Can you hear me now? The experience of a deaf family member surrounding the death of loved ones

Kehl, Karen A.; Gartner, Constance

doi:10.1177/0269216309348180

Cited by 6 publications

(4 citation statements)

References 22 publications

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“…In the current study most of the participants interviewed experienced difficulty reading the questions, similar to other studies performed in the United States. 3,5,28,29 …”

Section: Discussionmentioning

confidence: 99%

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Emergency situations and deaf people in Israel: Communication obstacles and recommendations

et al. 2014

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The absence of the ability to hear sounds in deaf people is an obstacle to optimal communication in a predominantly hearing world. Emergency situations harbor sufficient challenge for the hearing person and pose even greater barriers for the deaf and hard of hearing. During disasters and emergency situations, deaf people have great difficulty in obtaining and sharing information, increasing their dependence on others. This article focuses on the experience of deaf people during a period of security threat, when missiles from the Gaza strip were aimed at the civilian population in Southern Israel, in 2009. The aim of this article is to illustrate the complexities that deaf citizens experienced, and describe their coping mechanisms. A qualitative study including 15 heterogeneous-background Deaf participants interviewed by a researcher that belongs to the deaf community using a multiple-method facilitated questionnaire. Data was analyzed using grounded theory methodology principles. Main categories that arose from data analysis were communication problems during emergencies, the pager as a questionable warning device about emergencies (due to timing and content/context issues of its use), and the implications of the location of deaf people at time of emergency. Various channels for conveying information should be examined and created in order to maximize the heterogeneous deaf community's ability to receive vital information during an emergency. Professional sign language interpreters are necessary during emergencies, helping to reduce both dependence on informal sources (such as family members, including minors, friends, neighbors, by-standers) and risk. The development of new technologies may bear potential help for deaf persons during emergencies. Being a socio-linguistic minority, it is recommended to ensure these technologies will be accessible to the whole deaf community.

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“…In the current study most of the participants interviewed experienced difficulty reading the questions, similar to other studies performed in the United States. 3,5,28,29 …”

Section: Discussionmentioning

confidence: 99%

“…Conducting a study within the deaf community is not straight forward due to the low level of reading comprehension among the deaf, 3,5,28,40 communication problems, 2,5,9,10,28,41,42 and the potential alienation of deaf people from hearing persons that inquire about their world.…”

Section: Discussionmentioning

confidence: 99%

Emergency situations and deaf people in Israel: Communication obstacles and recommendations

et al. 2014

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“…15 Research is limited about the associations between deafness, blindness, and EOL care quality. We identified only two studies 16,17 and one report 18 that examined EOL care of persons in the deaf community whose cultural, social, and linguistic connections are distinctly different from those who lose their hearing because of illness, trauma, or age. Further, we could find no research about persons with visual loss and EOL care quality.…”

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confidence: 99%

A National Study of End‐of‐Life Care among Older Veterans with Hearing and Vision Loss

Carpenter

Ersek

Nelson

et al. 2019

J American Geriatrics Society

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OBJECTIVES Hearing and visual sensory loss is prevalent among older adults and may impact the quality of healthcare they receive. Few studies have examined sensory loss and end‐of‐life (EOL) care quality. Our aim was to describe hearing and vision loss and their associations with the quality of EOL care and family perception of care in the last 30 days of life among a national sample of veteran decedents. DESIGN Retrospective medical record review and Bereaved Family Survey (BFS). SETTING Veterans Affairs (VA) Medical Centers (N = 145). PARTICIPANTS Medical record review of all veterans who died in an inpatient VA Medical Center between October 2012 and September 2017 (N = 96 424). Survey results included 42 428 individuals. MEASUREMENTS Three indicators of high‐quality EOL care were measured: palliative consultation in the last 90 days of life, death in a non‐acute setting, and contact with a chaplain. The BFS reflects a global evaluation of quality of EOL care; pain and posttraumatic stress disorder management; and three subscales characterizing perceptions regarding communication, emotional and spiritual support, and information about death benefits in the last month of life. RESULTS In adjusted models, EOL care quality indicators and BFS outcomes for veterans with hearing loss were similar to those for veterans without hearing loss; however, we noted slightly lower scores for pain management and less satisfaction with communication. Veterans with vision loss were less likely to have received a palliative care consult or contact with a chaplain than those without vision loss. Although BFS respondents for veterans with vision loss were less likely than respondents for veterans without vision loss to report excellent overall care and satisfaction with emotional support, other outcomes did not differ. CONCLUSION In general, the VA is meeting the EOL care needs of veterans with hearing and vision loss through palliative care practices. J Am Geriatr Soc 68:817–825, 2020

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“…Thus, my own identity as a Chilean hearing child of a deaf adult (CODA) (Mand et al 2009;Pizer, Walters, and Meier 2013) was not sufficient to understand, participate, and research sign language in another country. Most countries have established their own official sign language (Harris 1995;Kehl and Gartner 2010;McAleer 2006). There are countries that even have two official sign languages, according to the region where the Deaf population lives (Muñoz-Baell et al 2011).…”

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confidence: 99%

New sign language new(S): the globalization of sign language in the smartphone era

Tannenbaum-Baruchi

Feder‐Bubis

2017

Disability & Society

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Languages are dynamic and change over the years. Changes in sign languages have been usually initiated to accommodate the needs of the local Deaf community. With the increase in smartphone use, sign languages are influenced not only by the local Deaf community, but also by foreign Deaf people on the other side of the screen, regardless of their location. Smartphones influence the sign language itself and the Deaf community by connecting different communities of Deaf people through messages, shared information and experiences, and news delivery. The popularity of this technology among Deaf communities is a social phenomenon emerging from Deaf people themselves. Smartphones may promote the globalization of sign language, shortening distances between Deaf communities around the world.

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Can you hear me now? The experience of a deaf family member surrounding the death of loved ones

Cited by 6 publications

References 22 publications

Emergency situations and deaf people in Israel: Communication obstacles and recommendations

Emergency situations and deaf people in Israel: Communication obstacles and recommendations

A National Study of End‐of‐Life Care among Older Veterans with Hearing and Vision Loss

New sign language new(S): the globalization of sign language in the smartphone era

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