“But, You’re in a Wheelchair!”: A Systematic Review Exploring the Sexuality of Youth with Physical Disabilities

Giles, Madison; Juandó-Prats, Clara; McPherson, Amy C.; Gesink, Dionne

doi:10.1007/s11195-022-09769-5

Cited by 1 publication

(1 citation statement)

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“…21 Specific to individuals with disabilities, the conundrum of conversation initiation has been reported previously when evaluating discussions about sexual health between healthcare professionals and adolescents with chronic conditions. 11,18 Although both clinicians and affected individuals agree that sexual health needs to be discussed, it is common that neither party is comfortable with conversation initiation. This may be particularly challenging during visits related to spina bifida where several other competing complex medical-related discussions are required.…”

Section: Communication Factors Representative Quotationsmentioning

confidence: 99%

Male perspectives on clinical communication about sexual health in spina bifida

Rague

Hirsch

Rosoklija

et al. 2023

Develop Med Child Neuro

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AimTo assess perspectives on clinical communication about sexual health in young adult males with spina bifida.MethodSemi‐structured interviews were conducted between February and May 2021 with males at least 18 years of age with spina bifida to assess their perspectives and experiences of sexual health communication with clinicians. Demographic and clinical characteristics were obtained from chart review and a survey of patients. Interviews were transcribed verbatim, and conventional content analysis was used for transcript coding.ResultsTwenty individuals participated with a median age of 22 years 6 months (range 18–29 years). Sixteen had myelomeningocele. Most identified as heterosexual (n = 17) and not sexually active (n = 13). Barriers and facilitators of successful interactions were identified. Barriers for participants included general discomfort with talking about sex and variability in individual preferences for how conversations occur. Facilitators included participants' comfort with their urologist and discussing sex in relation to disability. Suggestions for improving discussions included (1) notifying individuals that discussion about sex will occur before clinic visits; (2) creating space for discussions; (3) respecting individuals' readiness to discuss; and (4) making discussions disability specific.InterpretationYoung adult males with spina bifida are interested in discussing sexual health with their clinicians. Great variability exists about conversation preferences, emphasizing the need to individualize clinical communication about sex. Current health guidelines for males may not be in line with individuals' wishes.

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Section: Communication Factors Representative Quotationsmentioning

confidence: 99%