Cancer Data and Aboriginal Disparities Project (CanDAD) - an overdue cancer control initiative

Brown, Alex; Roder, David; Yerrell, Paul; Cargo, Margaret; Reilly, Rachel; Banham, David; Micklem, Jasmine; Morey, Kim; Stewart, Hugh

doi:10.1111/ecc.12466

Cited by 11 publications

(10 citation statements)

References 16 publications

(21 reference statements)

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“…After the workshop, some participants continued to view Aboriginal culture across Australia as homogeneous rather than diverse and the tendency persisted to essentialise Aboriginal people’s characteristics and negatively stereotype them. Findings highlighted a need for Aboriginal and non-Aboriginal people to work together to improve differentials in cancer outcomes for Aboriginal people [ 26 ].…”

Section: Discussionmentioning

confidence: 99%

Does one workshop on respecting cultural differences increase health professionals’ confidence to improve the care of Australian Aboriginal patients with cancer? An evaluation

Durey

Halkett

Berg

et al. 2017

BMC Health Serv Res

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BackgroundAboriginal Australians have worse cancer survival rates than other Australians. Reasons include fear of a cancer diagnosis, reluctance to attend mainstream health services and discrimination from health professionals. Offering health professionals education in care focusing on Aboriginal patients’ needs is important. The aim of this paper was to evaluate whether participating in a workshop improved the confidence of radiation oncology health professionals in their knowledge, communication and ability to offer culturally safe healthcare to Aboriginal Australians with cancer.MethodsMixed methods using pre and post workshop online surveys, and one delivered 2 months later, were evaluated. Statistical analysis determined the relative proportion of participants who changed from not at all/a little confident at baseline to fairly/extremely confident immediately and 2 months after the workshop. Factor analysis identified underlying dimensions in the items and nonparametric tests recorded changes in mean dimension scores over and between times. Qualitative data was analysed for emerging themes.ResultsFifty-nine participants attended the workshops, 39 (66% response rate) completed pre-workshop surveys, 32 (82% of study participants) completed post-workshop surveys and 25 (64% of study participants) completed surveys 2 months later. A significant increase in the proportion of attendees who reported fair/extreme confidence within 2 days of the workshop was found in nine of 14 items, which was sustained for all but one item 2 months later. Two additional items had a significant increase in the proportion of fair/extremely confident attendees 2 months post workshop compared to baseline. An exploratory factor analysis identified three dimensions: communication; relationships; and awareness. All dimensions’ mean scores significantly improved within 2 days (p < 0.005) and persisted to 2 months. The workshop raised awareness about barriers and enablers to delivering services respectful of cultural differences, led to a willingness to reflect on pre-existing beliefs and assumptions about Aboriginal Australians that in some cases resulted in improved care.ConclusionSingle workshops co-delivered by an Aboriginal and non-Aboriginal presenter can be effective in building health professionals’ confidence and translating into practice knowledge of respectful care of Aboriginal patients with cancer. Sustaining improvements may require integrating this approach into ongoing professional development.Electronic supplementary materialThe online version of this article (10.1186/s12913-017-2599-z) contains supplementary material, which is available to authorized users.

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Section: Discussionmentioning

confidence: 99%

Does one workshop on respecting cultural differences increase health professionals’ confidence to improve the care of Australian Aboriginal patients with cancer? An evaluation

Durey

Halkett

Berg

et al. 2017

BMC Health Serv Res

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“…Proposed research methods and preliminary findings have been discussed at local and international conferences51–57 and in an invited editorial 58. In addition, CanDAD is providing data for knowledge translation activities across the partner organisations, including direct input into the Statewide Cancer Control Plan and the Aboriginal and Torres Strait Islander Companion Document 40.…”

Section: Ethics and Disseminationmentioning

confidence: 99%

Cancer Data and Aboriginal Disparities (CanDAD)—developing an Advanced Cancer Data System for Aboriginal people in South Australia: a mixed methods research protocol

et al. 2016

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IntroductionIn Australia, Aboriginal and Torres Strait Islander People carry a greater burden of cancer-related mortality than non-Aboriginal Australians. The Cancer Data and Aboriginal Disparities Project aims to develop and test an integrated, comprehensive cancer monitoring and surveillance system capable of incorporating epidemiological and narrative data to address disparities and advocate for clinical system change.Methods and analysisThe Advanced Cancer Data System will integrate routinely collected unit record data from the South Australian Population Cancer Registry and a range of other data sources for a retrospective cohort of indigenous people with cancers diagnosed from 1990 to 2010. A randomly drawn non-Aboriginal cohort will be matched by primary cancer site, sex, age and year at diagnosis. Cross-tabulations and regression analyses will examine the extent to which demographic attributes, cancer stage and survival vary between the cohorts. Narratives from Aboriginal people with cancer, their families, carers and service providers will be collected and analysed using patient pathway mapping and thematic analysis. Statements from the narratives will structure both a concept mapping process of rating, sorting and prioritising issues, focusing on issues of importance and feasibility, and the development of a real-time Aboriginal Cancer Measure of Experience for ongoing linkage with epidemiological data in the Advanced Cancer Data System. Aboriginal Community engagement underpins this Project.Ethics and disseminationThe research has been approved by relevant local and national ethics committees. Findings will be disseminated in local and international peer-reviewed journals and conference presentations. In addition, the research will provide data for knowledge translation activities across the partner organisations and feed directly into the Statewide Cancer Control Plan. It will provide a mechanism for monitoring and evaluating the implementation of the recommendations in these documents.

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“…Authors contributing to this themed issue also acknowledge the ongoing impact of colonisation, as well as social disadvantage and marginalisation on the health and social and emotional wellbeing of indigenous populations (Brown et al . ). A history of exposure to racism continues to impact negatively on the health of indigenous people, with papers in this issue continuing to highlight significant inequities in cancer outcomes for indigenous people in New Zealand (Robson & Ellison‐Loschmann ), Canada (Beben & Muirhead ) and Australia (Zorbas & Elston ).…”

mentioning

confidence: 97%

“…) so does the potential to alienate patients and their families though poor communication (Brown et al . ; Zorbas & Elston ). Smoking underpins the high rates of lung and head and neck cancers.…”

mentioning

confidence: 99%

“…Brown et al . () provide an example of an approach in Australia whereby Aboriginal communities are working with policy makers, health service providers and researchers to drive change in the way data are collected and utilised. A specific focus of the CanDAD project is to drive change at the health system and service delivery levels via the integration of quantitative (registry data) and qualitative data (narratives) using methods including mapping as well as data‐linkage.…”

mentioning

confidence: 99%

See 1 more Smart Citation

Cancer in indigenous populations: challenges and responses

Knott

Weller

2016

Eur J Cancer Care

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Cancer Data and Aboriginal Disparities Project (CanDAD) - an overdue cancer control initiative

Cited by 11 publications

References 16 publications

Does one workshop on respecting cultural differences increase health professionals’ confidence to improve the care of Australian Aboriginal patients with cancer? An evaluation

Does one workshop on respecting cultural differences increase health professionals’ confidence to improve the care of Australian Aboriginal patients with cancer? An evaluation

Cancer Data and Aboriginal Disparities (CanDAD)—developing an Advanced Cancer Data System for Aboriginal people in South Australia: a mixed methods research protocol

Cancer in indigenous populations: challenges and responses

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