Can health beliefs help in explaining attendance to follow‐up care? The Swiss Childhood Cancer Survivor Study

Michel, Gisela; Kuehni, Claudia E.; Rebholz, Cornelia E.; Zimmermann, Karin; Eiser, Christine; Rueegg, Corina S.; Weid, Nicolas X. von der

doi:10.1002/pon.1823

Cited by 24 publications

(68 citation statements)

References 38 publications

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“…Survivors' health beliefs may influence whether or not they attend follow-up. A survey of 1,075 Swiss childhood cancer survivors found that almost one quarter of survivors considered follow-up care to be unnecessary and did not attend [100]. There are important differences between adult survivors of other chronic illnesses (e.g.…”

Section: Patient Barriersmentioning

confidence: 97%

“…Since late effects of therapy may not manifest until many years after completion of treatment, this can make it even more difficult to motivate these young adult survivors to transition to the adult health care setting. Survivors who have developed complications associated with their earlier therapy are usually more likely to report attending a medical visit related to their previous cancer than those without any symptoms [100,101]. It is likely that a substantial number of survivors are lost to follow-up care long before they are at greatest risk for developing the most serious chronic health conditions associated with their prior treatment.…”

Section: Patient Barriersmentioning

confidence: 98%

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Long-Term Survivors of Cancer in Childhood and Adolescence

Urbach

Guger²,

Nathan³

2012

CPR

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Significant improvements in the treatment of many pediatric malignancies have led to a growing population of long-term survivors of childhood cancer. Many of these survivors are at significant risk for late physical and psychosocial sequelae ("late effects") as a result of their prior disease and its therapy. In some survivors (such as children treated for a brain tumor), late effects including endocrine dysfunction and neurocognitive challenges can develop during therapy and persist throughout life. In others (such as children and adolescents treated for Hodgkin's lymphoma), late effects including congestive heart failure, pulmonary fibrosis and secondary breast cancers may not occur for many years, often once survivors have reached adulthood. During childhood, survivor care usually occurs at the pediatric cancer center, often in a specialized long-term follow-up clinic. However, adult survivors are usually cared for by primary care practitioners in their own communities. It is essential that the health care providers who will care for childhood cancer survivors as they age be aware of each survivor's treatment exposures, long-term risks, and the surveillance strategies suggested for monitoring for these late effects. Strategies for effective transition from pediatric care and for ongoing communication between primary care practitioners and pediatric cancer centers need to be implemented to ensure that childhood cancer survivors receive appropriate care focused on their specific risks throughout their lifespan.

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Section: Patient Barriersmentioning

confidence: 97%

Section: Patient Barriersmentioning

confidence: 98%

Long-Term Survivors of Cancer in Childhood and Adolescence

Urbach

Guger²,

Nathan³

2012

CPR

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“…Younger survivors, females, those with higher socio‐economic status, and those with lower educational background were shown to be more likely to attend follow‐up care. In the US and Canada, having private insurance and smaller distance to hospital have been associated with increased attendance.…”

Section: Introductionmentioning

confidence: 98%

“…Yet, the majority of long‐term survivors do not attend follow‐up . In Switzerland, approximately 23% of all adult survivors regularly attend follow‐up and 56% among adolescent survivors .…”

Section: Introductionmentioning

confidence: 99%

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Can the theory of planned behavior help explain attendance to follow‐up care of childhood cancer survivors?

et al. 2018

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Disparities in pediatric cancer survivorship care: A systematic review

et al. 2023

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BackgroundChildhood cancer survivors (CCS) experience many long‐term health problems that can be mitigated with recommended survivorship care. However, many CCS do not have access to survivorship care nor receive recommended survivorship care. We reviewed the empirical evidence of disparities in survivorship care for CCS.MethodsThis systematic review searched PubMed, CINAHL, and PsycINFO for studies on survivorship care for CCS (PROSPERO: CRD42021227965) and abstracted the reported presence or absence of disparities in care. We screened 7945 citations, and of those, we reviewed 2760 publications at full text.ResultsA total of 22 studies reported in 61 publications met inclusion criteria. Potential disparities by cancer treatment (N = 14), diagnosis (N = 13), sex (N = 13), and current age (N = 13) were frequently studied. There was high quality of evidence (QOE) of survivorship care disparities associated with non‐White race, Hispanic ethnicity, and being uninsured. Moderate QOE demonstrated disparities among CCS who were unemployed and older. Lower QOE was found for disparities based on cancer diagnosis, cancer treatment, age at diagnosis, time since diagnosis, sex, insurance type, income, educational attainment, and geographic area.ConclusionsWe found strong empirical evidence of disparities in survivorship care for CCS associated with race, ethnicity, and insurance status. Multiple other disparate groups, such as those by employment, income, insurance type, education, cancer diagnosis, age at diagnosis, time since diagnosis, cancer treatment, geographic area, sex, and self‐identified gender warrant further investigation. Prospective, multilevel research is needed to examine the role of other patient characteristics as potential disparities hindering adequate survivorship care in CCS.

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Can health beliefs help in explaining attendance to follow‐up care? The Swiss Childhood Cancer Survivor Study

Cited by 24 publications

References 38 publications

Long-Term Survivors of Cancer in Childhood and Adolescence

Long-Term Survivors of Cancer in Childhood and Adolescence

Can the theory of planned behavior help explain attendance to follow‐up care of childhood cancer survivors?

Disparities in pediatric cancer survivorship care: A systematic review

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