Cancer Prevention and Control Interventions Using Social Media: User-Generated Approaches

Cavallo, David N.; Chou, Wei‐Yang; McQueen, Amy; Ramirez, Amelie G.; Riley, William T.

doi:10.1158/1055-9965.epi-14-0593

Cited by 47 publications

(30 citation statements)

References 22 publications

(22 reference statements)

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“…A growing body of research has shown that AYAs with cancer are comfortable with and interact through multiple modes of in‐person and Web‐based information support . Future research in this area should examine interventions with social media and social networking tools to build peer‐survivor relationships and improve social support for AYAs …”

Section: Discussionmentioning

confidence: 99%

Social well‐being among adolescents and young adults with cancer: A systematic review

Warner

Kent

Trevino

et al. 2016

Cancer

264

255

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BACKGROUND A cancer diagnosis during adolescence or young adulthood may negatively influence social well-being. The existing literature concerning the social well-being of adolescents and young adults (AYAs) with cancer was reviewed to identify gaps in current research and highlight priority areas for future research. METHODS A systematic review of the scientific literature published in English from 2000 through 2014 was performed. Eligible studies included patients and survivors diagnosed between the ages of 15 to 39 years that reported on social well-being domains in the City of Hope Cancer Survivor Quality of Life Model. Each article was reviewed for relevance using a standardized template. A total of 253 potential articles were identified. After exclusions, a final sample of 26 articles identified domains of social well-being that are believed to be understudied among AYAs with cancer: 1) educational attainment, employment, and financial burden; 2) social relationships; and 3) supportive care. Articles were read in their entirety, single coded, and summarized according to domain. RESULTS AYAs with cancer report difficulties related to employment, educational attainment, and financial stability. They also report problems with the maintenance and development of peer and family relationships, intimate and marital relationships, and peer support. Supportive services are desired among AYAs. Few studies have reported results in reference to comparison samples or by cancer subtypes. CONCLUSIONS Future research studies on AYAs with cancer should prioritize the inclusion of underserved AYA populations, more heterogeneous cancer samples, and comparison groups to inform the development of supportive services. Priority areas for potential intervention include education and employment reintegration, and social support networks.

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Section: Discussionmentioning

confidence: 99%

Social well‐being among adolescents and young adults with cancer: A systematic review

Warner

Kent

Trevino

et al. 2016

Cancer

264

255

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“…One potential reason for our lower login average is that the website was able to automatically pull data from devices such as the FitBit without the participants having to login. One recent suggestion for increasing user engagement is to allow user-generated content (eg, creating a post to add to the newsfeed) [44] which may increase user “buy-in.” This method, however, requires close monitoring as information would need to be vetted to ensure accuracy and relevance. Retaining and engaging participants remain an issue among Internet-delivered behavior change programs.…”

Section: Discussionmentioning

confidence: 99%

Feasibility and Preliminary Efficacy of an Online Intervention to Increase Physical Activity in Nova Scotian Cancer Survivors: A Randomized Controlled Trial

Forbes¹,

Blanchard²,

Mummery³

et al. 2015

JMIR Cancer

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BackgroundPhysical activity (PA) behavior change interventions among cancer survivors have used face-to-face, telephone, email, and print-based methods. However, computer-tailored, Internet-delivered programs may be a more viable option to achieve PA behavior change.ObjectiveThe objective of this study is to test the feasibility and preliminary efficacy of a Web-based PA behavior change program among cancer survivors.MethodsNova Scotian cancer survivors (N=415) who previously expressed interest in a research study were approached. Interested participants were asked to complete an online assessment of PA and quality of life (QOL) before being randomized to either a theory-based PA behavior change program using the PA tracking website UWALK (UCAN; n=48) or usual care (UC; n=47). After the intervention (9 weeks), participants completed another online assessment of PA and QOL as well as measures to evaluate the program and website. Descriptive analyses from surveys and Web analytic software were used to assess feasibility and mean change scores were used to test efficacy.ResultsOf all contacted survivors, 95 (22.3%, 95/415) completed baseline measures and were randomized with 84 (88%, 84/95) completing the 9-week assessment. The behavior change program and website were rated highly on the satisfaction items. Average logins were 10.3 (1.1 per week) and 26.0% (111/432) of the weekly modules were completed. Most participants (71%, 29/41) indicated they were more aware of their daily PA levels and 68% (28/41) found the site easily navigable. Adjusted group differences in total exercise minutes favored the UCAN group by an increase of 42 minutes (95% CI -65 to 150; P=.44, d=0.17). Results were more pronounced, though still nonsignificant, among those not meeting guidelines at baseline where UCAN increased PA by 52 minutes compared to a decrease of 15 minutes in UC (adjusted between group difference=75, 95% CI -95 to 244; P=.38, d=0.27).ConclusionsWe found that Internet-delivery may be a feasible alternative to more costly methods to promote PA among Nova Scotian cancer survivors. Moreover, there was a trend toward increased PA among those in the UCAN group, especially among those who were not meeting PA guidelines at baseline. Future research should focus on recruiting inactive cancer survivors and engaging them in the website to determine the optimal potential of Web-based interventions for promoting PA in cancer survivors.

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“…37 Research consistently has found that posting photos results in a greater amount of engagement than other post types. 31,38,39 A study of scientific communication with the public across social media platforms by the European Organization for Nuclear Research found that “wow” photographs (i.e., awe-inspiring photographs) produced the most engagement, especially when posted on the photo-emphasizing platform Instagram.…”

Section: Key Principles Of Social Media To Enhance Cancer Prevention mentioning

confidence: 98%

Social Media and Mobile Technology for Cancer Prevention and Treatment

Prochaska

Coughlin

Lyons

2017

American Society of Clinical Oncology Educational Book

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OVERVIEW Given the number of lives affected by cancer and the great potential for optimizing well-being via lifestyle changes, patients, providers, health care systems, advocacy groups, and entrepreneurs are looking to digital solutions to enhance patient care and broaden prevention efforts. Thousands of health-oriented mobile websites and apps have been developed, with a majority focused upon lifestyle behaviors (e.g., exercise, diet, smoking). In this review, we consider the use and potential of social media and mHealth technologies for cancer prevention, cancer treatment, and survivorship. We identify key principles in research and practice, summarize prior reviews, and highlight notable case studies and patient resources. Further, with the potential for scaled delivery and broad reach, we consider application of social media and mHealth technologies in low-resource settings. With clear advantages for reach, social media and mHealth technologies offer the ability to scale and engage entire populations at low cost, develop supportive social networks, connect patients and providers, encourage adherence with cancer care, and collect vast quantities of data for advancing cancer research. Development efforts have been rapid and numerous, yet evaluation of intervention effects on behavior change and health outcomes are sorely needed, and regulation around data security issues is notably lacking. Attention to broader audiences is also needed, with targeted development for culturally diverse groups and non-English speakers. Further investment in research to build the evidence base and identify best practices will help delineate and actualize the potential of social media and mHealth technologies for cancer prevention and treatment.

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Cancer Prevention and Control Interventions Using Social Media: User-Generated Approaches

Cited by 47 publications

References 22 publications

Social well‐being among adolescents and young adults with cancer: A systematic review

Social well‐being among adolescents and young adults with cancer: A systematic review

Feasibility and Preliminary Efficacy of an Online Intervention to Increase Physical Activity in Nova Scotian Cancer Survivors: A Randomized Controlled Trial

Social Media and Mobile Technology for Cancer Prevention and Treatment

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