Cancer information-seeking experiences: The implications of Hispanic ethnicity and Spanish language

Vanderpool, Robin C.; Kornfeld, Julie; Rutten, Lila Finney; Squiers, Linda

doi:10.1080/08858190902854772

Cited by 64 publications

(48 citation statements)

References 22 publications

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“…Second, non-Hispanic whites participate more actively in HISB than do other races (Nguyen and Bellamy, 2006). In fact, minority groups such as African-Americans and Hispanics are relatively more passive regarding HISB and more dependent on medical providers (Maliski et al, 2006;Levinson et al, 2005;Vanderpool et al, 2009). While the reasons for this are uncertain, it seems to be an effect of the combination of language barriers and disproportionately low educational levels.…”

Section: Demographic Factorsmentioning

confidence: 99%

Determinants of Health Information-Seeking Behavior: Implications for Post-Treatment Cancer Patients

Jung¹

2014

Asian Pacific Journal of Cancer Prevention

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Health knowledge is necessary for personal healthcare management. The public obtains such health knowledge not only from healthcare providers, but also through daily media exposure. Health information became highly universalized amid a wave of health news, pharmaceutical advertisements, and health websites coupled with the recent emergence of user-generated Internet content (i.e. blogs) based on diverse information and communication platforms. Despite the abundance of health information, however, huge disparities exist between individuals in their levels of health knowledge, their interest in health information, and their health information-seeking behaviors (Viswanath, 2005). Therefore, numerous advanced countries spotlight health informationseeking behaviors (HISBs) as a key element of health communication.Free access, active search, and accurate understanding and use of health information heavily influence a healthy lifestyle, early diagnosis of disease, disease control, participation in medical decision-making, understanding of therapeutic processes, and the treatment of ultimately terminal patients or post-treatment cancer patients (Van der Molem, 1999;Viswanath et al., 2012). Formerly, doctors acted as the sole providers of health information, but technological advances in communication and information dissemination created an environment that offers diverse sources of information related to health management (Fallowfield et al., 1995 AbstractHealth information-seeking behavior (HISB) is active need-fulfillment behavior whereby health information is obtained from diverse sources, such as the media, and has emerged as an important issue within the transforming medical environment and the rise of medical consumers. However, little is known about the factors that affect HISB and its associations, and the health outcome of HISB. The aim of this study was to examine individual and social contextual factors associated with HISB and to systematically review their effects on health status among posttreatment cancer patients. Individual determinants of HISB included demographic factors, psychosocial factors, perceived efficacy and norms, and health beliefs. Contextual determinants of HISB encompassed community characteristics, neighborhood social capital, and media advocacy. Improving through factors on these two levels, HISB raised individuals' self-care management skills and medical treatment compliance, and enhanced shared decision-making and medical treatment satisfaction. Moreover, because HISB can differ according to individuals' social contextual conditions, it can give rise to communication inequalities. Because these can ultimately lead to health disparities between groups, social interest in HISB and balanced HISB promotion strategies are necessary.

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Section: Demographic Factorsmentioning

confidence: 99%

Determinants of Health Information-Seeking Behavior: Implications for Post-Treatment Cancer Patients

Jung¹

2014

Asian Pacific Journal of Cancer Prevention

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“…Sociodemographic antecedents (SDA) such as gender and age are important, with men and younger-age subjects more likely to engage in information seeking behavior than women and older subjects (Rutten et al, 2006;Mayer et al, 2007;Vanderpool et al, 2009;Viswanath et al, 2013;Wang et al, 2013). However, compared to HISBs, not much is known about HIABs, and more scientific evidence is needed to verify the complex relationship between the factors within the SIM framework.…”

Section: Introductionmentioning

confidence: 99%

Associations of Self-rated Health and Socioeconomic Status with Information Seeking and Avoiding Behavior among Post-Treatment Cancer Patients

Jung

2014

Asian Pacific Journal of Cancer Prevention

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“…Of those Spanish-speaking people, approximately 30% had little or no confidence in their ability to find cancer information as compared to 6% of non-Hispanics and 11.5% of English-speaking Hispanics. Among Spanish-speaking Hispanics, 67% noted that their search for cancer information was difficult, and twice as many expressed difficulty in understanding information as compared to English-speaking Hispanics (Vanderpool et al, 2009). Despite such difficulty, Mexican American caregivers, based on their respect and trust of doctors and healthcare providers in general (Wells et al, 2008), may not ask questions during care or phone calls to the treatment agency between visits.…”

Section: Discussionmentioning

confidence: 99%

Managing Pleural Effusions

Walker¹,

Bryden²

2010

Clinical Journal of Oncology Nursing

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Cancer caregivers in Mexican American families experience role-related challenges influenced by limited healthcare literacy. The lack of functional health literacy becomes complex when Mexican Americans have limited English proficiency (LEP) and cultural beliefs that contrast with those of the American healthcare system. Three sequential studies focused on assessing the experience of Mexican American, female cancer caregivers, including their role learning needs; evaluating available community learning materials; and identifying healthcare provider perceptions of caregiver learning needs. Study findings provide direction to improve the process and content of teaching to caregivers with LEP and other caregivers facing the crisis of cancer. Practice recommendations focus on development of targeted learning materials appropriate to caregiver-identified learning needs, language, and education level. Priority learning needs include strategies to meet patient needs for home medication administration, nutrition, and psychological support. Caregiver-preferred formats for learning include videotapes in a family-assisted setting and oral exchanges with other caregivers and care providers. Bilingual clinic personnel who partner with Mexican American family caregivers to address their literacy issues support positive health outcomes in this vulnerable population. Healthcare Literacy:Multiple Perspectives Grounded in the Experience of Mexican American Caregivers At a GlanceF Mexican American family caregivers experience role-related challenges influenced by limited health literacy and English proficiency, both of which block the understanding necessary to deliver high-quality care to their family members with cancer.F Priority learning needs of Mexican American family cancer caregivers include ways to meet patient medication, nutrition, and psychological needs to support positive patient and caregiver outcomes during cancer treatment.F Limited cancer information in formats accessible for Mexican American caregiver learning offers an opportunity for healthcare professionals, including nurses, to develop targeted materials and interventions that optimally meet the learning needs of Mexican American cancer caregivers.

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Cancer information-seeking experiences: The implications of Hispanic ethnicity and Spanish language

Abstract: Background-Strategies to support cancer information-seeking among Hispanics are needed.

Cited by 64 publications

References 22 publications

Determinants of Health Information-Seeking Behavior: Implications for Post-Treatment Cancer Patients

Determinants of Health Information-Seeking Behavior: Implications for Post-Treatment Cancer Patients

Associations of Self-rated Health and Socioeconomic Status with Information Seeking and Avoiding Behavior among Post-Treatment Cancer Patients

Managing Pleural Effusions

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