Cancer family caregivers’ quality of life and the meaning of leisure

Lim, Jin-Sun; Cho, Heetae; Bunds, Kyle S.; Lee, Chul-Won

doi:10.1080/07399332.2020.1752214

Cited by 10 publications

(13 citation statements)

References 57 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…First, given that the intermediate treatment phase is critical for a healthy mental state, there is an immediate need to promote or encourage FCCs to allocate some personal time for themselves before the burden and distress accumulates and transfers into the chronic stage. FCC’s well-being directly affects that of the patient [ 11 , 36 , 42 ] and if FCCs’ needs are met and they would be in a better position to care and support their loved ones [ 15 ]. Interventions and support systems need to be set in place for FCCs, especially during the early treatment phase.…”

Section: Discussionmentioning

confidence: 99%

“…Daily activity unmet needs refer to needs that are associated with daily living such as personal care and care giving role management [ 12 ]. Daily activity needs are important to FCCs as a cancer patient consistently requires caregiver support, leading to very little personal time for FCCs [ 15 ]. For example, FCCs reduced their working hours or quit their jobs to care more for their loved ones, eventually affecting their work-life-caregiving balance [ 16 ].…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Cancer caregivers unmet needs and emotional states across cancer treatment phases

et al. 2021

View full text Add to dashboard Cite

Study objective To investigate the association between family cancer caregivers’ unmet daily needs and emotional states of depression, anxiety and stress across their care recipient’s treatment phases. Method A cross-sectional study design and self-report questionnaires were used. Family caregivers (N = 237) of cancer patients in ambulatory cancer clinics were recruited from May to December 2017, and completed a sociodemographic and medical questionnaire, the Depression Anxiety Stress Scale and Needs Assessment of Family Caregivers-Cancer Scale. Hierarchical linear regression was conducted to examine the influence of each predictor (sociodemographic variables, unmet personal care and role management needs, cancer treatment phase) on the Depression Anxiety Stress Scale total score, depression subscale, anxiety subscale, and the stress subscale. Results Family caregivers’ unmet daily activity needs, in particular higher unmet personal care needs, during the intermediate phase (6–9 months), were significantly associated (ps<0.05) with overall distress (b = 4.93) and stress (b = 2.26). In the chronic treatment phase (>9 months), the significant association of unmet personal care needs was with overall distress (b = 5.91), anxiety (b = 1.97) and stress (b = 2.53). After completing treatment, unmet role management needs were only significantly associated with stress (b = -1.59). Caregivers’ higher depression was also associated with greater unmet role management needs, regardless of treatment phases. Conclusions Intermediate and chronic cancer treatment phases were identified as having greatest effect on caregivers’ unmet daily activity needs and emotions. Unmet personal care needs played the major effect on overall negative emotional states in the intermediate treatment phase and stress in the chronic treatment phase. Close attention to caregivers needs in intermediate and chronic treatment phases, would be highly beneficial in alleviating negative emotional disturbances.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Cancer caregivers unmet needs and emotional states across cancer treatment phases

et al. 2021

View full text Add to dashboard Cite

show abstract

“…In relation to physical problems, eight studies [ 25 , 34 , 37 , 40 , 41 , 42 , 43 , 44 ] described that care work implies a greater risk for caregivers of suffering physical morbidity with considerable wear, which in fact increases as the care burden continues over time. It is also observable that physical and health problems are more frequent in female caregivers, and physical damage results in a worse quality of life perceived by caregivers.…”

Section: Resultsmentioning

confidence: 99%

Quality of Life in Caregivers of Cancer Patients: A Literature Review

Guerra-Martín

Casado-Espinosa

Gavira-López

et al. 2023

IJERPH

View full text Add to dashboard Cite

(1) Background: Cancer constitutes one of the principal causes of morbi-mortality in the world and generates an important loss of patients’ self-sufficiency. People who are their caregivers usually become the main care providers, which impacts their quality of life; (2) Aim: Analyze the different problems (physical, emotional, social, and financial) faced by people who are caregivers of adults with cancer and describe the strategies required to improve their quality of life; (3) Method: A literature review was conducted on the following database: PubMed, Cinahl, PsycINFO, and Scopus. The following eligibility criteria were specified: (a) research studies of quantitative, qualitative, or mixed methods, (b) consistent with objective, and (c) published in the English language or Spanish during the last five years; (4) Results: 36 studies were selected from those found in the literature. Regarding the problems mentioned: eight studies described physical issues, 26 emotional effects, 10 social implications, and seven financial strains. Twenty-eight studies described strategies to improve the quality of life of caregivers; (5) Conclusions: Caregivers are usually women around the age of 50. Problems faced are mostly emotional in nature, followed by social, physical, and financial ones. In order to cope with this burden, there are some strategies that can be developed to help to build skills to manage both the disease and the impact derived from it, therefore improving their quality of life.

show abstract

“…Due to multiple and often demanding tasks associated with caregiving responsibilities over an extended period of time, an extensive body of research has found that individuals who informally care for or assist in the care of community-dwelling older adults often experience physical stress as well as psychosocial impacts including caregiver-burden and restrictions on social participation ( Lim et al, 2020 ; Lim & Zebrack, 2004 ; Schulz & Sherwood, 2008 ; Sullivan & Miller, 2015 ). The adverse effects of informal caregiving on a person’s health outcomes were found to be moderated by the caregiver’s education level ( Schulz & Sherwood, 2008 ).…”

Section: Introductionmentioning

confidence: 99%

Quality of Life and Needs of Deaf Informal Caregivers of Loved Ones with Alzheimer’s and Related Dementia

Ammons

Engelman

Kushalnagar

2020

Gerontology and Geriatric Medicine

View full text Add to dashboard Cite

No studies have included the experiences and needs of informal caregivers who are deaf, use American Sign Language (ASL), and care for a loved one with Alzheimer’s disease or related dementias (ADRD). The CDC’s BRFSS Caregiver Module and PROMIS-Deaf Profile measures were administered via an online bilingual English/ASL platform between October 2019 and March 2020. Out of 194 deaf adult signers who completed an online survey, 42 respondents (mean age = 66; SD = 12; 74% White) endorsed informally caring for someone with a medical condition. In this survey subsample of informal caregivers, more years of education was significantly associated with higher generic quality of life and higher deaf-specific quality of life. A smaller subset of informal deaf informal caregivers who were currently taking care of loved ones with ADRD were then invited to participate in a semi-structured interview. Among the 22 informal caregivers who were interviewed, there was a strong agreement among the participants who felt that their quality of life as informal caregivers was worse than hearing informal caregivers who took care of loved ones with ADRD. Findings highlight the importance of a call to action to address the needs of deaf informal ADRD caregivers.

show abstract

Cancer family caregivers’ quality of life and the meaning of leisure

Cited by 10 publications

References 57 publications

Cancer caregivers unmet needs and emotional states across cancer treatment phases

Cancer caregivers unmet needs and emotional states across cancer treatment phases

Quality of Life in Caregivers of Cancer Patients: A Literature Review

Quality of Life and Needs of Deaf Informal Caregivers of Loved Ones with Alzheimer’s and Related Dementia

Contact Info

Product

Resources

About