“But this is a good cancer:” Patient perceptions of endometrial cancer in Denmark

Sidenius, Anne; Manderson, Lenore; Mogensen, Ole; Rudnicki, Martin; Møller, Lars Alling; Hansen, Helle Ploug

doi:10.1111/jocn.14615

Cited by 6 publications

(5 citation statements)

References 38 publications

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“…The first experience of HRQL after surgery can vary depending on several factors, including the type of surgery performed, the individual's overall health, the purpose of the surgery, and the expectations of the patient [18][19][20]. In particular, in women affected by endometrial cancer, the perception of disease is of utmost importance; since often surgery is by itself the most relevant treatment act, after hysterectomy, a feeling of good prognosis is very common [21,22]. In this setting, the impact of surgical treatment is paradigmatic given that these women are typically elderly with co-morbidities, and the maintenance of good HRQL should be integrated into the postoperative recovery [23].…”

Section: Discussionmentioning

confidence: 99%

Health-Related Quality of Life after Hysterectomy for Endometrial Cancer: The Impact of Enhanced Recovery after Surgery Shifting Paradigm

Ferrari,

Soleymani Majd,

Giannini

et al. 2024

Gynecol Obstet Invest

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Objectives: Enhanced recovery after surgery (ERAS) protocols provide well-known benefits in the immediate recovery with a shorter length of stay (LOS) also in gynecological surgery. However, the impact of ERAS has not been clearly showed yet regarding long-term consequences and health-related quality of life (HRQL). The aim of this study is to investigate the impact of ERAS on HRQL after hysterectomy for endometrial cancer. Design: Observational retrospective study with propensity score matching (PSM). Participants We administered the SF-36 validated questionnaire to women underwent hysterectomy and lymph nodal staging before and after introducing ERAS protocol, getting, respectively, a standard practice (SP) and ERAS group Settings Academic hospital Methods We collected demographic, clinical, surgical and postoperative data and performed a PSM of the baseline coufouders. We administered the questionnaire four weeks after the surgery. The SF-36 measures HRQL using eight scales: physical functioning (PF), role physical (RLP), bodily pain (BP), general health (GH), vitality (Vt), social functioning (SF), role emotional (RLE) and mental health (MH). Results After PSM, we enrolled a total of 154 patients, 77 in each group (SP and ERA). The two groups were similar in terms of age, BMI, anaesthesiologic risk, Charlson comorbidity index (CCI) and surgical technique (minimally invasive versus open access). Median LOS was shorter for ERAS group (5 versus 3 days; p = 0.02), while no significant differences were registered in the rates of postoperative complications (16.9% versus 17.4%; p = 0.66). Response rates to SF-36 questionnaire were 89% and 92%, respectively, in SP and ERAS group. At multivariate analyzes, the mean scores of SF-36 questionnaire, registered at 28 days weeks after surgery (range 26-32 days), were significantly higher in ERAS group for PF (73.3 vs 91.6; p < 0.00), RLP (median 58.3 vs 81.2; p = 0.02) and SF (37.5 versus 58.3; p = 0.01) domains, when compared to SP patients. Limitations Further follow-up was not possible due to the anonymized data derived from clinical audit. Conclusions ERAS significantly increases HRQL of women underwent surgery for endometrial cancer. HRQL assessment should be routinary implemented in the ERAS protocol.

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Section: Discussionmentioning

confidence: 99%

Health-Related Quality of Life after Hysterectomy for Endometrial Cancer: The Impact of Enhanced Recovery after Surgery Shifting Paradigm

Ferrari,

Soleymani Majd,

Giannini

et al. 2024

Gynecol Obstet Invest

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“…Much like Kazimierczak and Skea (), we argue that notions of curable/incurable, trivial and gentle/invasive and brutal, and aggressive/non‐aggressive help constitute a categorisation of endometrial cancer as good (Sidenius et al . ); causing women to judge certain experiences as abnormal and ‘consider their own experiences as less serious (Bell , p. 61)’.…”

Section: Methodsmentioning

confidence: 99%

Feeling lucky: hierarchies of suffering and stories of endometrial cancer in a Danish context

Sidenius

Mogensen

Rudnicki

et al. 2019

Sociology Health & Illness

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Illness stories are a prime analytical way of understanding patient perspectives on cancer. Nevertheless, limited studies have focused on stories of endometrial cancer. An ethnographic study including participant observation and interviews among 18 Danish women with endometrial cancer was conducted to examine prevalent stories and the ways the women responded to them. In this article, the analysis focuses on two exemplary cases, which present a line of issues related to the kinds of experiences that suffering includes. Findings illustrate that feelings of luck were central to the experience of being diagnosed, treated and cured, which was related to the way health professionals framed endometrial cancer as favourable through notions of curable/incurable, trivial and gentle/invasive and brutal, and aggressive/non‐aggressive. Drawing upon the concept of a ‘hierarchy of suffering’, we exemplify how women tended to scale own experiences of suffering against others’, leading some to believe they were not in a legitimate position to draw attention to themselves nor seek help and support, despite adverse physical, psychosocial effects. Thus, feelings of being lucky were intertwined with a sense of ambivalence. We conclude by discussing how suffering arises within a moral context, suggesting that the ways we speak of cancer may make some experiences unspeakable. This calls for increased clinical attention to more diverse narratives of cancer.

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“…As diabetes prevalence globally continues to rise, the need for more tailored approaches to diagnostics becomes apparent (Sidenius et al. 2019; Wallin and Ahlström 2010), particularly among Native Americans, Alaska Natives, and Indigenous Peoples (Hartmann et al. 2019).…”

Section: From Cultural Competency To Decolonizing Health Carementioning

confidence: 99%

“…How, then, might decolonization of diagnosis bring these other factors to the forefront, and how might it alter the response of diabetes patients? As diabetes prevalence globally continues to rise, the need for more tailored approaches to diagnostics becomes apparent (Sidenius et al 2019;Wallin and Ahlström 2010), particularly among Native Americans, Alaska Natives, and Indigenous Peoples (Hartmann et al 2019). Our research explored the person-specific social and cultural histories of Native American patients as they spoke about a new diabetes-related diagnosis.…”

Section: From Cultural Competency To Decolonizing Health Carementioning

confidence: 99%

Decolonizing Care at Diagnosis: Culture, History, and Family at an Urban Inter‐tribal Clinic

Smith-Morris

Rodríguez²,

Soto³

et al. 2021

Med Anthropol Q

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The decolonization framework in medical anthropology is slowly reframing tropes of cultural competency toward decolonizing health care. For decolonization of health care to occur, both colonial histories and continuing postcolonial inequities must be recognized from the first diagnostic moment. We report on qualitative research into the role of culture, history, and family experience in person‐specific reactions to receipt of a diagnosis. A collaborative approach at an urban inter‐tribal clinic was used to interview patients with a recent (within six months) diagnosis of diabetes or related condition. Interviews revealed ways that the Relocation Act eventuated in isolation, poverty, and diabetes among now‐urban Native Americans. We discuss how patients may or may not have the ability to (re)connect with their heritage and may simultaneously perceive only recent family contexts as influential in their diabetes. We conclude by acknowledging how postcolonial harms are not captured in diagnoses but should not be left out of diagnostic discussions.

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“But this is a good cancer:” Patient perceptions of endometrial cancer in Denmark

Abstract: In providing women with endometrial cancer with optimal support through diagnosis and treatment, clinicians should attend to the complexity of patients' illness understandings and be aware that assuring patients of a good prognosis not always has the expected impact.

Cited by 6 publications

References 38 publications

Health-Related Quality of Life after Hysterectomy for Endometrial Cancer: The Impact of Enhanced Recovery after Surgery Shifting Paradigm

Health-Related Quality of Life after Hysterectomy for Endometrial Cancer: The Impact of Enhanced Recovery after Surgery Shifting Paradigm

Feeling lucky: hierarchies of suffering and stories of endometrial cancer in a Danish context

Decolonizing Care at Diagnosis: Culture, History, and Family at an Urban Inter‐tribal Clinic

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