Cancer as a chronic disease

Phillips, Jane; Currow, David C.

doi:10.1016/j.colegn.2010.04.007

Cited by 172 publications

(118 citation statements)

References 14 publications

(18 reference statements)

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“…The comparability of needs in the earlier versus later studies reviewed is questionable given that, in the context of recent treatment advances, the trajectory of advanced cancer is changing. As discussed in the introduction, advanced cancer is increasingly experienced as an ongoing complex condition requiring long-term monitoring, intervention, and supportive care [9] and we would expect this to be reflected in shifting care needs. Inconsistency in approaches to assessing unmet needs was another important source of heterogeneity, as discussed in the next section.…”

Section: Prevalence Of Unmet Needsmentioning

confidence: 99%

“…Patient needs vary according to the stage of their cancer journey [7,8] and recent developments in healthcare are such that many patients who develop advanced disease experience this phase in a very different way as compared with patients from previous generations [9]. In contrast to the predictable rapid progression that once typified experiences of advanced cancer, this phase can now be characterised by an illness trajectory and prognosis that is relatively long and uncertain [10].…”

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confidence: 99%

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Unmet care needs in people living with advanced cancer: a systematic review

Moghaddam

Coxon

Nabarro

et al. 2016

Support Care Cancer

130

114

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PURPOSE:\ud The support needs of cancer patients vary according to the phase of their cancer journey. Recent developments in healthcare are such that the advanced cancer phase is increasingly experienced as a chronic illness phase, with consequent changes in patient support needs. Understanding these needs, and identifying areas of unmet need, can enable us to develop services that are more adequate to the task of supporting this population.\ud METHODS:\ud We conducted a systematic search of four electronic databases to identify studies examining the unmet needs of people living with advanced cancer. Relevant data were extracted and synthesised; meta-analyses were conducted to obtain pooled estimates for prevalence of needs.\ud RESULTS:\ud We identified 23 studies (4 qualitative) for inclusion. Unmet needs were identified across a broad range of domains, with greatest prevalence in informational (30-55 %), psychological (18-42 %), physical (17-48 %), and functional (17-37 %) domains. There was considerable heterogeneity amongst studies in terms of methods of assessment, coding and reporting of needs, respondent characteristics, and appraised study quality.\ud CONCLUSIONS:\ud Heterogeneity made it difficult to compare across studies and inflated confidence intervals for pooled estimates of prevalence-we need standardised and comprehensive approaches to assessment and reporting of unmet needs to further our understanding. Nonetheless, the review identified prominent needs across a range of (interacting) experiential domains. Moreover, by focussing on unmet needs for support, we were able to extrapolate potential implications for service development

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Section: Prevalence Of Unmet Needsmentioning

confidence: 99%

mentioning

confidence: 99%

Unmet care needs in people living with advanced cancer: a systematic review

Moghaddam

Coxon

Nabarro

et al. 2016

Support Care Cancer

130

114

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“…For both, the patient who lives with cancer need ongoing support in four key areas: prevention, surveillance, intervention for the possible consequences and their treatment [18].…”

Section: Influence Of Spirituality/religiosity In Cancer Treatmentmentioning

confidence: 99%

The Influence Of Religiousness In The Process Of Development Of Cancer

Gomes¹,

Pereira²,

Ramos³

et al. 2016

Int Arch Med

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Introduction: There are positive influences of religious and spiritual beliefs in the face of diseases such as cancer.Objective: To analyse the influence of spirituality and religiosity in cancer in the perspective of cancer patients. Methods:It is a qualitative, descriptive and exploratory research, carried out with 10 patients in cancer treatment, aged between 37 and 75 years. Data were collected through interviews, containing guiding questions about the theme and treated according to the Content Analysis. Results:The results are summarized into three categories: (1) perceptions/conceptions of patients in the discovery of cancer; (2) vision and experience of spirituality/religiosity of cancer patients and (3) the influence of spirituality/religiosity in the treatment of cancer. They were discussed in the light of the relevant literature to the subject. Conclusion:Cancer brings a new life meaning for patients. Religion and spirituality have a strong relationship between the disease and faith in the possibilities of healing, which makes the religious coping a stress reduction strategy and improves quality of life of people. IntroductionCancer is a worldwide public health problem that really affects Brazil [1], associating the physical and emotional effects characterized by a biochemical disorder that originates from the uncontrolled growth of cells that invade tissues and organs and can spread metastasized to other parts of the body [2].The diagnosis of cancer causes a strong impact on the lives of those affected and their families. Therefore, in the face of hopelessness and suffering caused by the discovery of the disease, seek in spirituality/religiosity positive or negative sense to experiences [3].Spirituality is an existential intimate feeling, a search for the meaning of life and being in the world and it will not necessarily be linked to a belief in something bigger, like God [4]. It is universal, is the essence of being human, and goes beyond any doutrin [5].It is observed that religiousness and spirituality, although they relate, are not equal. Religiosity can be understood as a set of beliefs and practices belonging to a doctrine, which are shared and followed by a group of people through services or rituals that necessarily involve the notion of faith [4].Brazilian clinical populations have shown that religious and spiritual involvement enhances the quality of life and reduces depression and anxiety in ambulatory treatments [6]. It also notes that in young people with cancer, spirituality seems to emerge as a component that increases the hope for them, helping to face the challenges generated by the chronicity of the disease and the search for the meaning of life [7]. Elderly patients related to religious faith to hope, balance and fortification [8].Researchers (?) point out the benefits of religiousness/spirituality to face disease, justifying the inclusion of the theme in the interventions in health [7][8][9].Each individual expresses spirituality in their own way, relating it to hope to su...

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“…An increasing prevalence is scored by cancer along with a corresponding rise in the survivor's number, so that cancer itself is considered a chronic condition [1]. Chronic diseases result in a large management burden in outpatients who need to comply with their follow-up examinations and treatments over an extended time period.…”

Section: Introductionmentioning

confidence: 99%

A Mobile Cancer Follow-up Care Plan for Patient Empowerment

Denecke¹,

Dorner²,

Iseli³

et al. 2017

J Health Med Inform

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An increasing prevalence of cancer requires new ways of supporting outpatients and improving their compliance to treatment. Initial mostly surgical treatment is followed by long-term surveillance to detect and treat cancer recurrence timely. Depending on the tumor stage, the frequencies of follow-up appointments differ and the patient has to remember to make these appointments at the right time. Currently, the patient receives a paper-based schema indicating the follow-up schedule. Since this document is difficult to understand or may get lost, patients are missing the follow-up appointments. This paper illustrates our attempt at exploiting mHealth to support the empowerment and awareness in outpatients by a mobile, bilingual app that supports variable cancer follow-up schedules. Installed on a mobile device, the app reminds the patient to schedule his appointments timely and provides additional information about disease and treatment. Equipped with additional functionalities for monitoring vital parameters, the app can be used for continuous monitoring. The usability was studied with nine persons. We conclude that the app provides a good basis for a successful product after realizing some extensions and improvements of the usability.

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Cancer as a chronic disease

Cited by 172 publications

References 14 publications

Unmet care needs in people living with advanced cancer: a systematic review

Unmet care needs in people living with advanced cancer: a systematic review

The Influence Of Religiousness In The Process Of Development Of Cancer

A Mobile Cancer Follow-up Care Plan for Patient Empowerment

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