Calidad de vida relacionada con la salud en cuidadores de pacientes con enfermedad de Alzheimer

Garzón-Maldonado, F.J.; Gutiérrez‐Bedmar, Mario; García‐Casares, Natalia; Pérez-Errazquín, F; Gallardo-Tur, Alejandro; Torres, M.D. Martínez del Valle

doi:10.1016/j.nrl.2016.02.023

Cited by 24 publications

(20 citation statements)

References 30 publications

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“…Other findings reported in the present study are consistent with previous research; we also found that caregivers had a poorer HRQoL than non-caregivers [10][11][12]22,32,33] and experience more pain/discomfort and anger/hostility [37]. This may be due to their daily caring tasks, the functional disabilities of the patients, and the duties involved in patient supervision [38].…”

Section: Discussionsupporting

confidence: 91%

“…In fact, the caregivers in our study spent more than twenty hours per week taking care of their patients, possibly giving the impression of permanent care. In particular, somatization episodes can be due to the ailments derived from physical problems such as back pain, pain in the knees, body pain or fatigue that have been reported in previous studies with caregivers of patients with AD [11,12,14,22].…”

Section: Discussionmentioning

confidence: 99%

“…They have also reported irritability, hallucinations, delusions, restlessness, disinhibition, appetite alterations, hostility, somatization and abusive behaviour from the patients [20,21]. All this symptomatology has a negative impact on the general psychological status, physical health and quality of life of caregivers [21,22]; nevertheless, the majority of them have been less comprehensively evaluated, particularly AD caregivers, because of the heterogeneity of their profiles, their specific needs, and the failure to use instruments that specifically measure their psychological symptomatology [8].…”

Section: Introductionmentioning

confidence: 99%

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Psychological Symptomatology in Informal Caregivers of Persons with Dementia: Influences on Health-Related Quality of Life

Vicente

Delgado

Prieto

et al. 2020

IJERPH

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Informal caregivers of persons with dementia often report high levels of anxiety, depression and burden. Nonetheless, other less evaluated psychological symptoms might also influence their health-related quality of life (HRQoL). The aim of this study was to comprehensively analyse other psychological symptoms and their influence on the health-related quality of life of informal caregivers. Fifty-four informal women caregivers and fifty-six women non-caregivers were recruited to participate in the study. Psychological symptoms were assessed using the Symptom Check-List-90-Revised (SCL-90-R) questionnaire and the HRQoL with the EuroQoL-Five Dimensions and Three Levels (EurQoL-5D-3L) questionnaire. Significant between-group differences were found in the majority of scales in the SCL-90-R questionnaire (p < 0.01) and caregivers also reported a worse HRQoL than non-caregivers (p < 0.05). Several psychological symptoms such as obsession-compulsive (β = 0.47), hostility (β = 0.59), and somatization (β = −0.49) had a significant impact on caregivers’ HRQoL (R2 explained between 0.17 and 0.30 of the variance). Caregivers are at a higher risk of suffering other psychological symptoms and show a moderate–high level of psychiatric morbidity, which therefore explains the poorer HRQoL outcomes. Supporting interventions should be provided to mitigate these psychological symptoms in order to improve their general distress and HRQoL.

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Section: Discussionsupporting

confidence: 91%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Psychological Symptomatology in Informal Caregivers of Persons with Dementia: Influences on Health-Related Quality of Life

Vicente

Delgado

Prieto

et al. 2020

IJERPH

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“…As a consequence, the exercise of the role of the caregiver leads to a wide variety of physical, psychological, social and financial difficulties [7,[12][13][14][15]. In this regard, the adverse effects on physical health and quality of life are diverse [16][17][18][19][20]. Informal caregivers show higher rates of hypertension and other cardiovascular-related disorders [21,22], as well as lower aerobic endurance [23] than non-caregivers.…”

Section: Introductionmentioning

confidence: 99%

Cost-Effectiveness and Effects of a Home-Based Exercise Intervention for Female Caregivers of Relatives with Dementia: Study Protocol for a Randomized Controlled Trial

et al. 2020

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Previous research has proposed a range of support interventions to mitigate the adverse impact of caregiving on the daily life of caregivers of relatives with dementia. However, the effectiveness of these interventions shows a high variability. Informal caregivers usually lack the time and/or live too far from conventional facilities to do physical exercise, especially those who live in rural areas. Thus, home-based interventions may be more efficacious due to their greater convenience for this population. The present work proposes and describes a study protocol for a randomized control trial that will analyze the efficacy and cost-effectiveness of a home-based, structured individual physical exercise intervention to improve the health-related quality of life and the mental health of female informal caregivers of relatives with dementia. The nine-month-long intervention will comprise participation in two supervised physical exercise sessions per week at the caregiver’s home. The proposed study outcomes will be: (1) feasibility of and adherence to the home-based provision of the intervention; (2) improvement in physical fitness and quality of life; and (3) reduction in subjective burden, psychological symptomatology and depression. Analyses will also be performed to determine the cost-effectiveness after the intervention. In conclusion, this intervention might thus represent a tailored and feasible strategy to help caregivers cope with the physical and psychological stress resulting from caregiving-related responsibilities, and it could represent a novel cost-effective support home-based intervention for caregivers.

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“…Esta situación ha desencadenado que las asociaciones, fundaciones y la sociedad en general se preocupe y sensibilice cada vez más no sólo con las personas que padecen enfermedad de Alzheimer, sino también con aquellos familiares o cuidadores que ven alterada su vida diaria por dedicarles el tiempo y los cuidados que necesitan (Tabla 5.1). La sociedad está cada día más concienciada del estrés físico y emocional que genera la convivencia con una persona con demencia y sus cuidados, lo que se traduce en un mayor interés en proporcionar recursos y apoyos para este colectivo (Laserna et al, 1997), (Kotradyová, 2018), (Garzón-Maldonado et al, 2017), (Biurrun Unzué, 2001), (Cuesta, Patterson, Lemus, Williams, & Jiménez, 2017).…”

Section: Síntomas Y Factores De Riesgounclassified

Herramienta de apoyo para personas con limitaciones comunicativas utilizando un lenguaje visual = Support tool for people with communicative limitations using a visual language

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RESUMENLa presente tesis doctoral se desarrolla en el marco de los lenguajes visuales como recurso para satisfacer necesidades específicas de determinados grupos de personas que, bien por cuestiones de salud o bien por discapacidades físicas, presentan limitaciones a la hora de comunicarse mediante el lenguaje oral o el lenguaje escrito, se trata de individuos con necesidades especiales y en situación de dependencia que necesitan de otros recursos para minimizar y superar las dificultades comunicativas a las que se enfrentan.El colectivo concreto en el que se centra esta tesis es el de personas que padecen enfermedad de Alzheimer (EA) y sus cuidadores; para la elaboración de la tesis se ha trabajado desde varios escenarios, como el estudio de los síntomas de esta demencia, la búsqueda de información sobre la evolución de la misma, el estudio de las aplicaciones informáticas existentes que pretenden mejorar la calidad de vida de este colectivo, y la colaboración directa con profesionales del sector y pacientes para desarrollar un prototipo de herramienta que fortalezca la memoria, favorezca y aumente la interacción comunicativa, y facilite al profesional o cuidador que explote la herramienta la ejecución de sesiones de entrenamiento productivas sobre un interfaz de usuario sencillo y amigable. Para comprobar la eficiencia del prototipo desarrollado se han realizado varias sesiones de prueba que han sido ejecutadas y evaluadas por un profesional.Mediante el análisis de los resultados obtenidos en estas sesiones se ha comprobado que este tipo de herramientas pueden servir para diseñar y crear ejercicios de estimulación cognitiva adaptados a las necesidades de los usuarios, de forma que éstos obtengan un mayor beneficio de estas sesiones, redundando en una mejora de su calidad de vida. ABSTRACTThe present doctoral thesis is developed within the framework of visual languages as a resource to meet the specific needs of certain groups of people who, either because of health issues or because of physical disabilities, have limitations when communicating through oral language or written language, it is about individuals with special needs and in a dependency situation who need other resources to minimize and overcome the communication difficulties they face.The specific group in which this thesis focuses is that of people suffering from Alzheimer's disease and their caregivers; for its elaboration this thesis has been worked from various scenarios, such as the study of the symptoms of this dementia, the search for information on its evolution, the study of the existing computer applications that aim to improve the quality of life of this group of people, and the direct collaboration with professionals of the sector and patients to develop a prototype tool that strengthens the memory, favour and increase the communicative interaction , and provide the professional or caregiver who exploits the tool the execution of productive training sessions on a simple and friendly user interface. To verify the efficiency of the develop...

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Calidad de vida relacionada con la salud en cuidadores de pacientes con enfermedad de Alzheimer

Abstract: HRQOL in caregivers of patients with Alzheimer's disease deteriorates over time and is poorer than that of the age- and sex-matched general population.

Cited by 24 publications

References 30 publications

Psychological Symptomatology in Informal Caregivers of Persons with Dementia: Influences on Health-Related Quality of Life

Psychological Symptomatology in Informal Caregivers of Persons with Dementia: Influences on Health-Related Quality of Life

Cost-Effectiveness and Effects of a Home-Based Exercise Intervention for Female Caregivers of Relatives with Dementia: Study Protocol for a Randomized Controlled Trial

Herramienta de apoyo para personas con limitaciones comunicativas utilizando un lenguaje visual = Support tool for people with communicative limitations using a visual language

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