Cancer Patients' and Patient Advocates' Perspectives on a Novel Information Source: A Qualitative Study of <i>The Art of Oncology, When the Tumor Is Not the Target</i>

Vickers, Kristin S.; Hathaway, Julie; Patten, Christi A.; Clark, Matthew M.; Britt, Teresa; Looker, Sherry; Johnson, P.; Loprinzi, Charles L.

doi:10.1200/jco.2005.12.029

Cited by 10 publications

(9 citation statements)

References 20 publications

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“…It thus appears that patients wish to be kept informed of their treatment options, although not all want extensive information about their condition and treatment at all stages of their illness. Individual differences are likely to exist in the type and amount of information preferred by different patients, and these preferences might change over the course of their illness [11]. It is thus necessary for physicians to try to understand each patient's needs, as well as gaining their perspective on the usefulness of new sources of information.…”

Section: Discussionmentioning

confidence: 99%

Assessing the attitudes to prostate cancer treatment among European male patients

Schulman¹

2007

BJU International

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OBJECTIVES To understand the attitudes of patients with prostate cancer toward the disease in general and to the use of hormone therapy as treatment; to assess unmet needs in the management of prostate cancer; and to gauge patient receptivity to a potential 6‐month formulation of a luteinizing hormone‐releasing hormone (LHRH) agonist. PATIENTS AND METHODS Face‐to‐face interviews, lasting 50 min on average, were conducted during January and February 2007 with 200 European men who had been diagnosed with prostate cancer. RESULTS Most patients were very satisfied with their physician, particularly with specialists, with 94% of men being satisfied with their expertise and 67% fully trusting the recommended treatment. Therapeutic efficacy was considered the most crucial aspect of treatment, although maintaining their lifestyle during treatment was also considered important (83% of patients). In all, 67% of patients believed that consideration should be given to lifestyle needs when selecting treatment; however, over half (55%) had never raised lifestyle issues with their physicians. Most patients would prefer fewer injections, with 68% (135/200) preferring 6‐monthly injections over 3‐ or 1‐monthly depots. Perceived advantages of 6‐monthly injections include less discomfort/pain, more quality of life, fewer reminders of the disease and more ability to undertake activities without restriction. CONCLUSIONS Patients with prostate cancer are generally very satisfied with their physicians and the information they receive, yet find it difficult to communicate their lifestyle needs. Most patients would prefer 6‐monthly LHRH agonist therapy due to the many advantages associated with fewer injections, including its efficacy in reducing testosterone levels. Improving patients’ willingness to raise lifestyle issues with their physicians, providing more effective patient‐physician communication and less frequent injections might assist in achieving both optimal control of testosterone and optimal management of prostate cancer.

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Section: Discussionmentioning

confidence: 99%

Assessing the attitudes to prostate cancer treatment among European male patients

Schulman¹

2007

BJU International

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“…A larger, more diverse focus group may have generated new and divergent themes with respect to the use of NGS in cancer genetics. That said, a focus group consisting of 19 participants is comparable in size to previous qualitative research studies on this topic and enabled us to identify recurrent themes [4,11]. Finally, it should be mentioned that not all relevant issues regarding the use NGS were addressed within the confines of the study [5,8,26].…”

Section: Discussionmentioning

confidence: 91%

“…Following primary coding of all data, codes that consistently occurred together and had overlapping meaning were identified and grouped into broader categories of response [10,11]. Individual author's codes were compared within each team, and subsequently all authors met to discuss their results and calculate inter-rater reliability.…”

Section: Discussionmentioning

confidence: 99%

“…Qualitative analysis of the transcript was then performed by pairings of both a content (i.e., cancer genetics) and medical expert [10]. Predominant themes (i.e., recurrent unifying concepts or statements about the subject of inquiry made by multiple focus group participants) were identified and agreed on by the authors, through whom a coding strategy was developed consistent with standardized qualitative methods [10,11]. This was used to analyze the content of the transcript, and codes were employed to key phrases to capture meaning.…”

Section: Discussionmentioning

confidence: 99%

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Challenges to clinical utilization of hereditary cancer gene panel testing: perspectives from the front lines

et al. 2015

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Next generation sequencing (NGS) technology is rapidly being implemented into clinical practice. Qualitative research was performed to gain an improved understanding of the landscape surrounding the use of NGS in cancer genetics. A focus group was conducted at the Wisconsin Cancer Risk Programs Network biannual meeting. Free flowing discussion with occasional open-ended questions provided insights into the use of NGS. 19 genetic counselors and medical professionals participated. Three major themes were identified with respect to NGS and its use in cancer genetics: knowledge gaps, the evolving clinician role, and uncertain utility. Several corresponding subthemes were identified. With respect to knowledge gaps, participants expressed concern regarding unexpected results and variants of unknown significance, lack of data about NGS findings, absence of standardization regarding use of NGS and guidelines for interpretation, and discomfort with new technology. Regarding the evolving clinician role, necessary changes to the roles of genetic counselors and physicians were noted, as was the resultant impact on care received by patients and their families. Finally, the clinical and economic utility of NGS was questioned. While a shift from traditional Sanger sequencing to NGS is occurring in molecular genetic testing for disease susceptibility, there are several obstacles that need to be overcome before widespread adoption of this technology can occur. Furthermore, key aspects of NGS and it utility remain unexplored. Continued investigation into these subjects is necessary before this technology will consistently be of benefit to patients and their families.

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“…Si de nombreuses études ont démontré l'impact de l'anxiété, du stress et des perturbations psychologiques liées au diagnostic de cancer sur la qualité de l'information, la corrélation de la dépression avec la difficulté de compréhension des patients n'a pas été clairement démontrée [4,[16][17][18][19][20]. Des auteurs ont tenté d'identifier chez les patients atteints de cancer différentes manières d'aborder la maladie [16,21,22]. Les patients dits "faibles" ou manquant de caractère ont tendance à éviter de faire face aux réalités lorsqu'ils sont en état de stress [23], le médecin peut alors rencontrer de plus grandes difficultés à communiquer l'information dans ce sous-groupe particulier.…”

Section: Discussionunclassified

Annonce du projet thérapeutique en cancérologie. Facteurs influençant la réussite de l'entretien patient-médecin et intérêt d'un deuxième entretien non médical

Négrier¹,

Gómez²,

Chauvin³

et al. 2007

La Presse Médicale

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Cancer Patients' and Patient Advocates' Perspectives on a Novel Information Source: A Qualitative Study of The Art of Oncology, When the Tumor Is Not the Target

Cited by 10 publications

References 20 publications

Assessing the attitudes to prostate cancer treatment among European male patients

Assessing the attitudes to prostate cancer treatment among European male patients

Challenges to clinical utilization of hereditary cancer gene panel testing: perspectives from the front lines

Annonce du projet thérapeutique en cancérologie. Facteurs influençant la réussite de l'entretien patient-médecin et intérêt d'un deuxième entretien non médical

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