Cancer caregivers’ perceptions of an exercise and nutrition program

Anton, Philip M.; Partridge, Julie A.; Morrissy, Margaret

doi:10.1007/s00520-012-1583-8

Cited by 10 publications

(14 citation statements)

References 33 publications

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“…Innovative methods involving family-based nutrition education have been shown to improve health outcomes in cancer survivors' nutritional status (Molassiotis et al, 2018). Participation in exercise and nutrition programs can lead to perceived physical and benefits for survivors and caregivers (Anton et al, 2013). Technology-based intervention approaches in weight gain prevention has also improved healthy lifestyle behaviours (Lynch et al, 2019;Valle et al, 2017).…”

Section: Discussionmentioning

confidence: 99%

A qualitative exploration: Dietary behaviour of Malaysian breast cancer survivors

Kiew

Majid

Taib

2021

European J Cancer Care

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Objective: This study aimed to explore the dietary practices and factors affecting Malaysian breast cancer survivors' dietary behaviours. Methods:We conducted an in-depth qualitative interview on 20 participants from a cohort study. An ecological framework was used to construct the semi-structured topic guide. The interviews were audio-recorded and transcribed verbatim. Thematic analysis with theoretical saturation was used in data analysis.Results: The participants were found to have variable dietary practices that either followed or did not follow dietary recommendations. The social environment was critical as most women relied on family and friends for food choices; additionally, individuals in charge of food preparation had to prepare food based on their family member preferences. Furthermore, individuals had difficulty sustaining healthy dietary changes during the acute survivorship phase due to a lack of health consciousness and difficulty in healthy food access. Notably, there was a lack of dietary guidance from health care professionals, especially dietitians, in long-term survivorship care. Conclusion:This study highlights the lack of breast cancer survivors' healthy diet and lifestyle knowledge. A holistic multidisciplinary approach involving individual, social, physical, and macro-level environmental elements are crucial to influencing healthy eating behaviours.

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Section: Discussionmentioning

confidence: 99%

A qualitative exploration: Dietary behaviour of Malaysian breast cancer survivors

Kiew

Majid

Taib

2021

European J Cancer Care

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“…Dyadic healthy eating and physical activity efforts are likely to enhance involvement and overcome barriers to participation (e.g. limited independent time), while benefitting both partners (Anton et al., 2013; Falba & Sindelar, 2008; Pai et al., 2010). Health promotion programs targeted to couples have been successful in demonstrating improvement in healthy eating behaviours for cardiac patients and their partners (Yates et al., 2015) and couples showed decreased consumption of high‐fat foods, total fat and increased intake of fruits, vegetables and total fibre (Burke et al., 2003).…”

Section: Discussionmentioning

confidence: 99%

“…Prior research has found that some spousal caregivers do not enjoy exercising alone (Cao et al., 2010). In fact, many are interested in physical and leisure time activities they can engage in with their care recipients (Cao et al., 2010; van't Leven et al., 2013; Malthouse & Fox, 2014) to enhance their time together, social participation and mutual support (Anton et al., 2013). Finally, a systematic review reported that caregivers may improve both psychosocial and physical health when exercising with care recipients (Doyle et al., 2020).…”

Section: Discussionmentioning

confidence: 99%

Informal caregivers’ self‐identified roles in facilitating health‐promoting behaviours for weight management in community‐dwelling care recipients living with spinal cord injury in the United States

LaVela

Pedersen

Ehrlich-Jones

et al. 2021

Health Social Care Comm

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Health providers often focus on secondary conditions and spend less time prioritising overweight/obesity care. Informal caregivers are well positioned to facilitate health-promoting behaviours of healthy eating and physical activity among community-dwelling care recipients with spinal cord injury (SCI) for prevention and management of overweight/obesity. Literature has typically focused on caregiver adjustment post-injury and burden related to their roles in secondary condition care. The novel objective of this study was to describe informal caregivers' perspectives of their roles in facilitating health-promoting weight management behaviours, healthy eating and physical activity, for care recipients with SCI. This was a qualitative study that used semi-structured interviews with informal caregivers for data collection in 2019. Braun & Clarke's established thematic phases were used for analysis.Participants included informal caregivers of individuals with SCI living in the community (n = 24). Caregivers identified eight themes to describe their role in facilitating weight management for care recipients. Themes included: (1) meal planning/shopping, (2) meal preparation/cooking, (3) using portion control, (4) serving/feeding, (5) helping the care recipient with physical activity and/or leisure activities, (6) mutually participating in weight management activities, (7) providing motivation and encouragement and ( 8) being an information liaison. In summary, informal caregivers have an intimate understanding of care recipients' needs and have insights on obstacles and enablers to health-promoting behaviours, making their involvement in facilitating weight management in individuals with SCI vital. Caregivers self-identified several significant roles for promoting weight management. This is especially valuable for conditions such as overweight/obesity for which prevention and treatment involve health-promoting behaviours that need consistent attention in the community setting. It is important to ensure that informal caregivers and care recipients have the information required in order to facilitate healthy eating and physical activity in persons with SCI and have opportunities for mutual dyadic participation when both partners are interested. e1586 | LAVELA Et AL.

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“…A list of open-ended questions ( Table 2) was developed based on the co-authors' extensive experience with qualitative interviewing, clinical practice with cancer patients and caregivers, and in conducting exercise interventions. We also reviewed the interview questions used by Anton et al (2013) in their qualitative study of cancer family caregivers participating in an exercise programme with their care recipient. This broad-based set of questions was not used rigidly, but was a guide during the interview to allow flexibility in exploring the full range of participant experiences.…”

Section: Data Collection and Proceduresmentioning

confidence: 99%

Creating an upward spiral: A qualitative study of caregivers' experience of participating in a structured physical activity programme

et al. 2017

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Family caregivers' physical and emotional well-being may be negatively impacted while in the caregiver role. Interventions to support caregiver health have largely focused on psychological support, with only a few studies to date evaluating the role of exercise. Of the exercise studies conducted, there has been one qualitative study examining caregivers' perspectives on the value and impact of this type of intervention. This qualitative study was part of a larger mixed methods investigation including a randomised controlled trial investigating the effects of a 24-week exercise programme for cancer caregivers conducted in western Canada. We aimed to explore cancer family caregivers' experience of participating in a structured exercise programme. We conducted face-to-face interviews with 20 of the participants from the exercise intervention and analysed transcribed data using Thorne's interpretive description as a guiding framework. Two main patterns characterised the experiences of the caregivers. The metaphor of a downward spiral represented the experience of being in the caregiver role, while the metaphor of an upward spiral represented the experience of participating in the exercise programme. Our findings highlight that caregivers valued the exercise programme, experienced positivity through exercise and the group-based format, and noticed improvements to their physical and emotional well-being.

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Cancer caregivers’ perceptions of an exercise and nutrition program

Cited by 10 publications

References 33 publications

A qualitative exploration: Dietary behaviour of Malaysian breast cancer survivors

A qualitative exploration: Dietary behaviour of Malaysian breast cancer survivors

Informal caregivers’ self‐identified roles in facilitating health‐promoting behaviours for weight management in community‐dwelling care recipients living with spinal cord injury in the United States

Creating an upward spiral: A qualitative study of caregivers' experience of participating in a structured physical activity programme

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