Care or self-care? The impact of informal care provision on health behaviour

Eibich, Peter

doi:10.4054/mpidr-wp-2021-005

Cited by 4 publications

(1 citation statement)

References 35 publications

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“…Informal caregivers of older adults and individuals living with dementia have been reported to experience depressive symptoms, anxiety, and increased levels of stress throughout their role when compared to noncaregivers [7]. Moreover, numerous adverse health outcomes for informal caregivers have been noted across the literature [8][9][10]. Reflecting on the Italian caregiving context, long-term care provision in Italy as well as other Mediterranean countries has been labeled as "familialist" or family-run [11].…”

Section: Introductionmentioning

confidence: 99%

Using the Transformative Storytelling Technique to Generate Empowering Narratives for Informal Caregivers: Semistructured Interviews, Thematic Analysis, and Method Demonstration

Petrovic¹,

Bonanno²,

Landoni³

et al. 2022

JMIR Form Res

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Background The transformative storytelling technique is an innovative top-down approach to narrative therapy that aims to provide building blocks for creating flourishing narratives for target groups or populations. This approach acts as a facilitator for implementing the human-centered design in developing digital self-help tools for larger samples or target groups. Objective This study applied the transformative storytelling technique, as a new approach in mental health, to develop empowering audio narratives for informal caregivers. Methods A narrative inquiry was conducted with 17 informal caregivers (16 women and 1 man) who completed a semistructured interview, “Caregiver Life Story,” acquiring information about the beginning of the role, rising action, and critical point of the role. The participants’ ages ranged from 41 to 84 years, with all participants providing care for at least a 6-month period. This inquiry was guided by the transformative storytelling technique, and aimed to collect data relevant to creating fictional stories based on real-life themes. Results Twenty-five overall themes were distinguished across three a priori–set categories, providing narrative building blocks for the informal caregiver life stories. The final empowering caregiver life story was created as an example for this study, demonstrating the application of the transformative storytelling technique in an informal care context. Conclusions The creation of empowering stories for populations or target groups in mental health care requires a unified and guided approach that will follow clear guidelines and storytelling principles. The transformative storytelling technique is a first of its kind in the mental health context, representing an initial step in enabling and supporting the creation of meaningful stories and the development of relatable, but productive, narratives. Such narratives have the potential to serve across media and digital platforms for supporting and improving well-being, and potentially triggering self-change in the target group or population.

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