Care at the End of Life for Children with Cancer

Bergstraesser, Eva; Flury, Monika

doi:10.1007/978-3-319-61391-8_11

Cited by 5 publications

(2 citation statements)

References 129 publications

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“…Increased sleepiness, changes in respiration, and decreased appetite are salient markers to patients of their own decline [ 49 ]. Importantly, depression, anxiety, and fear are more prevalent among adolescents than in younger children with a terminal diagnosis, likely reflecting their capacity for more abstract thinking [ 50 ]. That said, while some level of distress is a normative and appropriate response to death, suffering, and the unknown, assuming that high anxiety and depression are inevitable is potentially harmful to dying patients as it may decrease team efforts to address these symptoms [ 48 ].…”

Section: Psychological Considerations At the End Of Lifementioning

confidence: 99%

Psychological and Psychiatric Comorbidities in Youth with Serious Physical Illness

et al. 2022

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An estimated one in six children in the United States suffers from a mental disorder, including mood, anxiety, or behavioral disorders. This rate is even higher in children with chronic medical illness. This manuscript provides a concise review of the symptoms that comprise mental conditions often observed in children with chronic illness or at the end of life. It further provides some guidance to help clinicians distinguish normative from pathological presentations. Evidence-based psychotherapy interventions, potentially applicable to the acute inpatient setting, are briefly summarized. Broad recommendations are made regarding both psychotherapeutic as well as pharmacotherapeutic interventions, with a review of common or serious medication side effects. Finally, delirium recognition and management are summarized.

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Section: Psychological Considerations At the End Of Lifementioning

confidence: 99%

Psychological and Psychiatric Comorbidities in Youth with Serious Physical Illness

et al. 2022

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“…Factors that may contribute to heightened death-related anxiety include restricted or veiled information about one’s health status, limited involvement in medical decision making, and fear of poorly controlled physical symptoms (e.g., whether it will hurt when the child dies). Adolescents are more likely than younger children to experience anxiety and depressive symptoms at end of life [ 19 ]. Death anxiety may also reactivate and/or exacerbate premorbid anxiety disorders, such as panic disorder or generalized anxiety disorder [ 18 ].…”

Section: Anticipatory Griefmentioning

confidence: 99%

Current Grief Support in Pediatric Palliative Care

et al. 2021

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Grief support changes as more is learned from current grief theory and research. The authors provide a comprehensive overview of current grief support as it relates to Pediatric Palliative Care (PPC). The following aspects of grief are addressed: (1) anticipatory grief: the nondeath losses that occur with a complex and chronic illness, as well as the time leading up to death; (2) grief around the time of death: the intense and sacred experience of companioning with a dying child; (3) grief after death: supporting bereavement and mourning through programing and other methods; (4) innovative approaches: the future of grief support. The contents of this article are meant to support and educate programs currently providing grief services and those aiming to begin the meaningful work of grief support.

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