Cancer outcomes for <scp>A</scp>boriginal and <scp>T</scp>orres <scp>S</scp>trait <scp>I</scp>slander <scp>A</scp>ustralians in rural and remote areas

Diaz, Abbey; Whop, Lisa J.; Valery, Patricia C.; Moore, Suzanne P.; Cunningham, Joan; Garvey, Gail; Condon, John R.

doi:10.1111/ajr.12169

Cited by 31 publications

(31 citation statements)

References 30 publications

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“…The factors contributing to poorer cancer outcomes are not yet clear, but could be related to both geographic location with the associated lack of accessible/local services and cultural factors. 26 Rural EOL residents were reported as having higher rates of life-limiting congestive heart failure, cancer, renal failure and emphysema than urban EOL residents. 27 Rural EOL patients were poorly managed in terms of pain and other symptoms and less likely to receive intravenous medications treatment.…”

Section: Resultsmentioning

confidence: 93%

“…Indigenous cancer patients were less likely to be diagnosed and to receive cancer treatment compared with their urban counterparts. The factors contributing to poorer cancer outcomes are not yet clear, but could be related to both geographic location with the associated lack of accessible/local services and cultural factors . Rural EOL residents were reported as having higher rates of life‐limiting congestive heart failure, cancer, renal failure and emphysema than urban EOL residents .…”

Section: Resultsmentioning

confidence: 99%

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Are rural and remote patients, families and caregivers needs in life‐limiting illness different from those of urban dwellers? A narrative synthesis of the evidence

Kirby

Barlow

Saurman

et al. 2016

Australian J Rural Health

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This review aimed to assess the evidence to answer the question whether palliative end-of-life care needs of patients and caregivers in rural and remote communities differs from those of urban dwellers. Peer-reviewed studies from 1996 to the present dealing with the experience of rural and remote patients and caregivers at the end-of-life compared with that of urban people were extracted for narrative synthesis. The eight studies included showed that palliative needs of rural and remote residents are related to context. Diagnosis and treatment are less well managed in rural areas. Rural differences include: people are more accepting of death and less likely to intervene to delay death; caregivers tend to be younger and include friends as well as family and local support networks are important. Rural and remote end-of-life needs are shaped by reduced access and availability of services which has a negative influence on outcomes. This is counterbalanced by an acceptance of death and local support networks. Well-designed longitudinal studies with samples comprised of rural and urban residents for comparison are required to monitor how end-of-life need might change with the approach of death. Clinicians, health services and policy makers need a better understanding of rural attitudes and of how rural community networks mobilise to support end-of-life care in their rural and remote communities.

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Section: Resultsmentioning

confidence: 93%

Section: Resultsmentioning

confidence: 99%

Are rural and remote patients, families and caregivers needs in life‐limiting illness different from those of urban dwellers? A narrative synthesis of the evidence

Kirby

Barlow

Saurman

et al. 2016

Australian J Rural Health

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“…7 Those from remote areas have even higher mortality and lower survival compared to metropolitan areas. 8 In that study, Indigenous patients from remote backgrounds had greater delays in diagnosis, more advanced stage at presentation and less treatment.…”

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confidence: 84%

‘Finishing up’ on country: challenges and compromises

Waran

O’Connor

Zubair

et al. 2016

Internal Medicine Journal

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A core consideration in the care of Indigenous patients at the end of life is their place of death. Dying in community can be of paramount importance to Indigenous people. This paper reports the experiences of the Top End Palliative Care Service with respect to the barriers and solutions in the return of Indigenous patients to community for end-of-life care. These barriers include not only those associated with the significant distances and remoteness in the Northern Territory but, also, spiritual and cultural factors, which often influence healthcare delivery.

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“…Rural patients with cancer have lower access and usage of health care services due to the distances from health services 6 as well as fewer social and community support groups 1 . The level of care and support that cancer patients receive during the transition to survivorship is critical.…”

Section: Introductionmentioning

confidence: 99%

“…Rural patients may be at higher risk of poor physical health outcomes, which can lead to mental health problems 9 such as higher levels of distress, anxiety and depression 2 . The Australian Journal of Cancer Nursing research and there has been limited research about their care, emotional and psychological health, and wellbeing 10 . In addition, there is a risk of generalisation from research exploring rural persons with cancer as rural characteristics and culture differ greatly 6,11 . Furthermore, most of the research explores patients' experience, with little exploration of the experience of the carer 12 .…”

Section: Introductionmentioning

confidence: 99%

Factors affecting provision of care services for patients with cancer living in the rural area: an integrative review

Salehi

Frommolt

Coyne

2019

AJCN

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This paper explored individual-and system-level factors affecting the provision of care services for rural patients. An integrated literature review across four databases identified 22 studies from six countries. A focus on health and wellbeing and the influence of rurality was explored. Findings indicate physical and functional health in rural cancer patients is lower in comparison with urban areas. Influencing factors were socio-economic status, age, income, health literacy, control and self-efficacy. Enhancing the strengths and education of caregivers and their inclusion in service decision-making are paramount for rural cancer patients and for the wellbeing of the caregivers. Disparities in rural areas need to be explored with longitudinal research to understand the clinical, social and cultural characteristics in relation to remoteness. The use of innovative technologies has been recommended as an option to enhance the health access and enable quality care provision across rural areas. Knowledge translation• The facilitation of access to innovative health care to balance the disparities of rural people (telehealth, online support groups, follow-up phone calls, enticement for specialist care in rural areas).• A holistic approach with education and support provided to the family is particularly important for rural patients as the family is a key source of social, emotional and informational support over the journey.Although there has been increasing research regarding the needs of cancer patients (health care, community, social care needs), there has been little focus on the care needs of patients in rural areas 2 . The number of rural patients is under-examined in the Keywords Rural cancer patients, cancer caregiver, health resources, literature review.

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Cancer outcomes for Aboriginal and Torres Strait Islander Australians in rural and remote areas

Abstract: More research is needed to fully understand geographic differentials in cancer outcomes within the Indigenous population. Knowing how geographical location interacts with Indigenous status can help to identify ways of improving cancer outcomes for Indigenous Australians.

Cited by 31 publications

References 30 publications

Are rural and remote patients, families and caregivers needs in life‐limiting illness different from those of urban dwellers? A narrative synthesis of the evidence

Are rural and remote patients, families and caregivers needs in life‐limiting illness different from those of urban dwellers? A narrative synthesis of the evidence

‘Finishing up’ on country: challenges and compromises

Factors affecting provision of care services for patients with cancer living in the rural area: an integrative review

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