Calidad de Vida: a systematic review of quality of life in Latino cancer survivors in the USA

Samuel, Cleo A.; Mbah, Olive; Elkins, Wendi; Pinheiro, Laura C.; Szymeczek, Mary Anne; Padilla, Neda; Walker, Jennifer; Corbie-Smith, Giselle

doi:10.1007/s11136-020-02527-0

Cited by 32 publications

(26 citation statements)

References 174 publications

(323 reference statements)

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“…This is concerning given that Latino and Asian/Pacific Islander lung cancer survivors have previously reported a greater number of unmet supportive care needs than their White counterparts 57 and a systematic review found quality-of-life outcomes among Hispanic/Latino cancer survivors to be worse than any other racial/ethnic group. 58 Our findings that lung cancer survivors were screened at higher rates than ovarian cancer survivors could reflect that some CoCaccredited facilities focus screening efforts on the most common cancer diagnoses at their facilities. Our study also found that survivors with more advanced disease got screened at higher rates than those with an earlier disease stage.…”

Section: Discussionmentioning

confidence: 80%

Disparities in Psychosocial Distress Screening and Management of Lung and Ovarian Cancer Survivors

Rohan

Gallaway

Huang

et al. 2022

JCO Oncology Practice

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PURPOSE: Since 2016, the American College of Surgeons' Commission on Cancer (CoC) has required routine distress screening (DS) of cancer survivors treated in their accredited facilities to facilitate early identification of survivors with psychosocial concerns. Lung and ovarian cancer survivors have relatively low 5-year survival rates and may experience high levels of distress. We examined the extent to which ovarian and lung cancer survivors received CoC-mandated DS and whether DS disparities exist on the basis of diagnosis, sociodemographic factors, or facility geography (urban/rural). METHODS: This study included a quantitative review of DS documentation and follow-up services provided using existing electronic health records (EHRs). We worked with 21 CoC-accredited facilities across the United States and examined EHRs of 2,258 survivors from these facilities (1,618 lung cancer survivors and 640 ovarian cancer survivors) diagnosed in 2016 or 2017. RESULTS: Documentation of DS was found in half (54.8%) of the EHRs reviewed. Disparities existed across race/ethnicity, cancer type and stage, and facility characteristics. Hispanic/Latino and Asian/Pacific Islander survivors were screened at lower percentages than other survivors. Patients with ovarian cancer, those diagnosed at earlier stages, and survivors in urban facilities had relatively low percentages of DS. Non-Hispanic Black survivors were more likely than non-Hispanic White survivors to decline further psychosocial services. CONCLUSION: Despite the mandate for routine DS in CoC-accredited oncology programs, gaps remain in how many and which survivors are screened for distress. Improvements in DS processes to enhance access to DS and appropriate psychosocial care could benefit cancer survivors. Collaboration with CoC during this study led to improvement of their processes for collecting DS data for measuring standard adherence.

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Section: Discussionmentioning

confidence: 80%

Disparities in Psychosocial Distress Screening and Management of Lung and Ovarian Cancer Survivors

Rohan

Gallaway

Huang

et al. 2022

JCO Oncology Practice

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“…45 A meta-analysis and systematic review found that Latinx patients with cancer show worse distress, depression and overall health-related quality of life (HRQOL) than other minority patients and whites. 46 Similarly, Latinx patients report higher levels of burden, depression and physical health problems than patients of other ethnicities. 47 48 Therefore, addressing family issues is crucial in the adjustment and well-being of Latinx with advanced cancer and their informal caregivers.…”

Section: Introduction Patients With Advanced Cancer and Informal Care...mentioning

confidence: 99%

Cultural adaptation of meaning-centered psychotherapy for latino families: a protocol

et al. 2022

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IntroductionLiterature suggests couple-based interventions that target quality of life and communication can lead to positive outcomes for patients with cancer and their partners. Nevertheless, to date, an intervention to address the needs of Latino families coping with advanced cancer has not been developed. Meta-analytic evidence suggests that culturally adapted evidenced-based intervention targeting a specific cultural group is four times more effective. Our goal is to culturally adapt a novel psychosocial intervention protocol entitled ‘Caregivers-Patients Support to Latinx coping advanced-cancer’ (CASA). We hypothesised that combine two evidence-based interventions and adapting them, we will sustain a sense of meaning and improving communication as patients approach the end of life among the patient–caregiver dyad.Methods and analysisTo culturally adapt CASA, we will follow an innovative hybrid research framework that combines elements of an efficacy model and best practices from the ecological validity model, adaptation process model and intervention mapping. As a first step, we adapt a novel psychosocial intervention protocol entitled protocol entitled ‘Caregivers-Patients Support to Latinx coping advanced-cancer’ (CASA). The initial CASA protocol integrates two empirically based interventions, meaning-centred psychotherapy and couple communication skills training. This is an exploratory and prepilot study, and it is not necessary for a size calculation. However, based on recommendations for exploratory studies of this nature, a priori size of 114 is selected. We will receive CASA protocol feedback (phase 1b: refine) by conducting 114 questionnaires and 15 semistructured interviews with patients with advanced cancer and their caregivers. The primary outcomes of this study will be identifying the foundational information needed to further the develop the CASA (phase IIa: proof-of-concept and phase IIb: pilot study).Ethics and disseminationThe Institutional Review Board of Ponce Research Institute approved the study protocol #1907017527A002. Results will be disseminated through peer-reviewed publications.

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“…Adapting and developing culturally sensitive interventions is needed for Latinx families coping with advanced cancer (stage III or IV) [ 1 , 2 , 3 ]. Latinx patients coping with cancer have reported the need to include cultural values such as family and spirituality [ 4 , 5 ].…”

Section: Introductionmentioning

confidence: 99%

Psychosocial Intervention Cultural Adaptation for Latinx Patients and Caregivers Coping with Advanced Cancer

et al. 2022

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Latinx advanced cancer patients and caregivers are less likely to have adequate access to culturally congruent psychosocial interventions. Culturally relevant and adapted interventions are more effective within minority groups. We obtained patients’ and caregivers’ initial evaluations of the Caregivers–Patients Support to Latinx coping with advanced-cancer (CASA) protocol. A qualitative study was conducted, and an acceptance questionnaire and semi-structured interviews were conducted to culturally adapt the psychosocial intervention for Latinx coping with cancer. The semi-structured interview described and demonstrated intervention components and elicited feedback about each one. Latinx advanced cancer patients (Stage III and IV) and caregivers (n = 14 each) completed the acceptance survey, and N = 7 each completed semi-structured interviews. A total of 12 of the 14 patients and caregivers (85.7%) reported high acceptance of the goals and purposes of the intervention protocol. They also reported willingness to daily use of the content of the intervention components: Communication Skills, the Willingness of Meaning, Life has Meaning, Freedom of Will, Identity, Creative Sources of Meaning, and Homework. Most of the participants reported high acceptance (n = 9) of integrating family caregivers into therapy and the high acceptance (n = 10) of the length of the 4-session intervention.

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Calidad de Vida: a systematic review of quality of life in Latino cancer survivors in the USA

Cited by 32 publications

References 174 publications

Disparities in Psychosocial Distress Screening and Management of Lung and Ovarian Cancer Survivors

Disparities in Psychosocial Distress Screening and Management of Lung and Ovarian Cancer Survivors

Cultural adaptation of meaning-centered psychotherapy for latino families: a protocol

Psychosocial Intervention Cultural Adaptation for Latinx Patients and Caregivers Coping with Advanced Cancer

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