Can stories influence African-American patients’ intentions to change hypertension management behaviors? A randomized control trial

Bokhour, Barbara G.; Fix, Gemmae M.; Gordon, Howard S.; Long, Judith A.; DeLaughter, Kathryn; Orner, Michelle B.; Pope, Charlene; Houston, Thomas K.

doi:10.1016/j.pec.2016.06.024

Cited by 29 publications

(50 citation statements)

References 44 publications

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“…Bokhour et al. (2016) compared the use of DVDs depicting African American veterans telling stories of successfully managing hypertension with DVDs that presented educational information using static images and a voice over. Although both forms of education contained the same information, the stories engaged participants emotionally which significantly impacted on their intention to positively change behaviours.…”

Section: Discussion Of Findingsmentioning

confidence: 99%

Living with diabetes and disadvantage: A qualitative, geographical case study

Power

Kelly

Usher

et al. 2020

Journal of Clinical Nursing

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Aims and objectives To elucidate the experiences of people living with diabetes, residing in an urban diabetogenic area. Background Community‐level social and environmental factors have a role to play in the development of type 2 diabetes mellitus. Socio‐economic deprivation; high obesity rates; high access to fast foods; and multiculturalism contribute to higher rates of diabetes in some geographical areas. However, there is a lack of research examining people's experiences of living with diabetes in diabetogenic areas. The word diabetogenic implies that the phenomenon of interest contributes to the development of diabetes. Design Qualitative, geographical case study approach. Methods A convenience sample of 17 people living with diabetes in a diabetogenic, low‐socio‐economic urban area participated in face‐to‐face, semi‐structured interviews. Interviews were audio‐recorded, transcribed and analysed thematically. This paper adheres to the COREQ guidelines. Findings Four main themes were identified: 1. Diabetes fatalism: Inevitability and inertia; 2. Living with Inequity: Literacy and intersectionality; 3. Impersonal services: Intimidating and overwhelming; and, 4. Education in the community: Access and anecdotes. Conclusions This study has highlighted the need to develop local solutions for local problems. In this geographical area, solutions need to address generally lower health literacy, how the community would prefer to receive diabetes education and the issue of diabetes fatalism. Relevance to clinical practice Findings from this study have highlighted a need to re‐examine how diabetes education is delivered in communities that are already experiencing multiple disadvantages. There are research and practice connotations for how fatalism is positioned for people at high risk of developing diabetes.

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Section: Discussion Of Findingsmentioning

confidence: 99%

Living with diabetes and disadvantage: A qualitative, geographical case study

Power

Kelly

Usher

et al. 2020

Journal of Clinical Nursing

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“…As shown in Table 1, 12 RCTs found that interventions including FPS were more effective in changing knowledge, attitudes, behaviors, and clinical outcomes than interventions without it. [32][33][34][35][36][37][38][39][41][42][43] Of the 9 RCTs that measured changes in health-related behaviors, [32, 34, 35, 37-40, 42, 43] 7 showed a positive change in behaviors like eating more vegetables, quitting smoking, improved foot care, and getting a vaccine in one or more storytelling arms over patients in control groups. Of the three RCTs that measured specific clinical changes on specific health outcomes like lowering A1C levels or blood pressure, all three showed positive changes compared with controls.…”

Section: Randomized Controlled Studies Using Fps Compared To a Non-fpmentioning

confidence: 99%

“…Nearly half (n=5) of the RCTs found assessed the use of FPS with racial or ethnic minority groups. [32,33,35,36,38]. Of these studies, 4 of the 5 RCTs showed positive changes over control groups for at least one of the measured outcomes (attitudes, knowledge, behavior, clinical outcomes) [32,33,35,36] Nearly half of the non-RCT studies explored the use of FPS to change attitudes, knowledge, behaviors, and health outcomes for specific racial and ethnic minority groups, [24,[47][48][49] and all reported positive impact compared to baseline.…”

Section: Impact Of Fps For Patients Of Racial or Ethnic Minorities Lmentioning

confidence: 99%

“…Of the 12 RCTs, 5 assessed the use of FPS with low-income patients [32,33,35,36,38] and 4 assessed FPS with patients with only a high school (HS) education or less. [33,35,38] Of these 4 assessing FPS with low-income patients and 4 assessing FPS for lower education level patients showed positive impact over control groups for at least one of the measured outcomes.…”

Section: Impact Of Fps For Patients Of Racial or Ethnic Minorities Lmentioning

confidence: 99%

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Evaluation of first-person storytelling on changing health-related attitudes, knowledge, behaviors, and outcomes: A scoping review

Lipsey

Waterman

Wood

et al. 2020

Patient Education and Counseling

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Objectives: First-person storytelling (FPS) has the potential to engage patients in changing behavior differently than didactic education. We assessed the prevalence of FPS in health education interventions; whether published FPS research has shown improvements in attitudinal, knowledge, behavioral, or clinical outcomes; and whether randomized controlled trials (RCTs) including FPS have shown more effectiveness than non-FPS interventions. Methods: A scoping review of FPS studies published before October 2019 in five medical databases was conducted. Results: 22 out of 10,363 identified studies met eligibility criteria. FPS has been studied primarily in cancer, diabetes, and hypertension. Of the 12 RCTs, compared to controls, patients receiving FPS interventions improved attitudes (N=6 studies) and knowledge (N=1), improved health behaviors like quitting smoking (N=6), and improved clinical outcomes like lowering A1C levels (N=3). Of the 10 non-RCT studies, compared to baseline assessments, patients who received FPS interventions had improved knowledge (N=1), attitudes (N=3), clinical outcomes (N=4), and improved health behaviors (N=7). Conclusion: While rarely used, FPS interventions can improve patient health attitudes and outcomes. Future research should expand FPS to new health areas and determine best practices for developing FPS interventions. Practice Implications: FPS may be particularly effective with low income patients and racial/ethnic minorities.

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“…However, the evidence supporting the benefits of storytelling/poetry on improving clinical outcomes is sparse, a gap that our study aimed to fill. Storytelling interventions exposing personal experiences with disease management have been shown to decrease blood pressure ( Houston et al, 2011 ), and improve self-efficacy in adults with diabetes and hypertension ( Bertera, 2014 ; Bokhour et al, 2016 ), while recounting a favorite story has been employed to help children deal with pain ( Heiney, 1995 ; Kuttner, 1988 ). Storytelling interventions like the one we employed in the present study can provide hospitalized patients with cognitive stimulation and positive distractions from the monotony and stress associated with the hospital stay.…”

Section: Discussionmentioning

confidence: 99%

A Performing Arts Intervention Improves Cognitive Dysfunction in 50 Hospitalized Older Adults

Danila

Melnick

Mudano

et al. 2018

Innovation in Aging

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Background and ObjectivesArts in medicine programs have emerged as a patient-centered approach that aims to improve health-related quality of life for patients in U.S. hospitals. Storytelling and poetry/monologue recitation are forms of arts-based experiences designed to enhance healing and are delivered by an artist-in-residence. We evaluated the effect of a storytelling/poetry experience on delirium screening scores and patient satisfaction in hospitalized older adults.Research Design and Methods: We conducted an observational pre–post study with a control group in the Acute Care for the Elders (ACE) unit at an academic medical center. A convenience sample of 50 participants was recruited to participate and complete two questionnaires measuring pain, anxiety, general well-being, and distress at hospital admission and at hospital discharge. Multivariable regression models were used to compare delirium screening score (primary outcome) between the control and intervention groups and to adjust for the differences in baseline characteristics between groups.ResultsAt baseline participants in the intervention group were younger and had significantly lower cognitive impairment compared with those in the control group. Participants exposed to the storytelling/poetry intervention had a lower delirium screening score at hospital discharge compared with those in the control group. The result remained significant after adjusting for age, baseline cognitive impairment, and general well-being. Participants in the intervention group reported a high level of satisfaction with the interaction with the artist delivering the intervention.Discussion and ImplicationsAn artist in residence-delivered storytelling/poetry experience was associated with a lower delirium score at discharge in this pilot study. Further larger studies in diverse inpatient settings are needed to examine whether storytelling/poetry interventions or other types of arts in medicine programs can prevent or reduce delirium in hospitalized older adults.

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Can stories influence African-American patients’ intentions to change hypertension management behaviors? A randomized control trial

Cited by 29 publications

References 44 publications

Living with diabetes and disadvantage: A qualitative, geographical case study

Living with diabetes and disadvantage: A qualitative, geographical case study

Evaluation of first-person storytelling on changing health-related attitudes, knowledge, behaviors, and outcomes: A scoping review

A Performing Arts Intervention Improves Cognitive Dysfunction in 50 Hospitalized Older Adults

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