Cancer information disclosure in different cultural contexts

Mystakidou, Kyriaki; Parpa, Efi; Tsilika, Eleni; Katsouda, Emmanuela; Vlahos, Lambros

doi:10.1007/s00520-003-0552-7

Cited by 187 publications

(168 citation statements)

References 67 publications

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“…In addition, insufficient information on the diagnosis, prognosis and treatment options will increase anxiety and doubt. [31] When terminal stage cancer patients come face to face with death, they exhibit a common medical condition, and treatment options with the potential for toxicity may need to be considered. These treatment options may include standard therapy or experimental approaches, as well as supportive care.…”

Section: Discussionmentioning

confidence: 99%

Anxiety, depression and pain-related coping behaviors with pain behaviors in cancer patients who are aware or unaware of their cancer

Güleç¹,

Güleç

Ceyhan³

et al. 2017

Agri

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SummaryObjectives: This study aimed to investigate whether there are differences in depression, anxiety, pain and styles of coping with pain between cancer patients with and without awareness of their cancer diagnosis. Methods: In this study, 30 cancer patients aware of their diagnosis and 30 cancer patients unaware of their diagnosis, all of whom visited a clinic for pain treatment, were enrolled in this study. A sociodemographic information form, a questionnaire comprising questions about pain severity and related variables, Hospital Anxiety Depression Scale, and the Pain Coping Questionnaire were administered to the patients. Results: No significant association was observed between the patients with awareness or unawareness of cancer with respect to anxiety, depression, pain severity, or coping with pain. Pain intensity was significantly associated with depression in both the patient groups. Conclusion:The study enrolled patients who were admitted for pain treatment, and the sampling group was small. However, this is the first study to investigate the effects of the awareness of cancer diagnosis on pain and its management.Keywords: Anxiety; cancer; depression; diagnosis; pain. ÖzetAmaç: Bu çalışmada, tanısını bilen ve bilmeyen kanser hastaları arasında depresyon, anksiyete, ağrı ve ağrı ile başa çıkma tarzında farklılık olup olmadığının araştırılması amaçlamıştır. Gereç ve Yöntem: Ağrı kliniğine tedavi için başvuran, tanısını bilen 30 ve tanısını bilmeyen 30 kanser hastası çalışmaya alındı. Ağrı şiddeti ve ağrı ile ilişkili değişkenleri sorgulayan sosyodemografik bilgi formu, Hastane Anksiyete Depresyon Ölçeği, Ağrı ile Başa Çıkma Ölçeği uygulandı. Bulgular: Tanısını bilen ve bilmeyen kanser hastaları arasında anksiyete, depresyon, ağrı şiddeti veya ağrı ile başa çıkma tarzı açısından anlamlı bir farklılık bulunamadı. Ağrı şiddeti her iki grupta da depresyon ile anlamlı düzeyde ilişkiliydi. Sonuç: Çalışmaya, ağrı tedavisi için başvuran küçük bir örneklem grubu dahil edilmiştir. Fakat çalışmamız kanser tanısını bilmenin ağrı ve ağrı tedavisi üzerindeki etkilerini araştıran ilk araştırmadır.

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Section: Discussionmentioning

confidence: 99%

Anxiety, depression and pain-related coping behaviors with pain behaviors in cancer patients who are aware or unaware of their cancer

Güleç¹,

Güleç

Ceyhan³

et al. 2017

Agri

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“…A Lebanese study, during the period from 1995 to 2015, revealed an increase in the percentage of physicians who prefers cancer diagnosis disclosure from 47% to 69% 3 . Factors which influence the attitude and practice of truth-telling in the cancer care setting include culture and physician-related factors 4,5 . Furthermore, medical professionals face the fact that patients are different regarding their desire to know or to ignore their cancer diagnosis 6 .…”

Section: Introductionmentioning

confidence: 99%

Awareness of Diagnosis in Patients with Cancer: A Study from Egypt

Hammad

Farag

El-Haddad

et al. 2016

Kasr-Al-Aini J.of Clin. Onc. and Nuc. Med.

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Background:One of the barriers to cancer care is the inadequate communication with patients and their families. In Egypt, it is believed that culture is against the honest disclosure of cancer diagnosis. So, the majority of cancer patients are usually unaware of their diagnosis. Aim: To study cancer diagnosis awareness among a group of Egyptian patients and the factors contributing to their unawareness. Methods: The study included 119 cancer patients from two cancer centers; one in Cairo and the other in Sharkia. Patients were asked about their illness and who answered as having "cancer/tumor" or mentioned the name of cancer considered aware. results: The majority of our patients (100/119, 84%) were aware of their cancer diagnosis. Their answer was "cancer" in 31%, "tumor" in 60% and the name of cancer in 9%. While, a minority (19 /119, 16%), were unaware of their cancer diagnosis. They were more likely to be less educated, older in age, males, unmarried, and from Sharkia. None of the studied variables associated significantly with awareness. conclusions: The results of this study suggest that most cancer patients in Egypt are aware of their diagnosis. This may be due to a change in the Egyptian cultural attitude towards truth telling and a shift in the approach of care from paternalistic to patient-centred.

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“…However, some nations still harbor resistance to this practice, and doctors there choose to speak euphemistically about the diagnosis or even the malignant nature of the disease (Mystakidou et al, 2004).…”

Section: Introductionmentioning

confidence: 99%

Cancer diagnosis disclosure from Portuguese physicians

et al. 2014

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Objective: Doctor-patient communication in oncology, particularly concerning diagnostic disclosure, is a crucial factor related to the quality of the doctor-patient relationship and the psychological state of the patient. The aims of our study were to investigate physicians' opinions and practice with respect to disclosure of a cancer diagnosis and to explore potential related factors.Method: A self-report questionnaire developed for our study was responded to by 120 physicians from Coimbra University Hospital Centre and its primary healthcare units.Results: Some 91.7% of physician respondents generally disclosed a diagnosis, and 94.2% were of the opinion that the patient knowing the truth about a diagnosis had a positive effect on the doctor-patient relationship. A need for training about communicating with oncology patients was reported by 85.8% of participants. The main factors determining what information to provide to patients were: (1) patient intellectual and cultural level, (2) patient desire to know the truth, and (3) the existence of family.Significance of results: Our results point to a paradigm shift in communication with cancer patients where disclosure of the diagnosis should be made part of general clinical practice. Nevertheless, physicians still experience difficulties in revealing cancer diagnoses to patients and often lack the skills to deal with a patient's emotional responses, which suggests that more attention needs to be focused on communication skills training programs.

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Cancer information disclosure in different cultural contexts

Cited by 187 publications

References 67 publications

Anxiety, depression and pain-related coping behaviors with pain behaviors in cancer patients who are aware or unaware of their cancer

Anxiety, depression and pain-related coping behaviors with pain behaviors in cancer patients who are aware or unaware of their cancer

Awareness of Diagnosis in Patients with Cancer: A Study from Egypt

Cancer diagnosis disclosure from Portuguese physicians

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