But parents need help! Pathways to caregiver mental health care in pediatric hospital settings

Salley, Christina G.; Axelrad, Marni E.; Fischer, Elizabeth; Steuer, Katherine B

doi:10.1017/s1478951522001353

Cited by 11 publications

(13 citation statements)

References 26 publications

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“…Offering routine, and low-threshold psychological support for affected children and their parents could unburden the families and prevent long-term mental consequences [ 26 ]. To deliver comprehensive integrated care, these aspects should be assessed routinely by care providers, as parents may not proactively address these aspects themselves [ 27 , 28 ]. In many cases, patient organizations are an important part of providing peer support and psychosocial support [ 26 , 29 ].…”

Section: Discussionmentioning

confidence: 99%

Experiences of Health Care and Psychosocial Needs in Parents of Children with Spinal Muscular Atrophy

Inhestern

Brandt

Driemeyer

et al. 2023

IJERPH

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Spinal muscular atrophy (SMA) is a neurodegenerative disorder that is characterized by progressive weakness, respiratory insufficiency, and dysphagia. Due to symptom burden and disease progress, its care management and impact on daily life can severely burden the families of affected children. The objectives of this study are (1) to explore the health care experiences and (2) to investigate the psychosocial needs of the parents of children with SMA. In total, 29 parents of patients with SMA participated in our study. All children received supportive therapy (e.g., physiotherapy) and most were dependent on medical equipment. Parents perceived the health care positively regarding team quality, communication and access to medical care. An assessment of the impact of the child’s health on the family (e.g., stressors, burden, consequences) is not routinely integrated into care. On average, parents reported low to medium levels of psychosocial needs. Due to the complex health care needs of SMA patients, the health care experiences of parents can provide relevant information on care delivery. To enhance the inclusion of psychosocial and emotional issues, as well as family impact, into routine health care, health care providers should be sensitive towards parental needs for consistency in the health care team and emotional aspects and, if applicable, address them proactively.

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Section: Discussionmentioning

confidence: 99%

Experiences of Health Care and Psychosocial Needs in Parents of Children with Spinal Muscular Atrophy

Inhestern

Brandt

Driemeyer

et al. 2023

IJERPH

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“…Incorporating an understanding of the patient’s behavior, considering current or previous trauma exposure, and aiming to provide supportive care that promotes the child and family’s feelings of safety and security are key principles [ 87 , 88 ]. Considering the parent–child dyad of pediatric acute care, parental inclusion can enhance TIC [ 89 , 90 ].…”

Section: Approaches To Reducing the Burden Of Adverse Childhood Hospi...mentioning

confidence: 99%

Brain-Directed Care: Why Neuroscience Principles Direct PICU Management beyond the ABCs

et al. 2022

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Major advances in pediatric intensive care (PICU) have led to increased child survival. However, the long-term outcomes among these children following PICU discharge are a concern. Most children admitted to PICU are under five years of age, and the stressors of critical illness and necessary interventions can affect their ability to meet crucial developmental milestones. Understanding the neuroscience of brain development and vulnerability can inform PICU clinicians of new ways to enhance and support the care of these most vulnerable children and families. This review paper first explores the evidence-based neuroscience principles of brain development and vulnerability and the impact of illness and care on children’s brains and ultimately wellbeing. Implications for clinical practice and training are further discussed to help optimize brain health in children who are experiencing and surviving a critical illness or injury.

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“…Caregivers routinely receive psychosocial support in the NICU, but it is typically designed to address social needs (e.g. housing, food security) or provide supportive psychotherapy narrowly focused on adjusting to the infant's medical condition rather than targeting caregiver mental health [19,20 ▪▪ ]. Qualitative studies involving NICU families show that parents seek support from NICU staff to address their mental health needs.…”

Section: Introductionmentioning

confidence: 99%

“…Occasionally, mobilization of an acute crisis response is warranted if the parent is experiencing a psychotic episode or is actively suicidal [38 ▪ ]. Processes and procedures should be developed to support referral and treatment [20 ▪▪ ].…”

Section: Introductionmentioning

confidence: 99%

“…NICUs initiating and sustaining a caregiver mental health screening and referral programme should consider their resources, treatment/intervention factors, legal, billing and documentation implications. Logistic, institutional, legal and financial barriers [20 ▪▪ ] can be overcome by planning coupled with a trial-and-error approach as a learning system (Table 1). Every programme will vary in scope and resources even among similar-level NICUs.…”

Section: Introductionmentioning

confidence: 99%

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Addressing caregiver mental health in the neonatal ICU

Sadler

Okito

Soghier

2023

Current Opinion in Pediatrics

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Purpose of reviewThe neonatal ICU (NICU) setting is a unique opportunity to not only detect major changes in caregiver mental health through universal perinatal mood and anxiety disorder (PMAD) screening but also intervene with specialized support. We review evidence for addressing caregiver mental health in the NICU, explore current guidelines and models for integrated behavioural health programmes, and describe challenges specific to NICUs, particularly in standalone paediatric hospitals.Recent findingsParents of infants admitted to the NICU are at an increased risk for developing PMADs at rates well above the general postpartum community. Select NICUs within the United States and internationally have recognized the importance of having an embedded psychologist to address caregiver PMADs. However, organizational structures within paediatric healthcare systems are not equipped to manage the logistical, ethical, legal and practical needs of comprehensive caregiver mental health programmes.SummaryTo properly address caregiver mental health in NICU settings, clinical and administrative teams must work together to ensure seamless service provision. Systems that facilitate the development of unique parent medical records at the onset of paediatric care are likely to significantly reduce potential liability risks and solve several challenges related to caregiver-focused mental health support in the NICU.Video abstracthttp://links.lww.com/MOP/A70

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But parents need help! Pathways to caregiver mental health care in pediatric hospital settings

Cited by 11 publications

References 26 publications

Experiences of Health Care and Psychosocial Needs in Parents of Children with Spinal Muscular Atrophy

Experiences of Health Care and Psychosocial Needs in Parents of Children with Spinal Muscular Atrophy

Brain-Directed Care: Why Neuroscience Principles Direct PICU Management beyond the ABCs

Addressing caregiver mental health in the neonatal ICU

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