caregiver burden in Cape Town, South Africa. Methods: The cross-sectional study involved 100 black/African and 100 coloured female caregivers selected through a systematic random sampling procedure in two different cultural communities. The study instrument assessed caregiver burden with both objective and subjective measures through the use of a fully structured questionnaire. Chi-square tests and correlation analysis were used to examine the association between background characteristics and female caregiver burden. Results:The results showed that a large proportion of caregivers (49.5%) were in the age group of 50-59 years. The majority of the respondents were in care tasks as a full time job, providing more than 40 h of care per week. Statistical significant associations were found between the socio-demographic characteristics of female caregivers (such as age, education, population group and income status) and the physical health status of the care recipients. Further, physical health of care recipients and social grants showed strong, statistically significant positive correlations with caregiver burden. Conclusions: The study recommends the government to recognise the importance of physical health of the care recipients and increase the amounts of social grants to the caregivers since this could improve the standard of living of both the care recipients and caregivers.

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Section: Stress Process Modellingmentioning

confidence: 99%

Caregiver attributes and socio-demographic determinants of caregiving burden in selected low-income communities in cape town, South Africa

Yakubu

Schutte

2018

J of Compassionate Health Care

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“…Where prevailing notions assume that caregiver stress and burden are the results of providing PwDs with functional assistance (critiqued by Roth et al, 2015) and managing PwDs’ “behaviours” (critiqued by Dupuis, Wiersma, & Loiselle, 2012b), our study asserts an alternative explanation that stresses the consequences of limited family support and inadequate home and institutional care supports. Others have similarly charged the dominant construction of burden as imprecisely understanding the sources of stress (Roth et al, 2015) and burden (Bastawrous, 2013), and neglecting important structural factors that produce negative consequences for family care partners (Lilly et al, 2011; Singh et al, 2014; Ward-Griffin et al, 2012). While the mismatched logics between informal and formal care systems (Singh et al, 2014) and diminishing formal care support (Ward-Griffin et al, 2012) have been documented, our study adds two novel insights.…”

Section: Discussionmentioning

confidence: 99%

Sustaining care for a parent with dementia: an indefinite and intertwined process

Hwang

Rosenberg

Kontos

et al. 2017

International Journal of Qualitative Studies on Health and Well

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This study aimed to understand how adult children sustain caring for persons with dementia (PwDs) within their family and formal care contexts in Canada. Half-day focus groups were conducted with adult daughters and adult sons in Toronto, Canada. Using constructivist grounded theory, we examined both substantive concepts and group dynamics. Sustaining care was interpreted as an indefinite process with three intertwined themes: reproducing care demands and dependency, enacting and affirming values, and “flying blind” in how and how long to sustain caring (i.e., responding to immediate needs with limited foresight). Family values and relationships, mistrust toward the institutional and home care systems, and obscured care foresight influenced care decisions and challenged participants in balancing their parents’ needs with their own. Positive and negative aspects of care were found to influence one another. The implications of these findings for research and policy are discussed.

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“…Although the tools used had psychometric properties or were in the process of being validated, in some cases insufficiently detailed descriptive statistics were presented. In addition, quantitative measures are largely used to capture caregiver burden, which can be inadequate in identifying certain factors that are important such as culture (Bastawrous, 2013). Only two of the studies adopted a longitudinal design and some studies recognised spouses and partners as one category whilst others did not.…”

Section: Discussionmentioning

confidence: 99%

Measuring carer burden in informal carers of patients with long-term conditions

Kudra

Lees

Morrell-Scott

2017

Br J Community Nurs

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Introduction: The aim of this literature review is to identify the most common tools used to measure burden in carers of people with Parkinson's Disease (PD), Heart Failure (HF), Multiple Sclerosis (MS) and Chronic Obstructive Pulmonary Disease (COPD).Method: Databases such as Medline, PsycINFO, CINAHL and Academic SearchComplete were searched. Studies in which carer burden was measured were included.Results: Zarit Burden Inventory and Caregiver Reaction Assessment were most commonly used to measure carer burden, regardless of the chronic condition. A wide range of other instruments were also used. Conclusion: Even though a range of tools are available, further improvements are necessary in order to enable healthcare professionals to identify carers experiencing high burden.

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Caregiver burden?A critical discussion

Cited by 321 publications

References 69 publications

Caregiver attributes and socio-demographic determinants of caregiving burden in selected low-income communities in cape town, South Africa

Caregiver attributes and socio-demographic determinants of caregiving burden in selected low-income communities in cape town, South Africa

Sustaining care for a parent with dementia: an indefinite and intertwined process

Measuring carer burden in informal carers of patients with long-term conditions

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