Can the health related quality of life measure QOLIBRI- overall scale (OS) be of use after stroke? A validation study

Abstract

BackgroundBrief measures of health-related quality of life (HRQOL) that assess both patient-reported functioning and well-being after stroke are scarce. The objective of this study was to examine reliability and validity of one of these measures, the patient-reported Quality of Life after Brain Injury–Overall Scale (QOLIBRI-OS), in patients after stroke.MethodsStroke survivors were examined prospectively using survey methods.Core survey data (n = 125) and retest data (n = 36) were obtained at 3 and 12 months, respectively. Item properties (distribution, floor and ceiling effects), psychometric properties (reliability and model fit), and validity (correlations with established measures of anxiety, depression and HRQOL) of the QOLIBRI-OS were examined.ResultsMissing responses on the questionnaire were low (0.5%). All items were positively skewed. No floor effects were present, whereas five out of six items showed ceiling effects. The summary QOLIBRI-OS score exhibited no floor or ceiling effects, and had excellent internal consistency (Cronbach’s α =0.93). All item-total correlations were high (0.73–0.88). The test-retest reliability of single items varied from 0.74 to 0.91 and was 0.93 for the overall score. The confirmatory factor analysis yielded an excellent fit for a five-item version and provided tentative support for the original six-item version. The convergent validity correlations were in the hypothesized directions, thus supporting the construct validity.ConclusionsThe brief QOLIBRI-OS is a valid and reliable brief health-related outcome measure that is appropriate for screening HRQOL in patients after stroke.

Test–retest reliability of the EQ-5D-5L and the reworded QOLIBRI-OS in the general population of Italy, the Netherlands, and the United Kingdom

“…The reworded QOLIBRI-OS is essentially an instrument for satisfaction with quality of life and further research is needed to investigate the psychometric properties of the reworded QOLIBRI-OS used in the general population. Preceding studies have found higher test-retest reliability of the QOLIBRI-OS in TBI [34] and stroke [35] patients than in our study population. This may indicate that the (reworded) QOLIBRI-OS is more sensitive in the injured population than in the general population.…”

Reference Values and Psychometric Properties of the Quality of Life After Traumatic Brain Injury-Overall Scale in Italy, The Netherlands, and the United Kingdom

“…Developing the QOLIBRI-OS involved literature reviews, qualitative focus group analyses, and quantitative psychometric analyses. 5,8,13 The QOLIBRI-OS has been translated into and validated for more than 10 languages, 8,[14][15][16][17][18][19] and it has been used internationally in research and clinical practice. 3,8,15 So far, only 1 study has provided a cutoff value for the QOLIBRI-OS to identify impairment in disease-specific HRQoL based on European TBI samples.…”

Peer Support to Enhance Social and Emotional Self-Management Following Acquired Brain Injury Rehabilitation: Design of a Pre–post Study With Process Evaluation

“…It consists of three scales: the degree of experienced autonomy, the effort made to achieve autonomy, and dilemmas that doing what is best for the illness might not match a person's valued activities and social roles ( 21 ). The QOLIBRI measures the health-related quality of life in people with acquired brain injury with 37 items from 6 subscales ( 22 ). An overview of the primary and secondary outcome measures is presented in Table 2 .…”