Care partner dyad strategies to support participation in community mobility

Womack, Jennifer L.; Isaksson, Gunilla; Lilja, Margareta

doi:10.3109/11038128.2015.1126349

Cited by 11 publications

(11 citation statements)

References 32 publications

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“…To the best of our knowledge, this perspective has never been studied previously. An important viewpoint offered by the professionals was the need to consider social–relational aspects when promoting participation which concurs with previous studies from the perspectives of spousal caregivers and couples . Knowledge developed from this study support ideas about participation as involving meaningful experiences that are contextually situated .…”

Section: Discussionsupporting

confidence: 84%

“…Previous research addressing couples' own strategies to support participation points to the importance of considering social-relational aspects (3,6). Nevertheless, to our knowledge, few studies have addressed couples' perspectives on participation and the way in which participation could be promoted, which makes this an area in need of more research.…”

Section: Discussionmentioning

confidence: 99%

“…Research has shown how older couples’ everyday activities are closely related during different phases of their lives when experiencing declining health and the way in which their relationship might change when one partner suffers declining health due to, for example, dementia or stroke . Using formal support to manage everyday life is one solution that can involve both opportunities and limitations in everyday life management .…”

Section: Introductionmentioning

confidence: 99%

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Healthcare professionals’ perspective on how to promote older couples’ participation in everyday life when using respite care

Riekkola

Rutberg

Lilja

et al. 2018

Scandinavian Caring Sciences

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Aims The aim is to describe healthcare professionals’ perspectives on how they understand and promote older couples’ participation in everyday life when using residential respite care. Design and Methods Eighteen healthcare professionals with varying degrees of competence and from one residential respite care facility participated in four focus group interviews. Data were analysed through qualitative latent content analysis. Findings The findings revealed a broad, multifaceted view of participation and ways in which participation in everyday life is promoted by these professionals. Trustworthy relationships between professionals, spousal caregivers and clients were implicated. Promoting participation also necessitated that clients have access to meaningful activities. In addition, participation entailed an environment that supported various needs. Conclusion Promoting participation for older couples that are using respite care involves multifaceted perspectives that consider social–relational aspects including both the client and their spouse. Furthermore, attention is needed to the meaning a change of context between home and the respite care facility has on relationships, environments and activities in everyday life. Such an approach could benefit the couples’ shared everyday life situation and in a wider perspective, also influence their health and well‐being when ageing in place together.

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Section: Discussionsupporting

confidence: 84%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Healthcare professionals’ perspective on how to promote older couples’ participation in everyday life when using respite care

Riekkola

Rutberg

Lilja

et al. 2018

Scandinavian Caring Sciences

Self Cite

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“…Previous studies reported inconsistent findings regarding the impact of social factors on determining the caregiver's mobility. One study reported that caregivers’ perceived social support was not related to walking speed, one of the common mobility measures (Neri et al., 2012), while another study found a potential role of social connections and support from social networks on the caregiver's ability to move around in the community (Womack, Isaksson, & Lilja, 2016). Given the difference in the methodology and measures used in these studies, there is a need to examine the extent to which engagement in social activities and perceived social support affect caregivers’ functional health and mobility.…”

Section: Discussionmentioning

confidence: 99%

Life‐space mobility in dementia patients and family caregivers: A dyadic approach

Chung

Lee

Elswick

2020

Int J Older People Nursing

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Background and objective: Given that most dementia care is provided at home by family caregivers, caregivers' health and outdoor activities may influence persons with dementia (PWDs)' mobility. At the same time, PWDs' functional deterioration and mobility changes might affect mobility behaviours in their caregivers. The aims of this pilot study were to examine the relationship of PWD's life-space mobility (LSM) with their caregiver's LSM and to investigate the role of caregiver and PWD characteristics in determining the level of LSM in both PWDs and caregivers. Design and method: A cross-sectional survey was conducted with 26 caregivers providing dementia care at home. Caregivers were used as proxy for assessing sociodemographic, clinical and physical function in PWDs. Caregivers' sociodemographic characteristics, LSM, social support, depressive symptoms, caregiving burden and preparedness for caregiving were measured. Results: The level of LSM in caregivers was correlated with the PWD's LSM level. Caregivers who perceived high levels of social support and readiness for caregiving tended to report high levels of LSM. PWDs' age and independence in instrumental activities of daily living were correlated with caregivers' LSM. Conclusions: The study findings suggest that the caregiver's LSM influenced and was affected by the PWD's LSM. This underscores the need for additional research that examines the role of caregivers' psychosocial and physical health on PWDs' mobility and the context of dementia care and its influences on how dementia care dyads decide and participate in mobility behaviours. Implications for practice: The findings of this pilot study will be helpful in identifying a target for interventions designed to delay the onset of mobility disability and maintain and improve social participation in PWDs. To minimise the effects of mobility limitations in PWDs, it is critical to examine their mobility issues from multilevel perspectives, including their caregiver's LSM levels and characteristics that have implications for both research and clinical practice.

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“…Previous research has shown that older adults’ community participation frequently involves riding with, running errands for, and generally coordinating within close relationships (Heatwole Shank & Cutchin, 2016). There is increasing attention to the joint nature of community mobility among older dyads (e.g., Womack, Isaksson, & Lilja, 2016), particularly focusing on how couples learn new strategies (Vrkljan, 2011), solve problems or “adapt” as a unit (Dixon, 2011; Kimbler & Margrett, 2009), and find meaning in the shared occupation (van Nes, Jonsson, Hirschler, Abma, & Deeg, 2012).…”

Section: Introductionmentioning

confidence: 99%

Geospatial Mapping of Late-Life Couplehood: Dimensions of Joint Participation

Shank

Presgraves

2018

OTJR: Occupation, Participation and Health

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For older adults aging in place, community mobility affects a constellation of interconnected occupations and can become a problematic aspect of the person-place relationship. The purpose of this research was to examine an older couple's mutually negotiated change in their community mobility and navigation patterns. Spatial data (using global positioning system [GPS] trackers), maps, activity logs, interviews, and well-being measures were collected longitudinally for both members of a longmarried community-dwelling couple. Analyses showed changing patterns of occupational engagement and declining navigation and function over time, as well as three dimensions of joint navigation (intersection of health and abilities, perpetuation of long-term roles through participation, and an orientation toward future potentialities). Findings suggest that joint community navigation is multidimensional and may buffer individual functional losses as well as maximize perception of and performance in meaningful activities. This study also demonstrates the utility of mapping methods to better understand occupation for community-dwelling populations.

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Care partner dyad strategies to support participation in community mobility

Cited by 11 publications

References 32 publications

Healthcare professionals’ perspective on how to promote older couples’ participation in everyday life when using respite care

Healthcare professionals’ perspective on how to promote older couples’ participation in everyday life when using respite care

Life‐space mobility in dementia patients and family caregivers: A dyadic approach

Geospatial Mapping of Late-Life Couplehood: Dimensions of Joint Participation

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