Cancer Survivorship: Why Labels Matter

Bell, Kirsten; Ristovski-Slijepcevic, Svetlana

doi:10.1200/jco.2012.43.5891

Cited by 101 publications

(79 citation statements)

References 17 publications

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“…The Kuala Lumpur Qigong Trial for Women in the Cancer Survivorship Phase-Efficacy of a Three-Arm RCT to Improve QOL Siew Yim Loh 1 *, Shing Yee Lee 2 , Liam Murray 3 Ristovski-Slijepcevic, 2013).…”

Section: Research Articlementioning

confidence: 99%

The Kuala Lumpur Qigong Trial for Women in the Cancer Survivorship Phase-Efficacy of a Three-Arm RCT to Improve QOL

Loh¹,

Lee²,

Murray³

2014

Asian Pacific Journal of Cancer Prevention

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Background: Qigong is highly favoured among Asian breast cancer survivors for enhancing health. This study examined the hypothesis that quality of life (QoL) in the Qigong group is better than the placebo (aerobic) or usual care group. Materials and Methods: A total of 197 participants were randomly assigned to either the 8-week Kuala Lumpur Qigong Trial or control groups in 2010-2011. Measurement taken at baseline and postintervention included QoL, distress and fatigue. Analysis of covariance (ANCOVA) and Kruskal Wallis were used to examine for differences between groups in the measurements. Results: There were 95 consenting participants in this 8week trial. The adherence rates were 63% for Qigong and 65% for the placebo group. The Qigong group showed significant marginal improvement in Quality of life scores compared to placebo (mean difference=7.3 unit; p=0.036), compared to usual care (mean difference=6.7 unit; p=0.048) on Functional Assessment Cancer Therapy-Breast measure. There were no significant changes between the placebo and usual care groups in fatigue or distress at post intervention (8-week). Conclusions: Cancer survivors who participated in the Qigong intervention showed slightly better QOL. Follow up studies are greatly needed to evaluate which subgroups may best benefit from Qigong. With a steep rise of cancer survivors, there is an urgent need to explore and engage more cultural means of physical activity to fight side effects of treatment and for cancer control in developing countries.

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Section: Research Articlementioning

confidence: 99%

The Kuala Lumpur Qigong Trial for Women in the Cancer Survivorship Phase-Efficacy of a Three-Arm RCT to Improve QOL

Loh¹,

Lee²,

Murray³

2014

Asian Pacific Journal of Cancer Prevention

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“…Survivorship research emerged to better articulate this experience and offer appropriate care to meet patients' individual needs (Aziz & Rowland, 2003). However, there remain ongoing debates concerning how to accurately conceptualize cancer survival (Bell & Ristovski-Slijepcevic, 2013;Feuerstein, 2007;Khan et al, 2012). Often these differences boil down to issues concerning terminology: who are cancer survivors and what is survivorship?…”

mentioning

confidence: 99%

Reconceptualizing Cancer Survivorship Through Veterans’ Lived Experiences

Martin

Moye

Street

et al. 2014

Journal of Psychosocial Oncology

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This study assessed the biopsychosocial impact of cancer on Veteran older adult survivors by garnering their accounts of their illness experiences. A narrative analysis of 73 cancer diagnosis and treatment stories reveals five "paths" Veterans are taking 18 months postdiagnosis. These paths indicate that cancer survivorship cannot be conceptualized as a one-size-fits-all experience but rather is a process of Veterans understanding and making sense of the effects of cancer on their lives. Our future goal is to develop a screening tool to help clinicians identify a patient's "path" to tailor survivorship care to meet specific needs.

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“…There is also a lack of consensus surrounding the definition of "cancer survivorship," a term often used in tandem with "cancer survivor." Though authors of recent reviews have provided excellent summaries on key concepts related to cancer survivors and cancer survivorship (3,4) , they have not clearly proposed updated definitions of cancer survivor and cancer survivorship based on the literature. In order to move forward in our understanding and ability to determine meaningful intervention targets and outcomes for cancer survivorship care, global consensus should be reached regarding evidence-based definitions of cancer survivor and cancer survivorship.…”

Section: Overviewmentioning

confidence: 99%

“…This statistic is based exclusively on a definition of cancer survivor that only considers 5-year prevalent cancer cases. However, other definitions of "cancer survivor" have been considered over the past several decades (3) . There is also a lack of consensus surrounding the definition of "cancer survivorship," a term often used in tandem with "cancer survivor."…”

Section: Overviewmentioning

confidence: 99%

Defining cancer survivor and cancer survivorship: The who, what, and when

Wronski

2015

Psicooncología

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Over the past three decades various definitions of cancer survivor and cancer survivorship have been proposed. These definitions frequently describe (1) who is considered a cancer survivor and who is experiencing cancer survivorship, (2) what it means to a be survivor and experience survivorship, and (3) when someone is considered a survivor and when survivorship begins. Descriptive epidemiology indicates that certain individuals diagnosed and treated for cancer describe the presence of specific unmet needs following diagnosis and treatment for cancer. Evidence also points to an increased likelihood of cancer recurrence or a new cancer in many cancer patients. These observations should be reflected in the case definitions of cancer survivor and cancer survivorship. This paper reviews the literature for evidence to validate existing definitions of cancer survivor and cancer survivorship and proposes updated definitions for each. Based on this evidence, a cancer survivor is defined as an individual diagnosed with cancer. The period following primary treatment, which is characterized by transitions in care and a need to address the late effects of cancer and its treatment, may be a particularly critical time for the cancer survivor. The definition does not preclude the major involvement of family, friends, caregivers, and providers, but does place the focus on the individual who received the diagnosis Resumen Durante las últimas tres décadas se han propuesto diversas definiciones del superviviente de cáncer y la supervivencia del cáncer. Estas definiciones describen con frecuencia (1) quién se considera un superviviente de cán-cer y quién experimenta la supervivencia del cáncer, (2) lo que significa ser superviviente y la experiencia de sobrevivir, y (3) cuándo se considera que alguien es un superviviente y cuándo comienza a ser un superviviente. La epidemiología descriptiva indica que ciertos individuos diagnosticados y tratados de cáncer describen la presencia de necesidades especí-ficas insatisfechas tras el diagnóstico y tratamiento para el cáncer. Los datos disponibles. apuntan a un aumento de la probabilidad de recurrencia del cáncer o un nuevo cáncer en muchos pacientes con cáncer. Estas observaciones deben reflejarse en las definiciones de caso del superviviente de cáncer y la supervivencia del cáncer. Este artículo revisa los datos relativos a la validez de las definiciones existentes de superviviente de cáncer y supervivencia del cáncer y propone definiciones actualizadas para cada uno. Con base en estos hallazgos, se define como superviviente de cáncer a un individuo diagnosticado con cáncer. El periodo que sigue al tratamiento primario, que se caracteriza por las transiciones en el cuidado y la necesidad de abordar los efectos tardíos del cáncer y su tratamiento, puede ser un momen-

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Cancer Survivorship: Why Labels Matter

Cited by 101 publications

References 17 publications

The Kuala Lumpur Qigong Trial for Women in the Cancer Survivorship Phase-Efficacy of a Three-Arm RCT to Improve QOL

The Kuala Lumpur Qigong Trial for Women in the Cancer Survivorship Phase-Efficacy of a Three-Arm RCT to Improve QOL

Reconceptualizing Cancer Survivorship Through Veterans’ Lived Experiences

Defining cancer survivor and cancer survivorship: The who, what, and when

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