CareD: Non-Pharmacological Assistance for Dementia Patients

Siddiq, Kainat; Bawany, Narmeen Zakaria; Qamar, Tehreem; Naveed, Ayesha; Arif, Bisma; Usman, Mariam; Jamal, Mehek

doi:10.4108/eai.13-7-2018.160073

Cited by 5 publications

(13 citation statements)

References 18 publications

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“…On the other hand, many mHealth applications have been designed for AD patients to perform cognitive tests for AD diagnosis themselves. For example, some mHealth applications have been designed to evaluate and help enhance the cognitive skills of the patients through exercises and problems 22 , 24 . Our review can be used to guide the design and development of mHealth applications to provide comprehensive support for caregivers of AD patients.…”

Section: Discussionmentioning

confidence: 99%

“…Tracking of the AD patient was featured in 9 out of the 12 (75%) applications [18][19][20][21][22][23][24][25][26] . The most identifiable symptom of AD is forgetfulness and memory loss.…”

Section: Trackingmentioning

confidence: 99%

“…AD patients are at risk of getting lost and not being able to find their way back home. Eight applications track the patient's current location, allowing caregivers to check at any given time [19][20][21][22][23][24][25][26] . Only one application, AlzSense, offered tracking by keeping a history of the patient's location changes by date and time 18 .…”

Section: Trackingmentioning

confidence: 99%

“…Features that help task management of caregivers were included in 8 out of 12 (66.7%) applications 19,20,[22][23][24][25]27,28 . As AD progresses and the patient becomes increasingly dependent on the caregiver to carry out daily activities, the caregiver is burdened with essential tasks for two people.…”

Section: Task Managementmentioning

confidence: 99%

“…These applications would send an automatic task reminder alert to the caregiver. The other two applications, CareD and the application by A. Ghanem et al, 20,22 require the caregivers to set up reminders for the patients. For example, the caregivers would set up timed alerts for when the patient should take medications or perform a daily task.…”

Section: Task Managementmentioning

confidence: 99%

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Scoping review: the empowerment of Alzheimer’s Disease caregivers with mHealth applications

et al. 2021

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Alzheimer’s Disease (AD) is one of the most prevalent neurodegenerative chronic diseases. As it progresses, patients become increasingly dependent, and their caregivers are burdened with the increasing demand for managing their care. Mobile health (mHealth) technology, such as smartphone applications, can support the need of these caregivers. This paper examines the published academic literature of mHealth applications that support the caregivers of AD patients. Following the PRISMA for scoping reviews, we searched published literature in five electronic databases between January 2014 and January 2021. Twelve articles were included in the final review. Six themes emerged based on the functionalities provided by the reviewed applications for caregivers. They are tracking, task management, monitoring, caregiver mental support, education, and caregiver communication platform. The review revealed that mHealth applications for AD patients’ caregivers are inadequate. There is an opportunity for industry, government, and academia to fill the unmet need of these caregiver.

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Section: Discussionmentioning

confidence: 99%

“…Tracking of the AD patient was featured in 9 out of the 12 (75%) applications [18][19][20][21][22][23][24][25][26] . The most identifiable symptom of AD is forgetfulness and memory loss.…”

Section: Trackingmentioning

confidence: 99%

Section: Trackingmentioning

confidence: 99%

Section: Task Managementmentioning

confidence: 99%

Section: Task Managementmentioning

confidence: 99%

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Scoping review: the empowerment of Alzheimer’s Disease caregivers with mHealth applications

et al. 2021

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The participatory value-sensitive design (VSD) of a mHealth app targeting citizens with dementia in a Danish municipality

et al. 2023

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Researched Apps Used in Dementia Care for People Living With Dementia and Their Informal Caregivers: Systematic Review on App Features, Security, and Usability

Ye,

Chu,

Bayat

et al. 2023

J Med Internet Res

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Background Studies have shown that mobile apps have the potential to serve as nonpharmacological interventions for dementia care, improving the quality of life of people living with dementia and their informal caregivers. However, little is known about the needs for and privacy aspects of these mobile apps in dementia care. Objective This review seeks to understand the landscape of existing mobile apps in dementia care for people living with dementia and their caregivers with respect to app features, usability testing, privacy, and security. Methods ACM Digital Library, Cochrane Central Register of Controlled Trials, Compendex, Embase, Inspec, Ovid MEDLINE, PsycINFO, and Scopus were searched. Studies were included if they included people with dementia living in the community, their informal caregivers, or both; focused on apps in dementia care using smartphones or tablet computers; and covered usability evaluation of the app. Records were independently screened, and 2 reviewers extracted the data. The Centre for Evidence-Based Medicine critical appraisal tool and Mixed Methods Appraisal Tool were used to assess the risk of bias in the included studies. Thematic synthesis was used, and the findings were summarized and tabulated based on each research aim. Results Overall, 44 studies were included in this review, with 39 (89%) published after 2015. In total, 50 apps were included in the study, with more apps developed for people living with dementia as end users compared with caregivers. Most studies (27/44, 61%) used tablet computers. The most common app feature was cognitive stimulation. This review presented 9 app usability themes: user interface, physical considerations, screen size, interaction challenges, meeting user needs, lack of self-awareness of app needs, stigma, technological inexperience, and technical support. In total, 5 methods (questionnaires, interviews, observations, logging, and focus groups) were used to evaluate usability. There was little focus on the privacy and security aspects, including data transfer and protection, of mobile apps for people living with dementia. Conclusions The limitations of this review include 1 reviewer conducting the full-text screening, its restriction to studies published in English, and the exclusion of apps that lacked empirical usability testing. As a result, there may be an incomplete representation of the available apps in the field of dementia care. However, this review highlights significant concerns related to the usability, privacy, and security of existing mobile apps for people living with dementia and their caregivers. The findings of this review provide a valuable framework to guide app developers and researchers in the areas of privacy policy development, app development strategies, and the importance of conducting thorough usability testing for their apps. By considering these factors, future work in this field can be advanced to enhance the quality and effectiveness of dementia care apps. Trial Registration PROSPERO CRD42020216141; https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=216141 International Registered Report Identifier (IRRID) RR2-10.1159/000514838

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CareD: Non-Pharmacological Assistance for Dementia Patients

Cited by 5 publications

References 18 publications

Scoping review: the empowerment of Alzheimer’s Disease caregivers with mHealth applications

Scoping review: the empowerment of Alzheimer’s Disease caregivers with mHealth applications

The participatory value-sensitive design (VSD) of a mHealth app targeting citizens with dementia in a Danish municipality

Researched Apps Used in Dementia Care for People Living With Dementia and Their Informal Caregivers: Systematic Review on App Features, Security, and Usability

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